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Post by dreamboatcruise on Jan 27, 2015 10:56:32 GMT -5
Nice pps action today... but here is reality check with regard to some headwinds the product will face. The comments below (multiple people) are from a site www.diabetesforum.com/diabetes-treatment/59137-afrezza-inhaled-insulin-now-available-pharmacies-2.htmlYou might jump to the conclusion that these are simply shorts that created accounts there to FUD. However, these posters include a moderator of the site and one person with several thousand posts. I can't imagine this is all short FUD. Perhaps online diabetes discussion boards, or this one in particular, are not really indicative of most patients feelings... but prepare to see this sort of stuff in some hit pieces in the future once the shorts want to go on the offensive again. Hopefully we'll see some positive discussion within the diabetes community as well. --------------------------------------------------------------------------------- I read on another website (cannot find it now and don't know where I got the link) that it is to be used in addition to your insulin you take now, not a replacement for it. I guess insulin alone was not dangerous enough, so they invented an additive to give it dangerous side effects to other organs. ----- I don't know why I decided to read further down, since I know I would never use this, but they talk like it can replace liquid insulins. This stuff is a powder in 4 and 8 unit cartridges. All I can say is buyer beware. ----- Too funny..but you deserve two likes from me for this post And the nitty gritty details are truly frightening ---- Yep and those are the highlighted side effects, can't wait for the official 10 year ones. sarcasm.... |
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Post by Chris-C on Jan 27, 2015 11:03:39 GMT -5
Nice pps action today... but here is reality check with regard to some headwinds the product will face. The comments below (multiple people) are from a site www.diabetesforum.com/diabetes-treatment/59137-afrezza-inhaled-insulin-now-available-pharmacies-2.htmlYou might jump to the conclusion that these are simply shorts that created accounts there to FUD. However, these posters include a moderator of the site and one person with several thousand posts. I can't imagine this is all short FUD. Perhaps online diabetes discussion boards, or this one in particular, are not really indicative of most patients feelings... but prepare to see this sort of stuff in some hit pieces in the future once the shorts want to go on the offensive again. Hopefully we'll see some positive discussion within the diabetes community as well. --------------------------------------------------------------------------------- I read on another website (cannot find it now and don't know where I got the link) that it is to be used in addition to your insulin you take now, not a replacement for it. I guess insulin alone was not dangerous enough, so they invented an additive to give it dangerous side effects to other organs. ----- I don't know why I decided to read further down, since I know I would never use this, but they talk like it can replace liquid insulins. This stuff is a powder in 4 and 8 unit cartridges. All I can say is buyer beware. ----- Too funny..but you deserve two likes from me for this post And the nitty gritty details are truly frightening ---- Yep and those are the highlighted side effects, can't wait for the official 10 year ones. sarcasm.... Dream Thanks for posting these. I agree that they are probably not FUDsters. But I'm also pretty certain that Diabetic Forum posters are not representative of the larger DM population. I'd be more concerned if there was not healthy skepticism, especially given the debacle that was Exubera. I have posted before and remain convinced that the ramp up will be slow to a tipping point. Hard to say when that will be reached, but my guess would be mid 2016. GLTA Chris C |
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Post by spiro on Jan 27, 2015 11:07:24 GMT -5
dreamboatcruise, Those posts are mostly nonsense and most likely clueless Type 1's. If they are sincere about diabetes treatment, they need to research Afrezza and find out how it can be used by the diabetic population.
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Post by pmikeks on Jan 27, 2015 11:09:10 GMT -5
One you missed from that board..,,
Which drugs do you know of that doesn't include some wording on side affects. It's about side effects that are minimal when compared to other drugs out there. All I know is the inventor Alfred Mann invented the insulin pump so he knows this field. Sure when that first came out there were these same comments. That device revolutionize the diabetes world. From what I have read, he seems to think this is his best invention to date. I think the initial wave of users will be the younger generation. From 18-45. Some people are set in their ways I guess. I don't need it yet thank god but am keeping an eye on this.
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Post by savzak on Jan 27, 2015 11:15:49 GMT -5
I've read those boards as well. I think these folks are presently genuine, but as the shorts get nervous we'll see a lot of fake posters on these boards. I also think that they are attentive, careful, involved patients in treating their disease. But they are not well informed about Afrezza.
They'll either change their opinion when other diabetics, happy with Afrezza cause them to revisit the issue and do the real due diligence necessary to form an intelligent opinion, or they'll change their opinion when their partners in their care (their docs) inform them of the benefits of Afrezza or they'll never change their opinion, which is certainly a possibility for some. I think most will change their opinion ultimately. |
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Post by dreamboatcruise on Jan 27, 2015 11:22:44 GMT -5
dreamboatcruise, Those posts are mostly nonsense and most likely clueless Type 1's. If they are sincere about diabetes treatment, they need to research Afrezza and find out how it can be used by the diabetic population. Some of the comments did strike me as being rather odd for posters seemingly participating in a diabetes forum so actively. I can't imagine a T1, even a rather clueless one, posting the comment "to be used in addition to your insulin you take now, not a replacement for it " without any reference to the fact that there are two types of insulin. |
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Post by agedsagerage on Jan 27, 2015 11:22:58 GMT -5
Those posters are literally clueless, living off of false information. Once their endos are informed and begin relaying accurate information to them, the naysayers will evaporate. I know that if I had the option of inhaling medication, rather than injecting it several times a day, I'm choosing the former.
