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Post by porkini on Aug 1, 2019 11:16:49 GMT -5
10 minutes? What kind of insulin are they taking?! Having to go to the nurse for shots? Seems different to my experience through school.Riddle me this though, you are now that nurse and the kid coughs post inhale and you see powder come out, what do you do? If anyone here has worked in medicine you know how well "just give more" goes down. Things aren't as simple or b&w as you want. Must have been an issue, somewhere, at some time... California School Diabetes Care Lawsuit
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Post by rockstarrick on Aug 1, 2019 11:30:37 GMT -5
The pediatric angle could and should be amazing, but getting endos on their side will be doubly hard when children are involved. Management better have a plan to address this otherwise even if pediatric approval eventually comes, they are going to run into the exact same hurdles that they have yet to overcome as they are now. I think you are 100% wrong. I think just because the FDA is allowing trials for our youngest diabetics to begin, the resistance to prescribe will ease a little, and the hesitation that the Endos currently have will disappear. If I had a 4 year old kid with T1d, and I could either stab him with a needle multiple times daily, worry about hypoglycemia while he/she sleeps at night, or teach him/her to inhale ”Human Insulin” after mealtime, the Endo would either write the script, or he/she wouldn't be my kids Endo any longer. As parents, the choice is ours, not theirs.
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Post by prcgorman2 on Aug 1, 2019 11:54:52 GMT -5
Powder has been known to come out yes. I've never ever heard this before and I've read multiple posts on experiences with coughing including a report from the clinical trials.
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Post by shawnonafrezza on Aug 1, 2019 13:29:05 GMT -5
Powder has been known to come out yes. I've never ever heard this before and I've read multiple posts on experiences with coughing including a report from the clinical trials. Go to the FB page. Real world results > trials.
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Post by prcgorman2 on Aug 1, 2019 14:31:53 GMT -5
Sorry, can't visit FB. Don't have an account. And I wouldn't necessarily trust what I read there. Regardless, I'll not argue the point further.
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Post by thekindaguyiyam on Aug 1, 2019 15:03:42 GMT -5
Powder has been known to come out yes. I've never ever heard this before and I've read multiple posts on experiences with coughing including a report from the clinical trials. I'm using Afrezza. If someone is coughing it's because they are new to inhaling it. If you take too hard of an inhalation it will tickle a little followed by a little cough. Once you get use to it in a day or two you learn to inhale more moderately. No cough. And yes there is a very small amount left in the unit container; but it doesn't matter as enough medication finds it's way to your lungs. Also; learning to anticipate how much you need to address the amount of carbs is easy; no chance of a problem if you take 12 units instead of the needed 8. Yesterday my blood sugar was at 100 after taking a dose; down 48 points. Coughing is not a problem for me.
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Post by mnholdem on Aug 1, 2019 18:09:01 GMT -5
But you make it sound like it was at the beginning for a short time?
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Post by rockstarrick on Aug 1, 2019 20:12:12 GMT -5
Learning to properly inhale Afrezza is no different than when you first try to start smoking, or try to take a ”bong” hit for the first time. Anybody here remember that feeling you got when you put that first plug of Copenhagen between your cheek and gum🥴🤢. It's a doable process. ✌️😎
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Post by cretin11 on Aug 2, 2019 1:08:12 GMT -5
Learning to properly inhale Afrezza is no different than when you first try to start smoking, or try to take a ”bong” hit for the first time. Anybody here remember that feeling you got when you put that first plug of Copenhagen between your cheek and gum🥴🤢. It's a doable process. ✌️😎 I sure do, and I hope Afrezza users don’t get that same queasy feeling! rockstarrick you are the master of analogies 😆
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Post by lakers on Aug 23, 2019 16:41:54 GMT -5
8/22/19 • The European Commission approves the use of Novo Nordisk's (NYSE:NVO) Fiasp (insulin aspart injection) for the management of diabetes in adolescents and children as young as one year old. Previously, the product was approved for adult use. Couldn’t believe Afrezza was approved in 2014 much earlier than Fiasp in the U.S. Yet Fiasp ped was already approved in EU and has much larger Fast acting market share while Afrezza’s Ped U.S approval is still several years away. Some Mgmt got wrong priority, kept throwing good money after bad into wrong strategies. MC: We are focused on continuing to drive steady trends with about 6,000 active patients on the product and growing each quarter. We believe there is a tipping point, but don’t know if it’s 1000 scripts a week or 5000. My guess is somewhere in that range, doctors will finally be seeing first-hand enough patients getting results that Afrezza will potentially become their go-to tool for mealtime control. It is possible that a tipping point will come when pediatric patients are able to access Afrezza, but we need to conduct more research in this area to understand the opportunity for patients below the age of 18. seekingalpha.com/article/4287312-mannkind-fireside-chat-ceo-mike-castagna
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Post by thekindaguyiyam on Aug 24, 2019 14:29:45 GMT -5
But you make it sound like it was at the beginning for a short time? I'm guessing your statement was addressed to me. Yes; when I first tried Afrezza I did get a cough; which coincided with the big fire that burned down 1000 homes and businesses within a few miles from where I live. Stepping away from Afrezza was necessary because many like me; had developed respiratory issues. After about a year, my wheezing stopped and I went back on Afrezza. No cough. As a user; it's more amazing than I had thought. Waking blood glucose is now at 115 instead of 162. It turns out, as you use it through the day when having a meal it carries over into the night while sleeping. No more spikes like before. Went to bed at 120. Woke up at 115. I now understand the sense of panic some people have expressed when they are concerned that they no longer have access to this life changing drug. I wouldn't give it up for anything. My doctor got the prescription through easily after the first standard rejection. I have been approved for a year. This is not just an investment; it's personal. It has made my life much better to have this tool to remedy the disease.
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Post by sportsrancho on Aug 24, 2019 14:42:02 GMT -5
👍🏻❤️
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Post by thekindaguyiyam on Aug 29, 2019 19:06:43 GMT -5
to you all. it's incredible to feel your support. Back to the topic of how wonderful it will be for children and adults to breathe instead of having to inject! Here's to spreading the knowledge of Afrezza and it's transformation of care for future patients of all ages especially children.
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