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Post by mango on Apr 13, 2019 11:05:12 GMT -5
Look what is happening in this country. Prisoners dying in prison of diabetes. check. Parents having to go to the black market for insulin. Does this mean we are complicit? It's not really a black market, it's a facebook group that shares and donates insulin products and supplies. Very cool of people to do. Of course it sucks it's gotten to that point point though. Saw this in the article: "What’s amazing about the Dexcom is there’s basically no more finger pricks… and (mom) can actually have (the childrens’) blood sugars on her phone and see their blood sugars any times she wants. So this is really going to help that family because it’s going to give the kids some freedom,” Rippolone said. Lockwood says the Continuous Glucose Monitor is an amazing tool."
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Post by agedhippie on Apr 13, 2019 11:48:42 GMT -5
Look what is happening in this country. Prisoners dying in prison of diabetes. check. Parents having to go to the black market for insulin. Does this mean we are complicit? It's not really a black market, it's a facebook group that shares and donates insulin products and supplies. Very cool of people to do. Of course it sucks it's gotten to that point point though. Saw this in the article: "What’s amazing about the Dexcom is there’s basically no more finger pricks… and (mom) can actually have (the childrens’) blood sugars on her phone and see their blood sugars any times she wants. So this is really going to help that family because it’s going to give the kids some freedom,” Rippolone said. Lockwood says the Continuous Glucose Monitor is an amazing tool." I used to be part of a team that handled donated insulin. It's a nightmare to do because legally we couldn't handle the donated insulin directly. Instead we would find donors and put them in touch with people needing insulin and then they had to manage the logistics. Test strips (there was always far more demand for test strips than insulin) were easier and we could handle the logistics for those. Little known fact - if you are a charity and you want test strips then track clinical trials since they usually have a ton over at the end of a trial.
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Post by agedhippie on Apr 13, 2019 11:50:55 GMT -5
The Lockwood's story highlights the issue with the idea of wide spread CGM use. Their insurer had been fighting their CGM application for two years, and likely still would be if it hadn't been for the news story. Those are Type 1 kids and so very media sympathetic, now imagine how they will fight a Type 2 adult.
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Post by sportsrancho on Apr 14, 2019 12:28:55 GMT -5
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Post by sr71 on Apr 14, 2019 17:01:20 GMT -5
Here's to me the most surprising quote from article referenced by VDEX: "There are perhaps 3000 endocrinologists in the US and many do not accept patients with diabetes, Raskin said." (me again) - If that's true, then could it be that the current diabetes standard of care is so bad that some of the endo's don't even want to be involved with it?
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Deleted
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Post by Deleted on Apr 14, 2019 17:05:09 GMT -5
Bingo
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Post by mytakeonit on Apr 14, 2019 17:20:53 GMT -5
I believe it was stated that there are 5,000 endos in the US.
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Post by agedhippie on Apr 14, 2019 18:34:43 GMT -5
Here's to me the most surprising quote from article referenced by VDEX: "There are perhaps 3000 endocrinologists in the US and many do not accept patients with diabetes, Raskin said." (me again) - If that's true, then could it be that the current diabetes standard of care is so bad that some of the endo's don't even want to be involved with it? Hardly! It's just that they work in an area of endocrinology other than diabetes of which there are many.
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Post by sportsrancho on Apr 14, 2019 22:01:50 GMT -5
Here's to me the most surprising quote from article referenced by VDEX: "There are perhaps 3000 endocrinologists in the US and many do not accept patients with diabetes, Raskin said." (me again) - If that's true, then could it be that the current diabetes standard of care is so bad that some of the endo's don't even want to be involved with it? Hardly! It's just that they work in an area of endocrinology other than diabetes of which there are many. Yes I was going to mention that, my girlfriend takes her daughter to an Endo for a disease un- related to diabetics and the Endo told her with everything else she’s treating she hardly has time to see her diabetics. My friend was telling her about Afrezza and she said she had heard of it but had no time to look into it.
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Post by sportsrancho on Apr 17, 2019 4:37:24 GMT -5
💪🏻🔐❤️
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Post by goyocafe on Apr 17, 2019 4:47:12 GMT -5
Any idea who the meeting was with?
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Post by boca1girl on Apr 17, 2019 7:01:14 GMT -5
Wouldn’t it be great if they set up a VDEX clinic at every VA hospital/clinic in the country? Or how about every CVS minute clinic?
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Post by cretin11 on Apr 17, 2019 15:01:55 GMT -5
Love that idea, that would be something.
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Post by MnkdWASmyRtrmntPlan on Apr 17, 2019 15:35:54 GMT -5
Here's to me the most surprising quote from article referenced by VDEX: "There are perhaps 3000 endocrinologists in the US and many do not accept patients with diabetes, Raskin said." (me again) - If that's true, then could it be that the current diabetes standard of care is so bad that some of the endo's don't even want to be involved with it? Hardly! It's just that they work in an area of endocrinology other than diabetes of which there are many.https://academic.oup.com/jcem/article/99/9/3112/2537874 Current demand for endocrinologists' services is driven by diabetes care, which represents 46.1% of coded visits. Given the overwhelming number of persons with diabetes, only 15% of all diabetes care is provided by endocrinologists. Here are a couple interesting answers to questions I have had for awhile: Current demand for endocrinologists' services is driven by diabetes care, which represents 46.1% of coded visits. Given the overwhelming number of persons with diabetes, only 15% of all diabetes care is provided by endocrinologists. Read more here: academic.oup.com/jcem/article/99/9/3112/2537874
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Post by sportsrancho on Apr 17, 2019 18:57:17 GMT -5
Another two hours of customer service on Twitter, people DM’ing me, “how do I get on Afrezza?...how can I get my 17-year-old son a prescription?” This person has gone to many doctors and they tell her they’re not familiar enough with it, they don’t understand the dosing. That they are hesitant to prescribe. This is incredibly hard for her to take because her son is scared to death of needles and the last thing he wants is a pump and his A1 C is out of control. I told her all the stuff, Mannkind Cares, Vdex, Afrezza Facebook page, and I had her watch Afrezza Jake’s video. Well the more people that see other people getting prescriptions and they’re left out, the more up-set they get! Which is good.
But I could sure use about three Vdex’s in every state, that would solve most of my problems! 😎
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