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Post by babaoriley on Jun 18, 2015 18:51:35 GMT -5
One slight observation. Obviously we all know suebeeee1 as a long time participant here and by virtue of that fact and the context provided in her post we have no doubt what is being said is true. The observation is that if someone new here or perhaps on a different forum had reported going to a doctor and getting that response, there would be MNKD investors jumping all over them as lying paid cronies of hedge fund shorts. Just goes to prove not everything negative said regarding adoption of Afrezza is the work of evil... or at least not the direct result of evil. It might be once or thrice removed from those wishing to hinder Afrezza adoption, such as Novo reps spreading FUD. At least she didn't bring up the "cancer" FUD. Ha, ha, DBC! Just because suebeeee often buzzes around these parts doesn't mean she's not a dirty, deceiving short! But, I'm certainly giving her the benefit of the doubt... There is a huge difference, though, when someone comes out of nowhere with such a story. So, although I understand your observation, I will just agree with you that it is slight , and I will still jump on those who in their few posts tell stories of the ilk of suebeeee. Odds will be in my favor as far as discrediting them as a short or other form of evil-doer. Of course, if that person persists, then we must release the Kraken (jpg) on them, and then it gets ugly. I'd just like someone to come on and admit they are short and say they are here to make their case the best they can and try to scare as many longs as possible. That would be okay with me. Sue, just funnin' with you, you are a salt of the earth MannKind fan if ever there was one, and I hope nothing changes that!
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Post by suebeeee1 on Jun 18, 2015 20:19:04 GMT -5
Sue, just funnin' with you, you are a salt of the earth MannKind fan if ever there was one, and I hope nothing changes that! Nope...I'll be buying more on the dips. The same man whose life is going to be forever made better by Afrezza is the one who will be thanking me someday for slowly cashing out a bunch of our "going nowhere" stocks and buying as much MNKD on every dip that arrives. Of course...I did sell some of the Jan 2017 $5 calls that I bought a while back on this last high spot. That's the closest I've come to selling a share since I first arrived (Do options count?). I already used up a bunch of that profit to buy more when it went below $6. Afrezza will save the diabetics of the world and Technosphere will make us all wealthy! I'm in this until MNKD is bought by Sanofi or another company. (Well, maybe I'd consider selling at $65/share...lol)
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Post by robsacher on Jun 18, 2015 23:48:31 GMT -5
suebeeee1,
Please keep us all informed as to what happens once your husband is taking Afrezza. I have read of one other user on a forum at TuDiabetes.org who had formerly been asthmatic and tried Afrezza. Unfortunately, his asthma seemed to have returned and he had to greatly reduce the amount of times that he used Afrezza. Good luck. Maybe your husband will have a different experience...
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Post by afrizzle on Jun 19, 2015 6:07:16 GMT -5
In reply to your comment about what to send the doctor, I'd suggest a copy of the a1c results before and after and a non sarcastic hand written note saying how well it's working for your husband.
Presuming of course this is the case
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Post by mnholdem on Jun 19, 2015 7:00:09 GMT -5
Suebeeee1 - I hope you weren't so distracted by her close-mindedness that you failed remembered to get a FEV1 done while you were at the pulmonologists (chuckle). That will come in handle later...
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On the subject of asthmatics:
Perhaps some of you know charles_lacy2003, who occasionally posts @ Yazoo? A diabetic with asthma, he posted earlier this week about his first experience with Afrezza. It took him several months to get his hands on Afrezza to try it. His endo refused and he managed to locate a PCP somewhere south of Los Angeles, as I recall, who knew about Afrezza. I think he is currently using a sample pack and in a testimonial that he posted this week, he explained how when he took his first dose of Afrezza, it was like breathing air. In fact, he thought he was doing it wrong and took two more hits off the now-empty cartridge. 75 pt drop in BS in 15 minutes and he's been posting his amazement ever since. The bashers swarmed his post (my reply below explains why IMO) and I was disappointed this morning to find his original post deleted. My response and his reply are below, but you'll just have to take my word about his first one:
mnholdem • Jun 17, 2015 10:03 PM Flag 6 users liked this posts 0 users disliked this posts 1 Reply .
