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Post by novafett on Mar 12, 2019 11:43:36 GMT -5
Well that was a little much I’ll have to say:-) Try not to get it in your head that it’s hard to approach people, that they aren’t going to want to listen because that’s just not true 98% of the time ..when you have in your hand the Dreamboat you’ve got the iPhone of insulin. A secret most people don’t know about. And you get to tell them, it’s beyond fun! You talk to her?
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Post by sweedee79 on Mar 12, 2019 12:04:27 GMT -5
No one here is hell-bent on destroying Agedhippie.. that is just rediculous..
The only thing anyone on this thread is trying to do is help.. in the end it is a personal matter between those involved..
As for Aged I often wonder why the man is here. And I don't agree with much of what he says.. After seeing my dad on Afrezza vs Novolog there is no question in my mind that he is dead wrong.
What I saw is my dad's body healing from the ravages of diabetes in 6 short months. That wasn't happening with Novolog..
He advocates the pump etc. Etc.. always sidestepping the quality of the insulin used.. Control is important but so is the insulin used. Novolog is inferior..
I understand why people on this board get irritated.. it isn't just because his views are contrary...
This girl at least deserves to know that there is another remarkable option out there.. she deserves this knowledge.. and no one is trying to "sell" her anything.. jeez.. give me a break already.. She sounds like an intelligent woman who can make her own choices.. everyone here cares.. that is what this thread is about..
If she goes to VDEX she will find professional people who understand Afrezza.. lots of people come off pumps.. with careful professional care.. so let's not get so dramatic about it.. OMG!!!!
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Post by fisherman on Mar 12, 2019 15:04:32 GMT -5
Granted that Mannkind is not allowed to put out this kind of adv.
Is the common joe prohibited from attaching this site to every social media that one comes across?
Just really want to know if this would be out of order?
Thank you
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Post by uvula on Mar 12, 2019 15:10:03 GMT -5
Huge mistake to link a financial site like this to a diabetic support group. Even though we mean well, the diabetics are naturally skeptical and turned off by people with a financial motive.
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Post by agedhippie on Mar 12, 2019 17:29:46 GMT -5
Do you really believe that a Type 1 will die within a few hours of being removed from their pump? That's factually inaccurate to say the least. Quite the roundabout way you have to try to dissuade someone from helping someone getting off the pump who is obviously having problems with it. But then again you spout negativity at 98% of the turns here w regard to Afrezza. I have seen it happen twice, both times overnight so yes I do believe it is possible. If you are on the pump it provides basal so once the pump stops you have no insulin in your system and you are going into DKA. When this happens at night it is bad. It happened to a friend of mine the year before last.
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Post by peppy on Mar 12, 2019 17:53:12 GMT -5
Do you really believe that a Type 1 will die within a few hours of being removed from their pump? That's factually inaccurate to say the least. Quite the roundabout way you have to try to dissuade someone from helping someone getting off the pump who is obviously having problems with it. But then again you spout negativity at 98% of the turns here w regard to Afrezza. I have seen it happen twice, both times overnight so yes I do believe it is possible. If you are on the pump it provides basal so once the pump stops you have no insulin in your system and you are going into DKA. When this happens at night it is bad. It happened to a friend of mine the year before last. ok, I see what you are saying. People do however get off pumps. adjust their basal. Aged, I know you are not changing any time soon, and that is fine with me. Have you watched video below, he is excellent. He tells us what it is like. He came off the pump. We know horrors do happen, they do not have to be the rule. people working in hospitals have seen the occasional horrors
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Post by georgia777 on Mar 12, 2019 21:33:48 GMT -5
