|
|
Post by sweedee79 on Sept 27, 2016 21:34:25 GMT -5
Last week I PMed Mike C on Twitter about my dad and lack of medicare part D insurance coverage for Afrezza. Mike personally called the clinic the next day to tell them they have Medicare patients on Afrezza and that there is coverage. He apparently also sent some paperwork to get my dad coverage so he can go back on Afrezza. They had this paperwork in the office, tho it hadn't reached the doc.
Dad had doctor appointment today. He went into the doctors office with the intent of being switched back to Afrezza. The doctor hadn't read the paperwork or messages from Mike C and apparently had no intention of doing so. He told my dad that Afrezza was too expensive. My dad has had pneumonia, so he also told my dad that his lungs wouldn't absorb it anyway, AND he told him that the insurance wouldn't cover it . Dad knows about Afrezza from hanging around with me.... so he shot back.. and there was a lot of yelling in the office.. he basically told the doctor to "go to h#ll" and walked out.... Now he is without a doc again
I have heard no such thing about a respiratory infection obstructing the absorption of Afrezza.... also since the price of Novolog has doubled I don't think the prices are that different anymore... and isn't the doc suppose to be working for my dad??
I will be messaging Mike C again to tell him about this. I'm very thankful to him for his personal effort. We are now in search of a doc who is more cooperative and doesn't talk down to patients.. There seems to be too many docs like this one...
Dad has been having problems regulating his blood sugar this summer on Novolog..A1C of 8.2.Last summer on Afrezza .. A1C of 6.6 plus he lost 24lbs on Afrezza and gained it all back on Novolog. Doc wanted to raise his Novolog dose.. dad said BS .. he doesn't want it.. he says.. ITS NO GOOD!!! LOL ... and ya know what... he is RIGHT.... Dad also said... MNKD NEEDS TO START ADVERTISING... SOON..
Mike C says there is coverage for Medicare patients... so we are back on this band wagon.. will keep you posted.. |
|
|
|
Post by kball on Sept 27, 2016 22:00:12 GMT -5
Last week I PMed Mike C on Twitter about my dad and lack of medicare part D insurance coverage for Afrezza. Mike personally called the clinic the next day to tell them they have Medicare patients on Afrezza and that there is coverage. He apparently also sent some paperwork to get my dad coverage so he can go back on Afrezza. They had this paperwork in the office, tho it hadn't reached the doc.
Dad had doctor appointment today. He went into the doctors office with the intent of being switched back to Afrezza. The doctor hadn't read the paperwork or messages from Mike C and apparently had no intention of doing so. He told my dad that Afrezza was too expensive. My dad has had pneumonia, so he also told my dad that his lungs wouldn't absorb it anyway, AND he told him that the insurance wouldn't cover it . Dad knows about Afrezza from hanging around with me.... so he shot back.. and there was a lot of yelling in the office.. he basically told the doctor to "go to h#ll" and walked out.... Now he is without a doc again
I have heard no such thing about a respiratory infection obstructing the absorption of Afrezza.... also since the price of Novolog has doubled I don't think the prices are that different anymore... and isn't the doc suppose to be working for my dad??
I will be messaging Mike C again to tell him about this. I'm very thankful to him for his personal effort. We are now in search of a doc who is more cooperative and doesn't talk down to patients.. There seems to be too many docs like this one...
Dad has been having problems regulating his blood sugar this summer on Novolog..A1C of 8.2.Last summer on Afrezza .. A1C of 6.6 plus he lost 24lbs on Afrezza and gained it all back on Novolog. Doc wanted to raise his Novolog dose.. dad said BS .. he doesn't want it.. he says.. ITS NO GOOD!!! LOL ... and ya know what... he is RIGHT.... Dad also said... MNKD NEEDS TO START ADVERTISING... SOON..
Mike C says there is coverage for Medicare patients... so we are back on this band wagon.. will keep you posted.. Sorry about your dad's dr's appointment sweedee. Hope your dad finds the help he wants and needs soon. The story started out so great in your post...and then it gets so frustrating again. Damn. |
|
|
|
Post by cjm18 on Sept 27, 2016 22:01:57 GMT -5
So sorry to hear. And this was a doctor on the afrezza website?
|
|
|
|
Post by gonetotown on Sept 27, 2016 22:04:24 GMT -5
|
|
|
|
Post by sweedee79 on Sept 27, 2016 22:18:18 GMT -5
Thank you Kball and it is frustrating... I think MNKD is targeting Endos right?? This guy is small town internal medicine doctor about ready to retire... he is also busy like so many mds and small town docs... As an investor at this point in the companies history it is also discouraging.. But I'm not going to let it get me down.. The reps have not been out there that long..
My dad is sticking up for himself and I love it.. and I'm pretty sure he left an impression in the docs mind and others in the building.. Afrezza will be a word in that clinic.. .. cuz he was yelling about it.. how much better his A1C was on Afrezza and the docs wont help him..