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Post by dreamboatcruise on Jan 27, 2015 11:27:42 GMT -5
One you missed from that board..,, Which drugs do you know of that doesn't include some wording on side affects. It's about side effects that are minimal when compared to other drugs out there. All I know is the inventor Alfred Mann invented the insulin pump so he knows this field. Sure when that first came out there were these same comments. That device revolutionize the diabetes world. From what I have read, he seems to think this is his best invention to date. I think the initial wave of users will be the younger generation. From 18-45. Some people are set in their ways I guess. I don't need it yet thank god but am keeping an eye on this. That one appeared right after I posted. It is an ongoing discussion. That positive poster is someone fairly new to the board... only his 5th post. Those messages may have less credibility if it is someone that appears to have only joined to talk up Afrezza. That is certainly why I'm not bothering to create accounts and insert myself into the diabetes community discussions. Hopefully we will have some people with real credibility in the community joining the discussion and talking about the tremendous benefits of Afrezza. |
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Post by dreamboatcruise on Jan 27, 2015 11:34:49 GMT -5
Those posters are literally clueless, living off of false information. Once their endos are informed and begin relaying accurate information to them, the naysayers will evaporate. I know that if I had the option of inhaling medication, rather than injecting it several times a day, I'm choosing the former. "... the naysayers will evaporate." I wouldn't be quite so quick to assume that. In my experience there is a very active and vocal community online that is Big Pharma hostile... anti vaccine, etc. These few postings I saw today makes me think some of the diabetes forums may also have significant involvement from these "drug companies can't be trusted" types. I fear that Afrezza could become an undeserved target of these sentiments. Hopefully, Sanofi will be savvy enough in their marketing to effectively counter this by fostering positive discussion from prominent patients and providers in the DM world. |
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Post by joeypotsandpans on Jan 27, 2015 11:38:43 GMT -5
Ignorance knows no boundaries...for that matter, I'm sure there are even ignorant physicians that speak out of turn before knowing the facts...unfortunately for some it's their inherent human nature. As I posted previously, even my primary showed a tad bit of ignorance when they realized I was more aware of the product then they were...in essence they got a little defensive...some people cannot handle or admit they don't know something they should.
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Post by gomnkd on Jan 27, 2015 13:19:50 GMT -5
Last year I read dozens of posts in these forums when they discussed Afrezza.
Many have a hard time accepting Afrezza due to their own ignorance, not to mention arrogance. They think that they are the best in titrating and controlling their A1C. They go nuts after seeing Afrezza's available dosages as it doesn't lend itself to accurate titration. They lack knowledge of Afrezza's PK profile, MOA. They were also misinformed by folks like Kliff, Strumello etc.
Once they know that Al Mann spend billions on this, they get even more mad for not working on permanent cure. if someone explains it, they react like a 90yr old grandma after she knows about Twitter or facebook
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Post by Deleted on Jan 27, 2015 13:38:32 GMT -5
Ever stay in an awesome hotel, come home, and read the feedback on trip advisor?
Ever buy a product on amazon, read the feedback, and think "what are they talking about?"
Ever research a restaurant, read the reviews and go there and enjoy an entirely different experience?
Some people are cynical, no matter what. They'll never be happy. Unfortunately, anonymity on the internet gives them the flexibility to act like this. But, once you hammer down into it, those cynics are often the most vocal, but still the minority.
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Post by suebeeee1 on Jan 27, 2015 13:54:24 GMT -5
My experience of on line forums for specific disorders has been very frightening. The people who tend to haunt these forums have no life. The forums are everything to them. I have a disorder that causes serious pain and the two forums I joined for "more information and support" caused me to become frightened of a life that would revolve around my dis-Ability. The majority of posters worked to help new folks understand that their lives woud never be the same. While my life is not the same, its amazing the that I can do nearly anything I could do (with the help of pharaceuticals).
What I am trying to say is that most people who get and stay on forums are the ones that need to justify whatever it is that they are doing. It's not a matter of "what works for you is good" rather it is "whatever works for me is what should work for everyone". I believe my experience may hold true for the diabetic forums as well. (Understand that I am not sure) Whatever works for the majority of posters cannot change. It is what saved their life and consequently the protocols are not a subject of change. What works for them must work for everyone else.
Clearly, I am hoping that technosphere is a technology that can be used pain flare ups. I understand that it may never be useful for the chronic high levels of pain that I experience, but it may allow me to find additional relief during those times that the base meds are not enough.
It seems to me that Afrezza is almost identical to the chronic pain world. Base meds all the time (whether the injectable insulin that diabetic need or reg pain meds) and then the inhalable meds when a quick, higher level response is necessary.
So, while I am looking for Afrezza as a method to help my type 2 diabetic husband get his A1C down from the mid 7's, I am also looking out for a device that will carry additional pain meds. This is a win/win for our family!
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Post by BD on Jan 27, 2015 13:56:11 GMT -5
What I am trying to say is that most people who get and stay on forums are the ones that need to justify whatever it is that they are doing. Gulp... |
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Post by cybergym66 on Jan 27, 2015 14:02:06 GMT -5
What I am trying to say is that most people who get and stay on forums are the ones that need to justify whatever it is that they are doing. Gulp... Of course you're exempt from said statement!  |
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