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Post by mymann on Jul 20, 2019 15:28:29 GMT -5
When well educated and committed patients with their own research confronts a doctor about their own health, either the treating doctor will try to satisfy the patient or they will be defensive about their credentials and deny new treatments until they get embarrassed about their lack of knowledge..
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Post by sweedee79 on Jul 20, 2019 16:36:27 GMT -5
We need large trial data to prove anything.. real world isn't moving the needle that much.... Nor are educated patients.. that is why we are seeing only 800 scripts at this time..
SOC isn't going to change anytime soon either and we don't have the money to do what we need to do. That is why I am supporting Vdex..It's another way to sell scripts and broaden awareness and perhaps increase retention.
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Post by brotherm1 on Aug 15, 2019 18:35:52 GMT -5
Dr. Kendall talks a bit about sales and retention issues in his 2018 ADA interview. Around 22 minutes in he also discusses the forthcoming blue tooth training inhaler. On that subject he mentions the inhale to be comparable dose to dose with injectables both quantitatively and qualitatively. Perhaps the blue tooth inhaler will help with retention? To what extent I wonder? vimeo.com/292928687
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Post by sportsrancho on Aug 15, 2019 18:45:41 GMT -5
That’s great because so many people or 25% of people do not inhale correctly. But what do you do when the doctor prescribes a four unit and the person should really be using a 12 unit and then the person feels like it does not work for them? You send them to Vdex:-))
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Post by sweedee79 on Aug 15, 2019 18:57:48 GMT -5
Dr. Kendall talks a bit about sales and retention issues in his 2018 ADA interview. Around 22 minutes in he also discusses the forthcoming blue tooth training inhaler. On that subject he mentions the inhale to be comparable dose to dose with injectables both quantitatively and qualitatively. Perhaps the blue tooth inhaler will help with retention? To what extent I wonder? vimeo.com/292928687It isn't comparable though.. my understanding is you need 1.5 to 2Xs Afrezza.. and follow up doses.. Actually when my dad was prescribed Afrezza the insert said the same dose for dose as RAA.. and that is what he was prescribed.. then we raised the morning dose a bit.. it was working for him.. could have been better though had he been on a higher dose.. Due to his age and lack of doctor knowledge they were scared to death of hypo which never happened.. The point with Afrezza is you CAN take more.. The docs had absolutely no clue about Afrezza.. and didn't seem to really want to know.. we didn't have support.. then insurance problems..
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Post by brotherm1 on Aug 15, 2019 19:40:39 GMT -5
I too thought at first Sweedee that he was saying unit to unit. Then I had to listen to him several times or more.
I think he’s saying the particular dose with blue hale is used up totally or so like an injectable would be when done correctly. I have heard and read about issues with people not doing the inhale correctly and not getting the full dose in. Like I said, I don’t know to what degree the blue hale would help with retention. At the least though, I suppose every little bit helps. And perhaps with many paying a premium out of pocket, perhaps many get discouraged too quickly if they are not getting the full dose. I don’t know. They’ve been working on this blue tooth inhaler for a long time though, so hopefully they have sound reasoning to do so.
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Post by agedhippie on Aug 15, 2019 20:32:49 GMT -5
I too thought at first Sweedee that he was saying unit to unit. Then I had to listen to him several times or more. I think he’s saying the particular dose with blue hale is used up totally or so like an injectable would be when done correctly. I have heard and read about issues with people not doing the inhale correctly and not getting the full dose in. Like I said, I don’t know to what degree the blue hale would help with retention. At the least though, I suppose every little bit helps. And perhaps with many paying a premium out of pocket, perhaps many get discouraged too quickly if they are not getting the full dose. I don’t know. They’ve been working on this blue tooth inhaler for a long time though, so hopefully they have sound reasoning to do so. I suspect that cost would be less important than outcome. If I have to take 12u with a meal rather than 8u then I would do that quite happily - after all my insulin sensitivity already literally changes with the time of day. Getting the message out that it is not really a 1:1 mapping is critical to retention. If I used it I would probably start out with the idea that an Afrezza unit is 75% of a RAA unit and work from there. I strongly suspect that is what VDEX do.