WOW! When I look at how many bashers jumped all over this post, it made me realize that you are scaring the hell out of them! OMG! An asthmatic that can inhale Afrezza without being able to detect it in the least bit? Next we'll have some smokers posting on here, too.
It all comes down to freedom, doesn't it? Diabetics have had to sacrifice their quality of life for so many years that some, perhaps many, are going to thumb their noses at the FDA - as you did - and give Afrezza a try.
Not everyone is going to have a reaction-free response like you did, Charles. We all know that. But, frankly, what you have gone and done has scared the living daylights out of half the bashers trolling this board.
And you know what? They should be afraid of how Afrezza is going to revolutionize diabetes care.
We can always ignore those losers attacking your testimony, but we cannot ignore what you have just posted. One of the reasons that Sanofi changed the description from "powder" to "dry formulation" is because of the perception some people may have about how it will feel to inhale. Thanks for sharing your experience about what it feels like to inhale Technosphere Insulin (aka Afrezza). Your description will be appreciated by many. Less
Sentiment: Strong Buy
. . 1 Reply to mnholdem
charles_lacy2003 • Jun 17, 2015 11:38 PM 2 users liked this posts 0 users disliked this posts 1 Reply .
when you inhale afrezzza, it feels like your inhaling air. thats what amazes me
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Post by tripoley on Jun 19, 2015 8:33:44 GMT -5
I read this topic about Inconsistency-Avoidance Tendency in Poor Charlies Alamanack, a book about Charles T. Munger. "So strong is Inconsistency-Avoidance Tendency that it will often prevail after one has merely pretended to have some identity, habit, or conclusion. While Inconsistency-Avoidance Tendency, with its "status quo bias," immensely harms sound education, it also causes much benefit. For instance, a near-ultimate inconsistency would be to teach something to others that one did not believe true. And so, in clinical medical education, the learner is forced to "see one, do one, and then teach one," with the teaching pounding the learning into the teacher. Of course, the power of teaching to influence the cognition of the teacher is not always to benefit society. When such power flows into the political and cult evangelism, there are often bad consequences." p.463 Oh yes: "see one, do one , teach one". I always liked that saying. Another great one AND totally appropriate in this situation: "half of everything we teach you will be wrong, unfortunately we don't know which half..."
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Post by Deleted on Jun 19, 2015 10:29:28 GMT -5
Most doctors are totally allergic to receiving suggestions from their patients. It is a bit of a shame, but in this day and age of the internet I guess it is somewhat understandable, since many patients probably go to their doctors with all kind of suggestions and ideas obtained by reading up in the net. Do not get me wrong, I think patients have the obligation of being proactive about their own healths, even if that inconveniences doctors by now having to do a bit more of research or spend a bit more time talking with their patients. Doctors are not gods, there are good ones and bad ones, just like in every other profession or occupation, but the good news is that as a patient you can always fire your doctor and find another one. Please understand I am not advocating anybody changes doctors just to find one that will say yes to whatever you want, but to find one that will take the time to look at your concerns, take them seriously, and talk them up with you in a way that is logical and reasonable. Having said this, Nate Piles has a great quote about analysts detractors of MNKD. He always says that the same analysts that hate MNKD at $6 will like it a $12 and love it at $20. I expect something similar to happen to all these doctors that claim they will never prescribe inhaled insulin. In a year or two, when supporting numbers are clear enough and thought leaders in the medical community have expressed support, all these doctors will embrace Afrezza like there was nothing else in the world. I'm extremely active in my own health care decisions. Comes from having a few issues that aren't textbook and being brushed aside because of it from the main stream health care providers. Realizing there's docs up here on these boards, nothing personal. My experience is all. Having said that, I will always do my own health research before walking into my docs office. I've fired many a doc over the years because of exactly what you're describing - the god syndrome. Took me quite a long time to find docs that would listen and discuss instead of writing out a script on a pad and getting me out the door in 15. They are out there!!
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Post by suebeeee1 on Jun 19, 2015 13:33:16 GMT -5
Suebeeee1 - I hope you weren't so distracted by her close-mindedness that you failed remembered to get a FEV1 done while you were at the pulmonologists (chuckle). That will come in handle later...
