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Post by joeypotsandpans on Mar 30, 2018 13:19:47 GMT -5
In SO's recent article (comments section) he mentions that MNKD has a "HUGE" problem with the link for physicians to obtain more info regarding the black label Spirometry requirement. I responded with the following in case it doesn't get posted on SA but feel it is important enough for everyone to understand what I have experienced with what he considers a "HUGE" problem The spirometry issue is way overrated, I have been with 4 different physicians (old primary new primary, old endo, new endo, due to insurance election change in Nov.) the only spirometry test I took was 2 yrs ago and that was when coverage was denied from UHC. Since Nov. I have had my scripts filled and refilled and have not had to take a spirometry test. If it was one out of the four physicians I would say ok it's an aberration but all four lends me to believe the other way now. In fact, at my last four office visits I can't recall them even asking about any issues with the inhaling part of the process, perhaps they were too impressed/distracted with the 2.9 drop in my A1c numbers after 2.5 mos. to worry about it. Also, Express Scripts is sending 3 month supply at a time to my doorstep. Avg. cost is $33/mo ($100 for 3 mos.). They will not reimburse me if I go through CVS but why would I even want to when it gets dropped off at my doorstep lol. So far my biggest issue and trust me it's a nice issue is making room for storage in the refrigerator....actually have a second refrigerator in the garage I removed from a rental property I sold to buy more shares with last year so it all works .... "HUGE" problem LOL!! He's such a pistol
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Post by cretin11 on Mar 30, 2018 13:41:11 GMT -5
It hurts to admit it, but he's right that there's a huge problem for physicians on one or more aspects of prescribing. If it's not spirometry, then what is it? Either that or we have a woefully underperforming sales team. Or perhaps both?
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Post by mytakeonit on Mar 30, 2018 14:04:25 GMT -5
Hey joey ... didn't you watch the video? You can just dig a hole and store it in the ground ... so forget finding room in your refrigerator.
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Post by joeypotsandpans on Mar 30, 2018 18:40:12 GMT -5
So as expected (and you tell me if there is anything derogatory inferred in the paragraph about the spirometry issue being overrated) they did not post my response. However, my post here was responded to by SO as one of his cronies or as he referred to "a little birdie" lol questioning my credibility regarding my experiences referenced in the post along with him claiming he did not write it was a HUGE issue regarding the spirometry link which he unequivocally did but you can read the comments section and honestly for all I know he edited it out if it is not there anymore who knows anymore and who really cares...the point I was making was regarding the bringing back the old scary spirometry warning was a bit ridiculous and overrated IMO. Here was my response to his (which you can read at your own peril if you so choose). Liane I know you wanted to limit the SO references but I felt this was on topic and all about MNKD with respect to the aforementioned spirometry topic. My response which is in response to his which he opens as "educating a reader" Educating an author.... First of all it was all 4 that didn't even bring up the spirometry not 3 of 4. I have mentioned in the past that I am way more concerned about the effects from diabetes if not treated properly than the statistically insignificant numbers and unproven effects inhaling insulin may cause after 20yrs. or so. Second, you wouldn't need "birdies" dropping comments off from a message board if you didn't selectively edit your reader's responses. Third, when you to go the office visits it is part of the routine check for BP, Oxygen levels, and weight and pulse. When the oxygen readings consistently show 96-98 without any drop off and you've been taking the inhaled treatment for a few months it's quite possible they are not worried about any COPD, asthma, or other bronchial/lung function issues, especially after you've filled out the patient questionnaire's regarding history. Lastly, you stated it was a HUGE problem that the link to read more about the spirometry was not functioning properly for the physicians to be able to gain access to...I countered that it was questionable how many physicians were really concerned about the spirometry tests from my direct experience of the most recent four I have visited, thus stating it was overrated IMO. We're all entitled to our opinions, mine just happened to be based off of recent (since Nov.) first hand experiences. I think the wishful thinking on your part may be the other way around, that it was hyperbole and not contradictory to your thesis Oh yeah, you may want to shoot the messenger as your "birdie" left out that I did indeed state the HUGE problem you mentioned was in fact with the link, Happy Easter!