Hello everyone, I am a long time share holder of Mannkind and I know this forum is generally about the money, but I have a request for help! My young daughters horse trainer who I'll call, "Al", who we all adore is a type 1 diabetic and has been since she was a young girl. Now in her 30's she's been on a pump for approximately 13 years. According to Al, her Endo will not even consider Afrezza. Al has had this doctor for a very long time. She is fearful of dying without the pump. I'm not sure if it's because of her Dr. or if her own reality of having lived with this for so long, that she doesn't know anything different. She had never heard of Afrezza prior to us suggesting it to her a few years ago. But, her Doctor is adamant about not using Afrezza and I don't know if he's even heard of it or if he even is prescribing it. Al is a super, super sweet beautiful woman who my daughter loves so much and Al is just this live, vivacious girl, trainer, friend, who you wouldn't even know is always getting sick because of the failing of the pumps delivering her insulin or her insulin itself. She is very proud and doesn't talk about it much. The problem is, Al is either really sick, or in the Urgent Care every other month. Recently, she passed out and was found unconsciousness in her car where she almost died. Something went wrong with her pump. We live in Westlake, Ca, 5 minutes from MC. I've seen posts that people are getting off their pumps with Afrezza, I just don't know enough about the process on how to help her and if Afrezza can work for her. I've been a believer in Afrezza since the day I invested in it. Can anyone help? You bet she is scared of dying if she comes off the pump. This is one of those things a lot of people overlook - this is a condition that will easily kill you in a matter of hours and that is something you are always very aware of. She is a long term diabetic, and given how long she has been on a pump at that time insurers had to be fought tooth and nail for a pump so it must have been seen as important. My guess is that the pump gave her a lot more stability than she had before and you are now asking her to stop. Pumps fail to deliver insulin because of occlusions or pump failure. If the description is accurate I am guessing these are occlusions which are blockages in the tubing that obstruct the insulin flow. Pump failures happen but they are very rare, maybe one every few years, and overdosing failures are an order of magnitude rare than that. Certainly the manufacturer will insist on replacing the pump after a failure because they want it back to analyze the fault. As to Urgent Care, the question would be why? Is it because she is hypo, hyper, dehydrated, or even something not diabetes related? Does she have other conditions that she doesn't want to talk about (since she is described as. "She is very proud and doesn't talk about it much.") I suspect that an attempt to sell her Afrezza is not going to end well as she would see it as people interfering in her private affairs. If you really want to do this I would find another diabetic she knows and trusts and get them to help. People mean well, but it often doesn't seem like it when you are on the receiving end (from personal experience. Not related to this forum btw.)
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Post by JEvans on Mar 12, 2019 22:57:50 GMT -5
Thanks for all the helpful commits, everyone seems to make good points! Hopefully Al will read this and chime in on the facts, or her reality.
My wife and I spoke to Al today and she is open. She see's her Endo, I believe tomorrow, though I don't expect any new revelations from this. I will keep you posted.
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Post by peppy on Mar 13, 2019 15:24:19 GMT -5
You guys know Llane is going to find these videos all over the board..rip my head off...this video is going viral..kids got over 78 views in an hour..Itell..I told you not to post outside of the cones..now I have to move them all over here from there..it's a complete mess! hahaa! (I am in soo much trouble..thing is..I see it coming..before it happens) Not this video itell. Everyone thanks you for this one. It is also on the facebook Afrezza board. Jake's mother is a board member, someone else posted it on that board and she said, this is her son. Wow. This video is a gem and it needs to be all over the board. Love you.
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Post by olebob1 on Mar 13, 2019 15:34:01 GMT -5
You guys know Llane is going to find these videos all over the board..rip my head off...this video is going viral..kids got over 78 views in an hour..Itell..I told you not to post outside of the cones..now I have to move them all over here from there..it's a complete mess! hahaa! (I am in soo much trouble..thing is..I see it coming..before it happens) Not this video itell. Everyone thanks you for this one. It is also on the facebook Afrezza board. Jake's mother is a board member, someone else posted it on that board and she said, this is her son. Wow. This video is a gem and it needs to be all over the board. Love you. FBook Afrezza group: Cheryl Duetsch Facciani Hi, I’m so happy his video got some hits! This is my son, Jake! He is rocking Afrezza
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