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Post by peppy on Aug 15, 2019 21:09:22 GMT -5
Dr. Kendall talks a bit about sales and retention issues in his 2018 ADA interview. Around 22 minutes in he also discusses the forthcoming blue tooth training inhaler. On that subject he mentions the inhale to be comparable dose to dose with injectables both quantitatively and qualitatively. Perhaps the blue tooth inhaler will help with retention? To what extent I wonder? vimeo.com/292928687It isn't comparable though.. my understanding is you need 1.5 to 2Xs Afrezza.. and follow up doses.. Actually when my dad was prescribed Afrezza the insert said the same dose for dose as RAA.. and that is what he was prescribed.. then we raised the morning dose a bit.. it was working for him.. could have been better though had he been on a higher dose.. Due to his age and lack of doctor knowledge they were scared to death of hypo which never happened.. The point with Afrezza is you CAN take more.. The docs had absolutely no clue about Afrezza.. and didn't seem to really want to know.. we didn't have support.. then insurance problems.. Agreed. Dosing was a problem. The real retention problem is health insurance coverage. We can read about it on the facebook site, Approval is for 1 year, and then it can take months to get another approval. My take is, the insurance approvals and then denials are part of the catch and kill. Give a few people approval and then take it away, gives the illusion that retention is a problem. The real problem is insurance coverage. Pharma and insurance have had years to work out the kinks on this process it would seem. Sweedee, I still remember you telling us how upset Dad was when afrezza was taken away. He wasn't the only one. It is how it is being done. Illusions of dissatisfaction. One more thing, insulin has always been hard to dose. we see how fearful subq users can be about their dosing, because they really don't want to die. What a piece of chit world exists when we see it how it really is. Kickbacks for a for profit medical system. For the shareholders and all. I spent some time with my grandson today, he will turn three next week. I had the letters out, and we were doing the letter sounds and putting the letters together. I made a I love you. and we were reading it. My three year old grandson looked me square in the eyes and said, I love you Nana. I looked at him, and I said, I love you too.
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Post by brotherm1 on Aug 15, 2019 21:57:50 GMT -5
With time-in-range now part of the ADA SOC with CGM's, it makes me wonder if insurance companies will be jumping.on the performance based system. And with associated technology, storing and sharing results, perhaps Afrezza will be more readily accepted into the industry.
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Post by mytakeonit on Aug 15, 2019 22:49:49 GMT -5
So peppy ... is that your grandson in the cage? "I love you Nana. Now can you let me out of the cage?"
But, that's mytakeonit
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Post by peppy on Aug 16, 2019 6:20:23 GMT -5
So peppy ... is that your grandson in the cage? "I love you Nana. Now can you let me out of the cage?" But, that's mytakeonit mytakeonit , sweetie, get a newspaper and put down the wine. let's not be stupid. What if it was Hawaiian smarty pants that were considered unsavory and being caged? What goes around can come around. World War two and all.
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Post by mnholdem on Aug 16, 2019 11:39:55 GMT -5
Another off-topic post, mytake? Please stick to the topic.
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Post by mytakeonit on Aug 16, 2019 12:39:22 GMT -5
Sorry peppy ... I have always wondered about that pic and now I know.
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Post by shawnonafrezza on Aug 21, 2019 14:23:32 GMT -5
I don't know what you all know, I don't dial in to conference calls.
This was my first time filling my script with the savings card and I ended up getting called asking if I wanted training on how to use Afrezza. They go over "inhalation technique, dosing, and storage/handling along with any questions you have" via video. Even though I think I know those things I'm taking the video call anyways to learn what maybe I do wrong. So I think they are trying to address that part of retention.
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Post by seanismorris on Aug 21, 2019 14:38:58 GMT -5
I don't know what you all know, I don't dial in to conference calls. This was my first time filling my script with the savings card and I ended up getting called asking if I wanted training on how to use Afrezza. They go over "inhalation technique, dosing, and storage/handling along with any questions you have" via video. Even though I think I know those things I'm taking the video call anyways to learn what maybe I do wrong. So I think they are trying to address that part of retention. Thanks for the reveal! This is the best MannKind news we’ve had this year.
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