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Post by mnkdfann on Mar 30, 2018 19:28:23 GMT -5
So as expected (and you tell me if there is anything derogatory inferred in the paragraph about the spirometry issue being overrated) they did not post my response. Did SA not post it, or did you post it and then SA deleted it? AFAIK, posts on SA show up immediately. If it didn't show up at all (never got posted), maybe there is something wrong with your SA account?
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Post by joeypotsandpans on Mar 30, 2018 19:57:40 GMT -5
So as expected (and you tell me if there is anything derogatory inferred in the paragraph about the spirometry issue being overrated) they did not post my response. Did SA not post it, or did you post it and then SA deleted it? AFAIK, posts on SA show up immediately. If it didn't show up at all (never got posted), maybe there is something wrong with your SA account? Selective journalism, without me going into a whole history he does not like getting called out for conflict of interest as he omitted his conflict with MNKD and his ownership in ARNA with both working on a new treatment for PAH. SA did not post it, it was submitted as all my comments are and supposedly the "moderators" supposedly decide if it is not offensive to the author or something like that WTFKNOWS anymore, it's a joke....his last statement in his comment was: "For that reader.....Kindly show me where what I said even remotely relates to me saying that the spiro test is the HUGE problem."... I replied "How can I reply and show you when you have my posts deleted, too funny....you're a hoot Spence doubt you will see that reply as well. ..it's a one sided conversation now with him, or it's a 3 way as his cronies or "birdie's" or he acts in third person again WTFKNOWS anymore send him my replies that I copy and post here where respectful free speech is thankfully allowed. The only thing wrong with my SA account is that it is censored. I really stopped paying any attention but was curious to see what his weekly drivel would be in response to last weeks pick up in the "estimated" scripts....as usual I get entertained by his responses in the comments section and when I came across the ridiculous regurgitation of the spirometry issue I couldn't help myself respond due to the reasons I gave about not even having that come up at my last four visits with all four different practitioners. WTFKNOWS maybe they tried hitting the link and got frustrated and said well his lung function must be ok, he's got an O2 saturation of 96-98 and he is a non-smoker
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Post by sportsrancho on Mar 30, 2018 21:49:43 GMT -5
Joey, Did you see where Spencer said he was planning his own meeting with his followers after the shareholder meeting to discuss.. but now that it’s out here instead CT he wants to have it in Massachusetts.
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Post by digger on Mar 30, 2018 21:49:58 GMT -5
I think you misinterpreted what the "huge" problem was. He was not accusing spirometry of being a huge problem, but was pointing out the afrezza website for professionals was broken. The button that would take the doctor to the "learn more" page didn't work:
"I can see a doctor attempting to learn, getting frustrated, and simply giving up."
I can see what he means. When I attempt to click on "learn more," a "shade" -- I don't know the technical term -- saying "spirometry" falls and covers the button so I can't click on it. I don't know whether that's a "huge" problem but it is annoying.
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Post by mnkdfann on Mar 30, 2018 22:04:21 GMT -5
SA did not post it, it was submitted as all my comments are and supposedly the "moderators" supposedly decide if it is not offensive to the author or something like that That's weird. When I submit, it shows up right away, no moderation involved. I guess they put you on a list of users that require their posts to be approved? Kudos, I guess.
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Post by brotherm1 on Mar 30, 2018 22:23:36 GMT -5
Joey, Did you see where Spencer said he was planning his own meeting with his followers after the shareholder meeting to discuss.. but now that it’s out here instead CT he wants to have it in Massachusetts. Spencer wants to have a meeting with his followers after the shareholders’ meeting and he wants to have his meeting in Massachussettes? Is that what you said Sports? What the heck’s going on??
