|
Post by peppy on Nov 9, 2015 11:48:25 GMT -5
Guys, here is what I received from a reader of my blog very recently. Another piece of real word experience of doctors prescribing Afrezza (and substantiates what docfrezza has been telling us): "We recently visited my mother's endocrinologist and I inquired whether the doctor was prescribing Afrezza. The doctor replied that [he/she] is enthusiastic about Afrezza and has some significant number of patients on it. ................[Note: for privacy concerns, I have taken out all references to, or indication of, name, address or gender of the doctor in the original message from the reader.] Typical (existing patient) wait time for an appointment is several months." The push... in demand. Thank you compound
|
|
|
Post by compound26 on Nov 9, 2015 13:20:19 GMT -5
Guys, for your consideration, a comment that was just posted in Tudiabetes.org: www.tudiabetes.org/forum/t/type-2-new-to-cgm-getting-a-g5-what-to-expect/48355/5What to expect. Expect to have everything you know about how your body deals with food changed in a good way. I've been a T1 for 32 years and have had the G4 for a bit over 3 months. It will give you a very real and workable picture of your health. In my opinion (always ask your Dr. or Endo) you can not only see trends more accurately but most importantly you can see how just say a cold, stomach bug etc affects your blood sugar and how your diabetes medication brings down your sugars.. (I'm sure we all know how a sick day of any day can wreak havoc on our control) My only recommendation as far as the Dexcom goes is the sensor insertion. I know they (Dexcom) say it's only supposed to be used on the stomach but I've had poor success with it there. I'm also very skinny which makes real estate for insertion hard. I wear mine on the upper part of the arm (back) think where a Dr or parent would pinch the back part of your arm to do a shot (reverse side of bicep) I've had a sensor last 25-26 days there opposed to no more of 7 on the stomach. If your sensor is working fine when it says to remove it, don't you can just restart the sensor and act like it's a new one... it's works like a charm and saves on the pocket (and anxiety over inserting it though it doesn't hurt, just a pinch) Steer Clear of muscle, wherever you decide to place it make a muscle and make sure there is enough space between the skin and muscle to the wire does not graze the muscle. If this ever happens I recommend removing the damn thing and call Dexcom tell them you had a bad insertion and they will replace it, that easy. Just say you were using it in your stomach not an alternate placement as they will spend 20 minutes explaining why (cost too much to get FDA approval on other sites is what it boils down too) If you do decide to tough it out you more than likely will get a lot of readings and gaps in readings. If you have any questions please ask. Sincerely, [XXX] [note; name edited out from the original post on Tudiabetes.org] T1 since 1984 Meters: Dexcom G4, Verio IQ Insulin: Afrezza 4U & 8U, Toujeo U300 Insulin Hba1C: most recent 6.4, 3 months prior 7.7, 3 months prior 9.4 9.4 was prior to being on Afrezza
7.7 was the day before I got the Dexcom
6.4 was 3 months after the Dexcom
Presently my Dexcom says my 3 month average is at a
5.9, lowest I've ever had it. Proof is in the puding as they say!
|
|
|
Post by bradleysbest on Nov 9, 2015 13:25:53 GMT -5
Great stuff as we know but simply not enough users of Afrezza or PWD who know of Afrezza!
|
|
|
Post by factspls88 on Nov 9, 2015 13:26:15 GMT -5
The Hba1c progression over time is phenomenal.
|
|
|
Post by compound26 on Nov 9, 2015 14:52:24 GMT -5
See how good a control this Afrezza user has on his blood sugar. As a non-diabetic, I recall my last time fasting BG is 90 something. And PWDs with average BGs in the 80s and BGs not to rise above 120? At the same time, eat like a king?www.tudiabetes.org/forum/t/do-you-always-do-a-finger-stick-before-meals-or-do-you-use-your-cgm-instead/48493/26" I eat like a king. I do eat what most people would consider pretty extreme low-carb, but I eat foods that satisfy me--- I see no example in human evolution (or religion, if you prefer) of any reason why I need to eat breads or other processed grains on any kind on a regular basis. I use Lantus and novolog, and as of lately, primarily afrezza for bolus-- though I still find novolog to work better for fattier meals... Afrezza sure makes it easy thoughMy average BGs are probably in the 80s. I don't have any noteworthy hypoglycemia if I'm careful, which I am. I try not to let my BG rise above 120, though of course it does sometimes. I don't pump. I also find that exercising a lot seems to help me quite a bit..."
|
|
|
Post by compound26 on Nov 10, 2015 13:23:16 GMT -5
Mike P's latest updates/comments (really appreciate Mike being a pioneer on Afrezza and sharing his experience with others along the way): www.tudiabetes.org/forum/t/i-started-on-afrezza-last-night/23316/280Hi all - just wanted to post a quick follow up. I had my Spirometry FEV-1 test done again after being on Afrezza for a little over 6 months and it came out great. Doc said it actually improved a bit!! This is very refreshing news as I'm using Afrezza exclusively for all meal boluses and corrections. www.tudiabetes.org/forum/t/my-condition/48365/51Larry - welcome. 11.8 a1c is running close to 300 on average. No wonder you are always tired and feel terrible. It's great that you came here for help. Great people, great advice, very informative BUT you have to commit to putting the effort in to help yourself get better. No more, "well I should be doing this or I should be doing that", you have to take control and do it. No more excuses. -I was very reluctant years ago to wear a pump . . . it changed my life. -I was hesitant at first to wear a CGM . . . it's now my road map I cannot live without. - I dove head first into Afrezza and it has given me control and a1c's I never could have imagined while living a very normal life. It all may seem overwhelming but we will help you, this is a family in my eyes. We know what you are going through, the feeling of helplessness, nobody understands etc. . . . we've all been there and I still get there sometimes. None of us are perfect, but we are doing the best we can. You need to be able to look yourself in the mirror and ask yourself "Am I doing the best I can?" Right now, I think you know the answer to that question. Hopefully with your efforts, your doctors help, maybe a CDE and a couple books and this outstanding community that answer can change. Take care buddy, let's make it happen!!!