-----
On the subject of asthmatics:
Perhaps some of you know charles_lacy2003, who occasionally posts @ Yazoo? A diabetic with asthma, he posted earlier this week about his first experience with Afrezza. It took him several months to get his hands on Afrezza to try it. His endo refused and he managed to locate a PCP somewhere south of Los Angeles, as I recall, who knew about Afrezza. I think he is currently using a sample pack and in a testimonial that he posted this week, he explained how when he took his first dose of Afrezza, it was like breathing air. In fact, he thought he was doing it wrong and took two more hits off the now-empty cartridge. 75 pt drop in BS in 15 minutes and he's been posting his amazement ever since. The bashers swarmed his post (my reply below explains why IMO) and I was disappointed this morning to find his original post deleted. My response and his reply are below, but you'll just have to take my word about his first one:
What most people don't realize is that every time an asthmatic takes the "two puffs" of whatever meds they are inhaling, they usually then cough their lungs out! That stuff is nasty! If Afrezza causes a "cough", I guess those who have asthma wouldn't notice at all.
However, I do understand the concerns and perhaps it isn't for all people with asthma...until it is cleared.
We are willing to take the risk. We figure a long term, high A1C is worse than a POSSIBLE persistant cough (if that should happen)
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Post by dudley on Jun 19, 2015 14:39:13 GMT -5
Most doctors are totally allergic to receiving suggestions from their patients. It is a bit of a shame, but in this day and age of the internet I guess it is somewhat understandable, since many patients probably go to their doctors with all kind of suggestions and ideas obtained by reading up in the net. Do not get me wrong, I think patients have the obligation of being proactive about their own healths, even if that inconveniences doctors by now having to do a bit more of research or spend a bit more time talking with their patients. Doctors are not gods, there are good ones and bad ones, just like in every other profession or occupation, but the good news is that as a patient you can always fire your doctor and find another one. Please understand I am not advocating anybody changes doctors just to find one that will say yes to whatever you want, but to find one that will take the time to look at your concerns, take them seriously, and talk them up with you in a way that is logical and reasonable. Having said this, Nate Piles has a great quote about analysts detractors of MNKD. He always says that the same analysts that hate MNKD at $6 will like it a $12 and love it at $20. I expect something similar to happen to all these doctors that claim they will never prescribe inhaled insulin. In a year or two, when supporting numbers are clear enough and thought leaders in the medical community have expressed support, all these doctors will embrace Afrezza like there was nothing else in the world. I'm extremely active in my own health care decisions. Comes from having a few issues that aren't textbook and being brushed aside because of it from the main stream health care providers. Realizing there's docs up here on these boards, nothing personal. My experience is all. Having said that, I will always do my own health research before walking into my docs office. I've fired many a doc over the years because of exactly what you're describing - the god syndrome. Took me quite a long time to find docs that would listen and discuss instead of writing out a script on a pad and getting me out the door in 15. They are out there!! Agree totally on being active in one's own health care. I'll repeat the comment I had on another thread : I got diagnosed last October with Hepatitis C after it was flagged on a routine blood test. Pretty freaky to hear that, I can assure you. I immediately got on the web and in a few hours I knew a LOT about it. I even had to remind my own PCP about testing for the genotype (there are a number of different genotypes of the virus and treatment is dependent on the genotype)! After a couple of months of doctor shuttling, endless testing and doing the required class on Hep C I went in to the gastroenterologist they had assigned me and was told they would not be offering any treatment options since my liver "was not yet sufficiently damaged" to justify treatment. I went nuts and wrote a blistering letter to Kaiser - how could they deny a fully insured patient any treatment whatsover for a disease that kills people? Did research and found that Kaiser had just earned a bottom line profit of $3 BILLION last year and that Gilead (developers of Harvoni) was expected to sell $15 Billion of that drug in 2015 alone. Put that in my letter and called their behavior deplorable. They came around pretty quickly - in 3 days I was in the office of their primary prescribing officer for the Hep C stuff and 3 weeks later was on Harvoni. 8 week treatment period and as of the last blood test I still have no detectable trace of the virus. That 8 week treatment cost more than 25 YEARS on Afrezza and my insurance paid - after the scathing letter. Patients have to be educated and have to stand up for their rights.
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