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Post by myocat on Nov 6, 2018 11:21:46 GMT -5
When people started out saying "not to be something". They actually are. I guess, I will delay to have one less thing to concern at this point. Move on.
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Post by sportsrancho on Nov 6, 2018 11:25:34 GMT -5
I’ve never heard a parent say that, the benefits so outweigh any risk. The damage that Afrezza KEEPS you from having would add many years of life. And so much “ Less Drama”!
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Post by mango on Nov 6, 2018 11:27:22 GMT -5
My daughter age 16 and a monogenic diabetic had stopped using Lantus this week. She is still using humalog at meal time, however. We asked her endo to write off label Afreza. We got it but I hesitated and I have not filled the Rx. You see, that lung cancer cloud is hanging over my head and we'll wait for a few more years. Your daughter is 16 years old and you are micro-regulating how her disease is treated? Why does she not get to decide whether she will use Afrezza or not at 16 years of age? There's a real risk of lung cancer from second hand smoke. Is she allowed to be out in the public where people might be smoking cigarettes? Comon' guy...😏
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Post by ryster505 on Nov 6, 2018 11:34:27 GMT -5
My daughter age 16 and a monogenic diabetic had stopped using Lantus this week. She is still using humalog at meal time, however. We asked her endo to write off label Afreza. We got it but I hesitated and I have not filled the Rx. You see, that lung cancer cloud is hanging over my head and we'll wait for a few more years. Your daughter is 16 years old and you are micro-regulating how her disease is treated? Why does she not get to decide whether she will use Afrezza or not at 16 years of age? There's a real risk of lung cancer from second hand smoke. Is she allowed to be out in the public where people might be smoking cigarettes? Comon' guy...😏 Also curious as to why you went through the trouble and had a script written for her in the first place. Something to me smells quite fishy about your motive behind this post.
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Post by mango on Nov 6, 2018 12:04:44 GMT -5
Your daughter is 16 years old and you are micro-regulating how her disease is treated? Why does she not get to decide whether she will use Afrezza or not at 16 years of age? There's a real risk of lung cancer from second hand smoke. Is she allowed to be out in the public where people might be smoking cigarettes? Comon' guy...😏 Also curious as to why you went through the trouble and had a script written for her in the first place. Something to me smells quite fishy about your motive behind this post. I've already goofed on a judgement call once today, glad I learned from my mistake. Having said that, I suppose it is entirely possible for a MannKind long to not believe in the Afrezza and the MannKind Science. Makes no logical sense, but I'm not suprised.
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Post by xanet on Nov 6, 2018 12:15:59 GMT -5
Your daughter is 16 years old and you are micro-regulating how her disease is treated? Why does she not get to decide whether she will use Afrezza or not at 16 years of age? There's a real risk of lung cancer from second hand smoke. Is she allowed to be out in the public where people might be smoking cigarettes? Comon' guy...😏 Also curious as to why you went through the trouble and had a script written for her in the first place. Something to me smells quite fishy about your motive behind this post. As a parent, it makes sense to me. I filled a script for Advair for my daughter's asthma, but it's still setting on the shelf 3 years later, because I couldn't bring myself to give it to her because of a statement on the label about increased risk of death. As a scientist, I knew the risk was minimal. As a parent, I just couldn't do it. And if I had a 16-year-old daughter who wanted help managing a disease as terrifying as diabetes, you bet I'd be active in helping and advocating for her! That said, I'm comfortable with the safety profile of Afrezza and would give it to my daughter in a heartbeat. There's nothing better out there!
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Post by mango on Nov 6, 2018 12:31:38 GMT -5
Also curious as to why you went through the trouble and had a script written for her in the first place. Something to me smells quite fishy about your motive behind this post. As a parent, it makes sense to me. I filled a script for Advair for my daughter's asthma, but it's still setting on the shelf 3 years later, because I couldn't bring myself to give it to her because of a statement on the label about increased risk of death. As a scientist, I knew the risk was minimal. As a parent, I just couldn't do it. And if I had a 16-year-old daughter who wanted help managing a disease as terrifying as diabetes, you bet I'd be active in helping and advocating for her! That said, I'm comfortable with the safety profile of Afrezza and would give it to my daughter in a heartbeat. There's nothing better out there! Smart call on the Advair. Parent of the Year goes to Xanet.
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Post by scottmnkd on Nov 6, 2018 13:50:50 GMT -5
People are worried about the remote chance of getting lung cancer with Afrezza with no evidence of it causing the disease, but accept the risk of using automobiles without considering the dangers. Go figure!