My dad looked at me tonight and said .." they need to start advertising now!!!" And maybe he is right..
Anyway, Mike C got the paperwork to that clinic so they know there is coverage.. we move on now to next clinic..
|
|
|
|
Post by sweedee79 on Sept 27, 2016 22:21:31 GMT -5
So sorry to hear. And this was a doctor on the afrezza website? Thank you and No... this was an internal medicine doc that was at the clinic my dad has been at for a while... |
|
|
|
Post by gamblerjag on Sept 27, 2016 22:35:44 GMT -5
Hey Sweede.. Sorry to hear you Dad had such a bad experience. You did the right thing.. no sense staying with an A** of a Dr. that won't listen to their paients.. You will find that Dr. I'm sure your visiting the website to find a Dr. in your area? Good luck to pops!
|
|
|
|
Post by sportsrancho on Sept 27, 2016 22:37:03 GMT -5
I will be messaging Mike C again to tell him about this. I'm very thankful to him for his personal effort. We are now in search of a doc who is more cooperative and doesn't talk down to patients.. There seems to be too many docs like this one...
So sorry to hear this! Like your dad hasn't been through hell already! This will all work out for the best! That doc needed to be fired! Please tell your dad we are all rooting for him! Good job by him. So glad he stood his ground:-)
Great job by Mike!!
|
|
|
|
Post by sweedee79 on Sept 27, 2016 22:44:10 GMT -5
Hey Sweede.. Sorry to hear you Dad had such a bad experience. You did the right thing.. no sense staying with an A** of a Dr. that won't listen to their paients.. You will find that Dr. I'm sure your visiting the website to find a Dr. in your area? Good luck to pops! I wasn't with him today.. and Ive never seen him like this with a doctor.. he has always just sat there and did what they say.. but I think he is finding out they don't always know what they are talking about.. and he sees how they don't listen.. especially to older people.. he found his voice today and I'm good with that.. we will find a doc now who will cooperate.. thanks Gambler..
|
|
|
|
Post by kc on Sept 27, 2016 23:04:38 GMT -5
Your dad has become his own advocate for his health care. That is what we have seen the last 18 months. the users who have the best results were strong advocates to take care of their own health. Kudos to your father and good luck finding another doctor
|
|
|
|
Post by centralcoastinvestor on Sept 28, 2016 1:03:56 GMT -5
Thanks for sharing your Dad's story. I too am sorry to hear that it is so frustrating. I guess this is what MannKind is up against in getting the word out about Afrezza to diabetics. Hang tough!
|
|
|
|
Post by straightly on Sept 28, 2016 1:07:06 GMT -5
Regards to your dad and you. The tough keeps going!
|
|
|
|
Post by liane on Sept 28, 2016 4:13:07 GMT -5
Dad had doctor appointment today. He went into the doctors office with the intent of being switched back to Afrezza. The doctor hadn't read the paperwork or messages from Mike C and apparently had no intention of doing so. He told my dad that Afrezza was too expensive. My dad has had pneumonia, so he also told my dad that his lungs wouldn't absorb it anyway, AND he told him that the insurance wouldn't cover it . Dad knows about Afrezza from hanging around with me.... so he shot back.. and there was a lot of yelling in the office.. he basically told the doctor to "go to h#ll" and walked out.... Now he is without a doc again
I don't have time to find it right now, but there was a study that absorption is not impaired by concurrent respiratory infection. As to insurance, that would be determined by the patient's Part D coverage - so different plans cover to differing degrees. I have no doubt that some part D's cover, so you would have to check your dad's plan. I'm glad your dad is advocating for what he needs; I hope he can find a competent physician soon. But very frustrating what he has been put through. |
|
|
|
Post by nimrod71 on Sept 28, 2016 4:42:29 GMT -5
At this point why do you like have to part the red sea to get a script? For the love of all thats sacred the company is holding on by a thread maybe the price needs to be reduced.
|
|
|
|
Post by liane on Sept 28, 2016 4:44:16 GMT -5
To follow up on my previous post, I didn't have it quite right. This is a link to mnholdem's post about a study in patients with an upper respiratory infection. mnkd.proboards.com/thread/6241/abstract-respiratory-technosphere-inhaled-insulinPatients with a lower respiratory infection (pneumonia) were excluded from the study. So basically, there are no studies for your dad's condition to date. Personally, I would think if you can oxygen in, you are going to get TI in. The best way to approach it would be to tell a patient with pneumonia to try it, check their blood sugars frequently, and if the Afrezza is not lowering blood glucose, go on sub Q insulin for the duration of the illness. Keep in mind, that an infection like pneumonia can elevate blood sugars as a part of the body's defense system. So no matter what insulin is used, blood sugars need to be watched diligently. |
|
