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Post by celo on Jun 18, 2018 17:45:15 GMT -5
With respect to the artificial pancreas note the following as I beleive it may have limits for the general population of PWD (although I am not a diabetic) 1. The Santa Barbara trials by Samsun used Afrezza for prandial 2. Would be more difficult to use current prandials I would think as they do not react as fast in or out as Afrezza 3. It is a mechanical device that people would still have to be hooked up to which means the inconveince of tubes, and moving the infusion spot every week or two 4. Patch pump with Afrezza and cgm possibly just as effective in controlling TIR and less expensive 5. More to go wrong with AP (True story, know a 19 year old T1 who almost died twice because of hypos. Turned out his pump was not calibrated properly. At anyrate went to an endo who gave him Afrezza and three months later he dropped his pump and yes his Hba1c is now in low 6's) 6. Harder to travel with AP if it malfunctions 7. Can you swin in the ocean with AP? 8. Am guessing younger generation would rather not be hooked up to an AP 9. As someone else mentioned earlier AP much more expensive Just my thoughts... A sidenote, Santa Barbara has no Afrezza prescribing doctors. The closest one is in Santa Ynez, community 20 miles away. Even with Mannkind headquarters just down the road in Thousand Oaks. Why? Samsun clinic even had an endocrinologist that was on the old board. I guess, it is part of the endocrinologist poor perception of Afrezza. There are, I'm sure a slew of wealthy T1s in Santa Barbara that would be willing to pay for a more expensive but better drug like Afrezza, if it was given as a an option for diabetes. Which it is obviously not in Santa Barbara.
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Post by peppy on Jun 18, 2018 20:07:24 GMT -5
With respect to the artificial pancreas note the following as I beleive it may have limits for the general population of PWD (although I am not a diabetic) 1. The Santa Barbara trials by Samsun used Afrezza for prandial 2. Would be more difficult to use current prandials I would think as they do not react as fast in or out as Afrezza 3. It is a mechanical device that people would still have to be hooked up to which means the inconveince of tubes, and moving the infusion spot every week or two 4. Patch pump with Afrezza and cgm possibly just as effective in controlling TIR and less expensive 5. More to go wrong with AP (True story, know a 19 year old T1 who almost died twice because of hypos. Turned out his pump was not calibrated properly. At anyrate went to an endo who gave him Afrezza and three months later he dropped his pump and yes his Hba1c is now in low 6's) 6. Harder to travel with AP if it malfunctions 7. Can you swin in the ocean with AP? 8. Am guessing younger generation would rather not be hooked up to an AP 9. As someone else mentioned earlier AP much more expensive Just my thoughts... A sidenote, Santa Barbara has no Afrezza prescribing doctors. The closest one is in Santa Ynez, community 20 miles away. Even with Mannkind headquarters just down the road in Thousand Oaks. Why? Samsun clinic even had an endocrinologist that was on the old board. I guess, it is part of the endocrinologist poor perception of Afrezza. There are, I'm sure a slew of wealthy T1s in Santa Barbara that would be willing to pay for a more expensive but better drug like Afrezza, if it was given as a an option for diabetes. Which it is obviously not in Santa Barbara. The high end physicians in Santa Barbara. Johnny Carson used to talk about Santa Barbara. Johnny Carson died now.
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Post by lakon on Jun 20, 2018 8:41:38 GMT -5
Imagine how well you could be doing IF you tried Afrezza...you might even care more too... The thing is I don't feel I need to do better. I am sure I am not alone in that. I know. I get it, but here's a few thoughts. When a doctor gets sick, he sees another doctor. When a lawyer gets in trouble, he hires another lawyer. You know the old expression, "He who represents himself has a fool for a client." In search problems, you have to consider suboptimal solutions. You might feel pretty darn good at the top of your foothill, but if you don't risk a little to investigate further, you might just miss the Rocky Mountains!
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Post by mnkdfann on Jun 20, 2018 8:44:11 GMT -5
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Post by peppy on Jun 20, 2018 8:50:27 GMT -5
RLS perhaps when we get a turn over of carcasses, we could get a vote.
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