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Post by phantomfj on Jul 27, 2019 17:15:00 GMT -5
That is about the most callous thing I have ever seen posted on these boards!!!!! WTF!!!!! Have you ever had someone close to you suffer a stroke? And, since when does having dementia wipe out the effects of diabetes (though not applicable here)? You should be ashamed for even thinking such a thing, much less posting it...... How on earth is it callous? Perhaps you should reread her own posts on the topic of her father and family before you attack me. If I misread something Sweedee wrote (it is possible) my bad, but my takeaway from Sweedee's posts, such as these mnkd.proboards.com/post/179856mnkd.proboards.com/post/179938was that her father's (non-diabetic) health and life arrangement issues were complicating his diabetes management (and that the issues causing her father difficulty now were not the ones some others had suggested in prior posts). I smh at how quick some are to take offense at innocent comments. My advice (take it or leave it) is to assume the best of people, not the worst, and you will get farther and be happier in life. I said my piece, and do not want this thread to go into the weeds like so many others......let the discussion group decide for themselves who they agree with..... |
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Post by sweedee79 on Jul 27, 2019 17:42:28 GMT -5
I didn't really understand the sarcasm by Fann.. and I blew it off..
Yes my dad's life has been stressful these past years..and I'm not saying for a fact that I think his diabetes caused this..
I do however believe that our medical system in this country from FDA to AMA and whatever other regulators there are that set our standard of care are failing..
My dad's blood pressure control was not being monitored closely enough either.. now after the stroke, changes are being made to his blood pressure meds etc. to prevent another one..
So much could be done to prevent these things in the first place.. preventative medicine.. but our health Care system is set up to treat the problems after the fact..
Our health Care is too much about money anymore rather than the patient..
I do believe that Afrezza is a healthier more natural insulin.. and the human body will respond better to it as a result.. and I truly believe that had he been allowed to be on it he would have been in much better health today.. but I'm not really blaming anyone.. who would I blame? The insurance company.. the doc who is trying to do his job and doesn't know much about Afrezza trying to practice in our health Care system as it is?
It's our system and Mnkds lack of money and many other things that has led to the current situation.. I just hope there is a solution so more PWD have access and knowledge of Afrezza in the future.
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Post by mnkdfann on Jul 27, 2019 22:38:40 GMT -5
I didn't really understand the sarcasm by Fann.. and I blew it off.. Sarcasm? I have to assume this must be a cultural thing, because there was absolutely no sarcasm intended. I'm just gonna shut up now. |
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Post by peppy on Jul 27, 2019 23:22:33 GMT -5
Yep, the diabetic feels better on afrezza. There is a lot to say for that. |
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Post by peppy on Jul 27, 2019 23:28:40 GMT -5
♥️ IT HARRY!!!! This is exactly what Afrezza is.. For those that don't know... My dad had a stroke about a month ago .. I believe with all of my heart that if dad had been allowed to stay on Afrezza the stroke may never have happened..
The reason I believe this is because after he started on Afrezza his body responded by dropping weight.. blood pressure went down. And he felt better..more energy. and I believe this is because Afrezza is bioidentical to human insulin. I believe RAA is poisen.. thank God we've had RAA all of these years.. But Afrezza is a new chance at life with diabetes.. pwd don't have to poisen themselves anymore .. WAKE UP Endos!!!! My heart is heavy.. 😪 I remember sweedee. I remember the whole story. I think the RAA's are poison too. I remember your Dad felt better. agedhippie, keep taking the RAA's aged, keep fighting the good fight. |
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Post by sportsrancho on Jul 28, 2019 8:59:57 GMT -5
Even with the price and the insurance and all the hurdles imagine if everybody that has insurance and can afford it, tried it and stayed on it?
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Post by agedhippie on Jul 28, 2019 9:11:53 GMT -5
I remember sweedee. I remember the whole story. I think the RAA's are poison too. I remember your Dad felt better. agedhippie , keep taking the RAA's aged, keep fighting the good fight. I am, I am.  I think diabetics should have every possible option open to them, and that includes Afrezza. |
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Post by sayhey24 on Jul 28, 2019 18:25:41 GMT -5
Aged - I have to strongly disagree. With the exception of those contradicted for afrezza no T2 should be taking any of the antiglycemics including the SGLT2s and GLP1s.
