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Post by sportsrancho on Feb 6, 2016 22:13:57 GMT -5
joey, you are so cool. Thanks for telling your story! It helps so much to hear some of what is really going on! All the best to you:-)
Every time I read one of matts posts I want to eat carbs! So I understand how hard it is.
You pulled me over here from YMB. Seems like years ago now. Glad you did! sports
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Post by joeypotsandpans on Feb 6, 2016 22:53:35 GMT -5
joey, you are so cool. Thanks for telling your story! It helps so much to hear some of what is really going on! All the best to you:-) Every time I read one of matts posts I want to eat carbs! So I understand how hard it is. You pulled me over here from YMB. Seems like years ago now. Glad you did! sports Thanks Sports! As far as the posts that get to you, well I've come to realize there are some on here that have had lapses of oxygen to the brain at some point in their lives and quite frankly can't help themselves so you're best off to just not waste time reading or block the ignorance. Happy to share the facts and glad you're here, stay well  |
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Post by joeypotsandpans on Feb 6, 2016 23:12:30 GMT -5
Joey, why do I have a feeling that you will be buying a CGM next? If the disease is early enough in its progression, perhaps it's not to late for your insulin therapy to restore normal insulin production. It would be fantastic to have a documented case where Afrezza led to remission of this disease. MN, based on what I've read and the various testimonials touting the benefits, along with my conversations with Spiro, I'm optimistically confident that I won't need the CGM. Hopefully, after a few weeks of monitoring via the finger sticks I will have a pretty good gauge on my dosing per meal etc. The beauty of A is that it eliminates rocket science, I won't have any fear of hypo so if I over correct a tad here and there it shouldn't be a big deal. As a T2, I doubt I will need to be as obsessed with the range as a T1 might need to be. Anything I get between 90 and 120 will be far better than where it's been. The fact that my primary was so open minded encourages me to "shock" her in 90 days and expect her fully to become another advocate and believer for the huge practice that she belongs to. The rep is visiting with her Monday to piggyback my visit and help with the insurance paperwork. |
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Post by hankscorpio7 on Feb 6, 2016 23:45:59 GMT -5
Thanks very much for sharing, especially coming from someone who knows all there is about Afrezza. I would like to think the process is getting better but looks like a less informed patient would have still packed it in at Janumet. SNY probably had an equation with the 65%, milestones, and money/time for studies which came up negative for too long- especially with pressure they are in. MNKD is, has been so close... Why the 290 area in scripts? Is it throttled by formularies, SNY, insurance companies..? Have to look forward. I hope you can get it covered and Afrezza works for you. Wouldn't that be something if you completely hate it? |
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Post by kc on Feb 7, 2016 0:34:40 GMT -5
Joey, why do I have a feeling that you will be buying a CGM next? If the disease is early enough in its progression, perhaps it's not to late for your insulin therapy to restore normal insulin production. It would be fantastic to have a documented case where Afrezza led to remission of this disease. MN that would be the HOLY GRAIL of Diabetes treatment. That is something that Al had stated at some point that Afrezza helped regenerate pancreas function. I have thought at the Afrezza would be a good starter for Pre-Diabetes at meal time. |
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Post by kball on Feb 7, 2016 7:17:26 GMT -5
I wonder what kind of speech from doctors people get for the pills and pens and needles (with all thats come out on those)?
Still such crazy road blocks to get on this med...
An investor/patient goes to appt. and wants/needs it. The dr hasn't heard of it, wants to prescribe something else. The investor/patient 1. stays firm, 2. even bringing in a sample of the device, 3 And actually knows a SNY rep once detailing the med (but no longer) willing to help if patient uncovered.
Doctor ends up agreeing to prescribe. (hooray!)
Investor/patient confirmed uncovered, waiting now for SNY rep to help from their end.
One needs the determination of Job and the cunning of a woman scorned to get thru this damn process
And flash forward 3 months after being on it, and Joeys numbers almost assuredly look great.
So frustrating
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Post by themarlin on Feb 7, 2016 10:13:32 GMT -5
Unless you speak threats, someone who is offended when you share good news, or your opinion or your excitement about something that is working for you, that's really not your problem. Why would they be offended? Because they don't understand America or appreciate the greatness of our freedom of speech. Maybe what you have to tell them, and which you give voice to, will save their life or mankind.
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Post by bradleysbest on Feb 7, 2016 10:40:56 GMT -5
Joey's experience is exactly what Matt & MNKD should be working on. Soon as MNKD gets control back these issues need to be resolved (ASAP) as well as pricing. I'll bet there are many more in similar situations. The "test drive" by the French wussies only benefits us if MNKD is able to adapt & overcome these issues. Unfortunately time & money are obstacles so these issues need to be addressed as soon as MNKD gets control back. Let's go MNKD!
Good luck Joey!
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Post by alethea on Feb 8, 2016 12:07:27 GMT -5
Joey, why do I have a feeling that you will be buying a CGM next? If the disease is early enough in its progression, perhaps it's not to late for your insulin therapy to restore normal insulin production. It would be fantastic to have a documented case where Afrezza led to remission of this disease. MN, based on what I've read and the various testimonials touting the benefits, along with my conversations with Spiro, I'm optimistically confident that I won't need the CGM. Hopefully, after a few weeks of monitoring via the finger sticks I will have a pretty good gauge on my dosing per meal etc. The beauty of A is that it eliminates rocket science, I won't have any fear of hypo so if I over correct a tad here and there it shouldn't be a big deal. As a T2, I doubt I will need to be as obsessed with the range as a T1 might need to be. Anything I get between 90 and 120 will be far better than where it's been. The fact that my primary was so open minded encourages me to "shock" her in 90 days and expect her fully to become another advocate and believer for the huge practice that she belongs to. The rep is visiting with her Monday to piggyback my visit and help with the insurance paperwork. Joey, I'm Type 2 for a long time now. I have been using forearm testing for twelve years. Freestyle, Accu Check and other types of test strips. I only stabbed my fingers when first diagnosed for a few weeks. Maybe I'm a wuss (well, not maybe, I am one - don't do well with pain), but finger sticking for me hurt like hell. Forearm testing is virtually painless. I highly recommend it. I just don't understand why other diabetics continue to suffer the needless pain from fingertip testing. Do yourself a big favor and give forearm testing a try. Just an FYI. Good luck! |
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