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Post by mytakeonit on Nov 6, 2018 13:59:25 GMT -5
If you just breathe in the air in any industrial city, then lung cancer is probably in your future. I wouldn't worry about Afrezza so much. Even Halloween candy should come with a warning label saying "increased risk of death"
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Post by hellodolly on Nov 6, 2018 14:29:08 GMT -5
If you just breathe in the air in any industrial city, then lung cancer is probably in your future. I wouldn't worry about Afrezza so much. Even Halloween candy should come with a warning label saying "increased risk of death" Yep. I'm reading a lot of 'analysis paralysis' kind of thinking from parents. I'm a parent and I certainly get it but, the risks associated with diabetes isn't as much of a concern compared to something say... that isn't proven? In April 2014 my wife was nearly killed in an automobile accident, sent by air ambulance, 2 weeks in a coma, three hospitals and seven weeks later she walked out with a traumatic brain injury that resulted in an MMI of 72%. She walks and talks like nobodies business but, she is impaired 28%. No smell, no taste and reduced cognitive abilities. She works 10 hours to do 8 hours work.
While in the ER, we were asked if we would allow her to be part of a PIII global clinical trial that the hospital was a part of, and she would be their first. It was a lot to think about and I don't want to compare apples and oranges because it's all involving different sets of facts. But, there was an enormous amount of pressure because the medicine had to be injected into her blood stream with 24 hours of the brain trauma. I didn't have time to lockup on 'analysis paralysis' and ask the questions. I just wanted to know safety profile and efficacy and then I had to trust the science and the doctors.
With all the data and the science put into Afrezza and what we know the consequences of diabetes to PWDs, I just seems like you have to go with the science and the medicine based on what we know. Any ways, just my .02 cents.
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Post by stevil on Nov 6, 2018 15:00:09 GMT -5
What you’re talking about has already happened. Afrezza is FDA approved. There is a huge difference between being approved and being recommended.
Recommended means first line therapy, meaning it’s the go to drug that everyone with the disease gets put on before anything else. Approved means it has passed the initial trial period and has been shown to be safe and is allowed to be prescribed.
No one is stopping physicians from prescribing Afrezza. They’re simply waiting for more data. Despite what anyone on here says, time is the best gauge of safety. Medicine/technology isn’t sophisticated enough to have a single test or even group of tests to prove safety. They can all point in that direction, but it’s a consensus of information that gets used to paint the whole picture. It’s not uncommon for retrospective studies to show causality that once passed through initial testing. You’re right that at some point enough is enough. Who knows when that time will be, but it’s not in the near future unless the hidden data is extremely compelling. Dr. Kendall knows more than any of us and seems confident that he can get it done, so I’ve got hope.
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Post by mytakeonit on Nov 6, 2018 16:14:17 GMT -5
Yep, can't recommended before being approved. MNKD has been taking baby steps for several years ... now it's about time that we become the track star!
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Post by sayhey24 on Nov 6, 2018 18:31:42 GMT -5
I’ve never heard a parent say that, the benefits so outweigh any risk. The damage that Afrezza KEEPS you from having would add many years of life. And so much “ Less Drama”! Sports - Aged has told us this many times. In not so many words a few years back he told us his Endo's said afrezza would make your lungs explode. To this day Aged still has not tried afrezza.
As far as this girl, if its a true story its a shame. There is no better way to get insulin, not even IV. With IV you still have a single point of entry. With afrezza its spread across the surface half the size of a tennis court.
As far as FDKP in the lung, she has more danger going outside on a beautiful spring day with a heavy pollen count.
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Post by sportsrancho on Nov 6, 2018 18:37:14 GMT -5
I’ve never heard a parent say that, the benefits so outweigh any risk. The damage that Afrezza KEEPS you from having would add many years of life. And so much “ Less Drama”! Sports - Aged has told us this many times. In not so many words a few years back he told us his Endo's said afrezza would make your lungs explode. To this day Aged still has not tried afrezza.
As far as this girl, if its a true story its a shame. There is no better way to get insulin, not even IV. With IV you still have a single point of entry. With afrezza its spread across the surface half the size of a tennis court.
As far as FDKP in the lung, she has more danger going outside on a beautiful spring day with a heavy pollen count.
Agree. And what concerns me is this man is still his Doctor!
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Post by agedhippie on Nov 6, 2018 20:08:10 GMT -5
Sports - Aged has told us this many times. In not so many words a few years back he told us his Endo's said afrezza would make your lungs explode. To this day Aged still has not tried afrezza.
As far as this girl, if its a true story its a shame. There is no better way to get insulin, not even IV. With IV you still have a single point of entry. With afrezza its spread across the surface half the size of a tennis court.
As far as FDKP in the lung, she has more danger going outside on a beautiful spring day with a heavy pollen count.
Agree. And what concerns me is this man is still his Doctor! And I saw him today No Afrezza, but I did swap from Toujeo to Tresiba so baby steps...
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