Afrezza should be the first and only medication most should ever need if started early in the diagnosis.
For the T1s, its a head scratcher to me why anyone still wants to play the guessing game and jam themselves three times a day only to play Russia roulette with hypoglycemia. Then again I was one who was buying Libres on ebay from Europe before they were approved in the U.S. and more than one person told me I was crazy because I didn't want to keep sticking my fingers.
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Post by agedhippie on Jul 28, 2019 21:49:28 GMT -5
Aged - I have to strongly disagree. With the exception of those contradicted for afrezza no T2 should be taking any of the antiglycemics including the SGLT2s and GLP1s. Afrezza should be the first and only medication most should ever need if started early in the diagnosis. For the T1s, its a head scratcher to me why anyone still wants to play the guessing game and jam themselves three times a day only to play Russia roulette with hypoglycemia. Then again I was one who was buying Libres on ebay from Europe before they were approved in the U.S. and more than one person told me I was crazy because I didn't want to keep sticking my fingers. The T2 treatment is your opinion, and for the record I don't necessarily disagree with you. My objection is that right now there is no large scale trial data to support the case which means this goes nowhere regardless of opinions. If I was playing a guessing game and Russian roulette I would indeed change. As it is you are unlikely to win over many converts by telling people they are idiots and that you, a non-T1, know what they need. I would add that this is also how a lot of T1s feel about their endos! The one thing you learn about T1 is that it emphatically is not one size fits all and that when people claim it is they audience tends to stop listening. I have extremely mixed feelings about the Libre. I am using it at the moment, occasionally in parallel with my Dexcom. Over the last four sensors (two batches) it is typically between 20-30 points low when I am between 100 and 200 (it's worse below 100). That's my experience. The pluses and minuses? Pluses; I love the size, it doesn't come off before it should, and the reader at night (just being able to grab it and slap it on my arm). Minuses; inaccuracy, passive (you have to swipe it rather than have it continually sending), and in the US Abbott encrypted the link to prevent it integrating with anything but the official app (that's the killer). What the Libre does do if you swipe at least every 8 hours is give you a nice profile of your levels over time. It might not get the numbers right, but the shape of the graph alone is useful. |
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Post by shawnonafrezza on Jul 29, 2019 9:40:57 GMT -5
For the T1s, its a head scratcher to me why anyone still wants to play the guessing game and jam themselves three times a day only to play Russia roulette with hypoglycemia. Then again I was one who was buying Libres on ebay from Europe before they were approved in the U.S. and more than one person told me I was crazy because I didn't want to keep sticking my fingers. As usual, the lack of understanding of T1DM on this forum astounds me. If I understood this disease the way you all do Afrezza would be the obvious choice! |
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Post by peppy on Jul 29, 2019 10:59:37 GMT -5
For the T1s, its a head scratcher to me why anyone still wants to play the guessing game and jam themselves three times a day only to play Russia roulette with hypoglycemia. Then again I was one who was buying Libres on ebay from Europe before they were approved in the U.S. and more than one person told me I was crazy because I didn't want to keep sticking my fingers. As usual, the lack of understanding of T1DM on this forum astounds me. If I understood this disease the way you all do Afrezza would be the obvious choice! tell me. I read every word you type. |
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Post by shawnonafrezza on Jul 29, 2019 12:08:54 GMT -5
SayHeys assumption that people are just yolo dosing RAA playing russian roulette is very inaccurate. (Statistically speaking no T1D would live past their first year if it was RR). It's actually odd because how can you yolo dose with carb counting but the Afrezza is great because you don't carb count? You can't have both. Maybe their point is the tracking of insulin on board being difficult but to act like the reason t1 pwd aren't using Afrezza is because they're somehow less forward thinking is false or you'd see higher retention numbers. They're idea of also "jabbing 3x a day" is showing a huge misunderstanding of the diligence that goes in to T1. If you're only taking 3x shots a day then you're not stacking insulin which is kind of a selling point of Afrezza. I wish I could only interact with diabetes 3x a day.
They way Afrezza is able to actually prevent this "russian roulette" is because it is so fast. You can still OD it, I've done it.