|
|
|
Post by compound26 on Nov 11, 2015 18:39:19 GMT -5
Some insightful comments from tudiabetes.org: www.tudiabetes.org/forum/t/i-started-on-afrezza-last-night/23316/286People with diabetes tend to be skeptical... For good reason... They've been the target of countless "miracle cures" "diets" and snake oils of all kinds for many years. They're also people who learned a very rigid way of thinking about how insulin works and how it must be dosed. When your life, day in and day out depends on thinking within a rigid box, it becomes very hard to think outside it for many people. It didn't help that the fda added additional warnings, and more strict prescribing guidelines, against the recommendations of its expert committee, which raised some alarm that it might be dangerous, although there was no evidence of this... The fda had blew it with a lot of drugs in not too distant past so is very very cautious in covering their a$$ nowadays. Also bear in mind that most people with diabetes don't even know about it yet. It's a wonderful treatment, but it's not the only treatment. Other insulin are still effective, so the urgent "must have it" phenomenon that investors were counting on didn't materialize (this isn't viagra)--- it' will take a while to catch on. I will keep telling anyone who wants to listen how well it has worked for me. I think over time it will become more and more mainstream... I think the overall "internet sensationalism" of afrezza has also probably made some people more skeptical about it than they otherwise would be too--- wanting to not get involved when it seems like a lot of hype. My main concern at this point is that if it doesn't become a commercial success 1) it'd be a terrible shame, because it would not have the opportunity to tremendously improve the quality of life of millions of people, And 2) mostly, it won't be available to me. Those two reasons are why I'll keep preaching about how awesome it is...
|
|
|
Post by jpg on Nov 11, 2015 23:44:40 GMT -5
Some insightful comments from tudiabetes.org: www.tudiabetes.org/forum/t/i-started-on-afrezza-last-night/23316/286People with diabetes tend to be skeptical... For good reason... They've been the target of countless "miracle cures" "diets" and snake oils of all kinds for many years. They're also people who learned a very rigid way of thinking about how insulin works and how it must be dosed. When your life, day in and day out depends on thinking within a rigid box, it becomes very hard to think outside it for many people. It didn't help that the fda added additional warnings, and more strict prescribing guidelines, against the recommendations of its expert committee, which raised some alarm that it might be dangerous, although there was no evidence of this... The fda had blew it with a lot of drugs in not too distant past so is very very cautious in covering their a$$ nowadays. Also bear in mind that most people with diabetes don't even know about it yet. It's a wonderful treatment, but it's not the only treatment. Other insulin are still effective, so the urgent "must have it" phenomenon that investors were counting on didn't materialize (this isn't viagra)--- it' will take a while to catch on. I will keep telling anyone who wants to listen how well it has worked for me. I think over time it will become more and more mainstream... I think the overall "internet sensationalism" of afrezza has also probably made some people more skeptical about it than they otherwise would be too--- wanting to not get involved when it seems like a lot of hype. My main concern at this point is that if it doesn't become a commercial success 1) it'd be a terrible shame, because it would not have the opportunity to tremendously improve the quality of life of millions of people, And 2) mostly, it won't be available to me. Those two reasons are why I'll keep preaching about how awesome it is... I think the overall "internet sensationalism" of afrezza has also probably made some people more skeptical about it than they otherwise would be too--- wanting to not get involved when it seems like a lot of hype. Yes this does not help and retail investors are luckily slowly learning not to harass diabetics...
|
|
|
Post by compound26 on Nov 13, 2015 13:32:14 GMT -5
|
|
|
Post by mssciguy on Nov 13, 2015 13:38:33 GMT -5
via Harryx1 stocktwits prntscr.com/92dy8k(Oops that's already been captured) (Is Sanofi capturing these? ?)
|
|
|
Post by compound26 on Nov 18, 2015 16:08:00 GMT -5
Guys, for your consideration, a comment posted in Tudiabetes.org: h ttp://www.tudiabetes.org/forum/t/afrezza-on-youtube/48776/4It's effortless, mpg54. I've said it before but I'll say it again--- I had the skills, tools, motivation, and education to maintain an a1c in the low 5s without afrezza--- with afrezza I do it without any of those things! It commands about 5% of my life to have perfect control of diabetes instead of 90%. I feel sorry for anyone who hasn't tried it--- there is a better way, people.
|
|
|
Post by compound26 on Nov 22, 2015 22:36:02 GMT -5
|
|
|
Post by benyiju on Nov 22, 2015 22:51:53 GMT -5
Thanks for posting these, I just wish the great results Afrezza is getting would also result in more scripts. Every Friday I am dumbfounded that scripts can be stagnant for 6 months despite this sort of effect on PWD lives.
|
|
|
Post by peppy on Nov 23, 2015 3:29:02 GMT -5
I used to be dumbfounded. Now I am irritated. it is no longer a mystery as to what is happening here. It is criminal.
|
|
|
Post by afrizzle on Nov 23, 2015 6:33:03 GMT -5
I used to be dumbfounded. Now I am irritated. it is no longer a mystery as to what is happening here. It is criminal. Feeling like we are on the wrong end of the strings?
|
|