Turning Moment in Paradigm Shift

[Chris-C]

Jul 12, 2018 11:40:09 GMT -5 zuegirdor said:

Not saying this is anything but a personal turning point for Afrezza, but in the interests of full disclosure, as a follow up to the ongoing saga in our family's efforts to get Afrezza covered for my son (who is now in Adult medicine at Kaiser), and to fulfill a promise I made (on what thread I cannot remember) I announce with great cheer and thanks to all here, especially Leanne (Sports) and VDEX Diabetes that:
After much wrangling over availability we have been able to get Afrezza covered with minimal copay at Kaiser based upon our direct appeal to his new endo. The decision, other than mercy, may have been (so far as I can tell) our reporting that for the year and a half we paid out of pocket it kept his A1C at 6.0 with reduced hypos and enormous psychological relief. We added that we did not believe he could keep his A1c safely below 7.0 without it.

...
I thought by posting on various online media I could make a difference in how many people tried Afrezza and thus help them lessen the burden of their diabetes in their lives, even if just a smidge. I thought I could help investors understand what it means to be a family living with this awful condition (type one). To be honest, I am not so sure that a person can have a great effect on behavior of bad pharma actors, shorts or patients online (Sam, Eric, Brian, afrezzaguy, Laureen, Basualdo et al notwithstanding).

I don't know how much I will post here going forward. (I tossed my twitter app too - rabbit hole that raises my blood pressure). But, good wishes to all for now.

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Congratulations zuegirdor! Thanks for sharing your journey. With tenacity driven by love, and against enormous odds, you prevailed against a broken health care system that is confused about the distinction between cost and value. Tragically, it's endemic to the culture. Chris