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Post by sayhey24 on Jul 29, 2019 17:21:37 GMT -5
Shawnflynn - the issue is not yolo dosing. The issue is insulin absorption into the blood.
Afrezza is highly predictable. Subqs are not. There are many factors such as hydration levels and injection spots which factor into absorption speed. Afrezza has no such issue. With the RAAs, usually things are pretty good other times not so much and the T1 just has no idea from injection to injection. Its not that they are not trying. They are trying very hard. Some even go to professional coaches such as Gary Scheiner at Integrated Diabetes.
The simple fact is afrezza has obsoleted the need for RAAs in most cases along with the guessing game. Take the small, medium or large after eye-balling the meal. If you took too little, take some more. If you took a bit too much, no worries as the liver will kick in and get to work. There is still a need for the horse and buggy, just not in most peoples garage.
Not only is afrezza highly predictable allowing for simple use and a much tighter TIR it works with the liver to shut off sugar production. Yes, afrezza does provide best of both worlds; easy dosing and little fear of severe hypos.
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Post by shawnonafrezza on Jul 29, 2019 17:24:30 GMT -5
"If you took a bit too much, no worries as the liver will kick in and get to work."
Posts all over the fb group about people taking too much and needing 2u doses. Even huge fans of Afrezza acknowledge this.
"Not only is afrezza highly predictable"
Current top post on the fb group begs to differ. And from someone who has done the holy grail of Tresiba/Afrezza hydration still matters. Just FYI.
I'm really curious where you get your info because just about every real world case out their differs from what you say.
The shutting off liver + ease of dosing I do agree with. If there were no issues with Afrezza/Tresiba I'd be on it right now. I'd love love love to not be on a pump. I'd love for diabetes to be simple and keep my huge TIR. I'd love to just inhale and forget, to sleep through the night because of magic but it's just not the case.
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Post by sayhey24 on Jul 29, 2019 17:34:04 GMT -5
Aged - I have to strongly disagree. With the exception of those contradicted for afrezza no T2 should be taking any of the antiglycemics including the SGLT2s and GLP1s. Afrezza should be the first and only medication most should ever need if started early in the diagnosis. For the T1s, its a head scratcher to me why anyone still wants to play the guessing game and jam themselves three times a day only to play Russia roulette with hypoglycemia. Then again I was one who was buying Libres on ebay from Europe before they were approved in the U.S. and more than one person told me I was crazy because I didn't want to keep sticking my fingers. The T2 treatment is your opinion, and for the record I don't necessarily disagree with you. My objection is that right now there is no large scale trial data to support the case which means this goes nowhere regardless of opinions. If I was playing a guessing game and Russian roulette I would indeed change. As it is you are unlikely to win over many converts by telling people they are idiots and that you, a non-T1, know what they need. I would add that this is also how a lot of T1s feel about their endos! The one thing you learn about T1 is that it emphatically is not one size fits all and that when people claim it is they audience tends to stop listening. I have extremely mixed feelings about the Libre. I am using it at the moment, occasionally in parallel with my Dexcom. Over the last four sensors (two batches) it is typically between 20-30 points low when I am between 100 and 200 (it's worse below 100). That's my experience. The pluses and minuses? Pluses; I love the size, it doesn't come off before it should, and the reader at night (just being able to grab it and slap it on my arm). Minuses; inaccuracy, passive (you have to swipe it rather than have it continually sending), and in the US Abbott encrypted the link to prevent it integrating with anything but the official app (that's the killer). What the Libre does do if you swipe at least every 8 hours is give you a nice profile of your levels over time. It might not get the numbers right, but the shape of the graph alone is useful. Aged - you raised an interesting point and I tried to do a little research today on why Abbott has encrypted the new Libres. Some people thought security might be the reason but there seems to be potentially a more interesting reason. It is looking like Abbott is setting themselves up to provide a monitoring service and maybe limiting the potential for competition. I guess we will just need to wait and see how true this is. Ondou has been around for about 3 years now and it has never been clear what they are doing except working insurance companies to get coverage. Time will tell, hopefully sooner than later. I can tell you when you could use Glimp the readings were much more accurate once you calibrated the software. I have not bought a Libre in a while as my BG levels are highly predictable now and I only check every once in awhile. |
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