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Post by neil36 on Aug 9, 2019 15:03:19 GMT -5
A few minutes ago:
“I’ve had a few high fluctuations, but mostly below 180 and few lows. I continue to feel better over all. One nice thing, is the area on my abdomen where I have been injecting the past 13 years is noticeably flatter.”
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Having followed this for five years now, I’ve found it very challenging to find reliable feedback on Afrezza that wasn’t spun in one extreme or the other. I’m enjoying having a work acquaintance I trust and respect who is providing a candid journal of his personal experiences with the change. So far he is finding it a significant improvement.
He is almost through his thirty day sample from his endo and he will be an “NRx” in the near future.
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Post by neil36 on Aug 9, 2019 15:16:37 GMT -5
I asked if he is in the zone more:
“Yes, and closer to it. In the fall my sensor, Freestyle Libra, should be releasing a new version that alerts at certain levels. That will help for when I have a nocturnal high I currently sleep through.”
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Post by neil36 on Sept 3, 2019 17:53:11 GMT -5
Text update tonight from my work acquaintance:
I have been using strictly Afrezza for meal time insulin since mid-July. And overall I am preferring it to traditional injections as it’s easier to medicate and I have fewer lows. I do still experience highs during the night and haven’t found a great way to address that other than checking my levels when I wake up. Libra is coming out with an improved sensor that will alert for highs and lows so that may help once it becomes available.
The FB thread on that discussed splitting long term doses and some used higher numbers, like more than twice what I use. I may increase the number gradually to see if that results in any improvement, but my endo didn’t want me to exceed more than 26 units and I’m currently using 24. I think it may be a related to constantly eating late dinners, but there’s not much I can do about that considering the nature of the work here at APA.
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Post by neil36 on Sept 3, 2019 17:54:35 GMT -5
I asked if he had any hassles with placing his first prescription last week, to which he replied:
“No, my endo referred me to pharmacy that processed the offset program directly. When I need a refill it charges me $15 and is delivered within two days.”
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Post by neil36 on Sept 3, 2019 19:19:00 GMT -5
And just to restate the purpose of this thread.
After years of trying to sort through the mountains and swamps of misinformation, I finally have an acquaintance (who I trust) who, on his own, started on Afrezza based upon the urging of his endo. He is T1D and had been struggling to stay in range. He uses a Libre CGM.
I have no idea how his experience will play out, but so far, he is thrilled with his experience. He has gone through a thirty day sample pack provided by his endo and has now filled his first thirty-day prescription through the $15 co-pay plan.
As I said when I started this thread, I believed years ago that this stock would never make it big until we see people using Afrezza in restaurants on a daily basis. This particular acquaintance gives me hope that this will truly catch on over time. It’s nice to finally have someone with no agenda who can provide me totally unfiltered feedback on Afrezza.
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Post by neil36 on Sept 11, 2019 20:51:26 GMT -5
Where does one purchase a Bluehale device?
Asking for a friend.
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Post by neil36 on Oct 6, 2019 9:47:34 GMT -5
Update from my acquaintance/co-worker who has been on Afrezza nearly three months now. Comments from a text exchange this weekend include:
- “Yes, I plan to stay with it. Still trying to figure out the nighttime highs though”
- [when asked if he would recommend it to others] “They should try it. So much more convenient”
- [when asked if he experienced any insurance/pharmacy hassles] “I’ve been going through the pharmacy my endo used for the Afrezza discount, Mediscript, and it usually delivers in a day, no hassles”
He has found it life-changing, highly recommends it as much more convenient and he has no intentions of every going back to his previous routine. From someone I know personally, it is reassuring to hear him pour consistently strong praise on Afrezza.
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Post by cretin11 on Oct 6, 2019 21:59:51 GMT -5
Thanks for asking him those Qs Neil and for sharing his feedback with us. Do you know if his doctor (endo or PCP?) is impressed and plans to prescribe to others?
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Post by longliner on Oct 6, 2019 22:38:38 GMT -5
Update from my acquaintance/co-worker who has been on Afrezza nearly three months now. Comments from a text exchange this weekend include: - “Yes, I plan to stay with it. Still trying to figure out the nighttime highs though” - [when asked if he would recommend it to others] “They should try it. So much more convenient” - [when asked if he experienced any insurance/pharmacy hassles] “I’ve been going through the pharmacy my endo used for the Afrezza discount, Mediscript, and it usually delivers in a day, no hassles” He has found it life-changing, highly recommends it as much more convenient and he has no intentions of every going back to his previous routine. From someone I know personally, it is reassuring to hear him pour consistently strong praise on Afrezza. Dammit Neil! You leave me no choice but to...................buy at dawn.
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Post by Deleted on Oct 7, 2019 7:00:32 GMT -5
Where does one purchase a Bluehale device? Asking for a friend. The Bluhale device will not be available until 1Q2020.
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Post by neil36 on Oct 7, 2019 7:10:33 GMT -5
His endo here in the Dallas area pushed my friend for almost two years to try Afrezza. Now that he has tried it he is frustrated that he took so long to give it a chance. From all the data points I have, it appears that his endo is a strong Afrezza advocate and in close contact with MNKD leadership.
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Post by neil36 on Oct 7, 2019 7:10:49 GMT -5
Where does one purchase a Bluehale device? Asking for a friend. The Bluhale device will not be available until 1Q2020. Thank you
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Post by neil36 on May 4, 2020 13:53:05 GMT -5
Just a quick update on my friend.
He is still using Afrezza with good results. He is an attorney, but he originally wanted to be a pilot, but his diabetes precluded him from holding an FAA medical. But last year, the FAA changed their long-standing position on pilots who use insulin and said they would evaluate applications on a case-by-case basis if the applicant could demonstrate good control over time.
My friend informed me last night that he just submitted all his paperwork for a Special Issuance FAA Medical. If approved, he will be one of the first pilots in the country who is using insulin and allowed to hold a pilot license. He is thankful for the combination of Afrezza and his CGM for allowing him to document “good control”.
I’ll follow up when he hears fback rom the FAA.
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Post by mango on May 4, 2020 17:21:07 GMT -5
Just a quick update on my friend. He is still using Afrezza with good results. He is an attorney, but he originally wanted to be a pilot, but his diabetes precluded him from holding an FAA medical. But last year, the FAA changed their long-standing position on pilots who use insulin and said they would evaluate applications on a case-by-case basis if the applicant could demonstrate good control over time. My friend informed me last night that he just submitted all his paperwork for a Special Issuance FAA Medical. If approved, he will be one of the first pilots in the country who is using insulin and allowed to hold a pilot license. He is thankful for the combination of Afrezza and his CGM for allowing him to document “good control”. I’ll follow up when he hears fback rom the FAA. Excellent news! Hope we get to see a pic of him in the cockpit with his dreamboat someday soon.
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Post by longliner on May 14, 2020 1:57:29 GMT -5
I realize, when I look at the members online and I am the only one......................the valuable commentary has ended. Sleep well brothers and sisters.
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