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Post by mnkdfann on Mar 30, 2018 23:01:42 GMT -5
Joey, Did you see where Spencer said he was planning his own meeting with his followers after the shareholder meeting to discuss.. but now that it’s out here instead CT he wants to have it in Massachusetts. Spencer wants to have a meeting with his followers after the shareholders’ meeting and he wants to have his meeting in Massachussettes? Is that what you said Sports? What the heck’s going on?? This is what he wrote in a comment. Make of it what you will. Doesn't really seem like a big deal to me, but YMMV. "I was waiting for the annual meeting announcement. My intent was to go to Connecticut to have coffee or lunch with some readers. With the meeting being held in California, that will not work so well. That being said, I would be glad to set up a meet and greet somewhere in Massachusetts if a place and time can be agreed upon by some folks. If you are interested in meeting to discuss MannKind over some drinks and a meal, shoot me a message here on SA."
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Post by nylefty on Mar 31, 2018 0:14:13 GMT -5
I think you misinterpreted what the "huge" problem was. He was not accusing spirometry of being a huge problem, but was pointing out the afrezza website for professionals was broken. The button that would take the doctor to the "learn more" page didn't work: "I can see a doctor attempting to learn, getting frustrated, and simply giving up." I can see what he means. When I attempt to click on "learn more," a "shade" -- I don't know the technical term -- saying "spirometry" falls and covers the button so I can't click on it. I don't know whether that's a "huge" problem but it is annoying. I just checked www.afrezza.com/hcp/ and had no problem, huge or otherwise, in "learning more" about Spirometry. I'm using Chrome as my Windows 10 browser. Maybe the problem has been fixed or it's only a problem for those using other browsers.
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Post by peppy on Mar 31, 2018 2:18:02 GMT -5
I think you misinterpreted what the "huge" problem was. He was not accusing spirometry of being a huge problem, but was pointing out the afrezza website for professionals was broken. The button that would take the doctor to the "learn more" page didn't work: "I can see a doctor attempting to learn, getting frustrated, and simply giving up." I can see what he means. When I attempt to click on "learn more," a "shade" -- I don't know the technical term -- saying "spirometry" falls and covers the button so I can't click on it. I don't know whether that's a "huge" problem but it is annoying. I just checked www.afrezza.com/hcp/ and had no problem, huge or otherwise, in "learning more" about Spirometry. I'm using Chrome as my Windows 10 browser. Maybe the problem has been fixed or it's only a problem for those using other browsers. Lying has become acceptable.
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Post by joeypotsandpans on Mar 31, 2018 2:58:45 GMT -5
Joey, Did you see where Spencer said he was planning his own meeting with his followers after the shareholder meeting to discuss.. but now that it’s out here instead CT he wants to have it in Massachusetts. Maybe they can have it at AF's favorite watering hole hangout, I forget the name of it (the one where he drowned his sorrows when he lost probably his only friend, his dog) but they (SO and AF) deserve one another....two peas in a pod .....they have one HUGE thing in common, so enamored with a company they're not invested in, write for a hobby, yet want to discuss it with "their followers". If you also noticed, he (SO) stated that "volume on the selling dried up" and he believes that it put a trading bottom at $2.20....I'll use his own words..."it doesn't take a rocket scientist"...to see how oversold the stock is currently, actually maybe he's learning from Peppy's volume threads or at the very least "his birdies" are relaying the message For those that keep posting in his defense of what he said regarding the HUGE problem being the link and not the spirometry itself what he took issue is with the title of this thread, unfortunately when you are inputting the title for the thread it only allows a certain number of characters...what they didn't continue to see is that I referred to his talking about the link not working and being the HUGE problem...but either way that wasn't my point, my point was that four out of four physicians that I met with did not bring up spirometry at all....so either it was a coincidence that they all just didn't pay attention to the label OR they weren't concerned about it being an issue....take your pick, instead he insinuated that I was creating "hyperbole" as from his following statement: "I suspect his "3-of-4" comment is hyperbole and wishful thinking rather than reality." So he's accusing me of lying and questioning my credibility, hmmm when I did that with him he got extremely defensive and hit the eject button by running from the confrontation and censoring my posts. Go figure, lol. That's the type of individual you are dealing with here, for me it's just the opposite...I'll laugh at the reply basically calling me a liar and rather than get defensive just shrug my shoulders and let the pied piper continue to lead the rats down the sewer....like I said, they all pretty much deserve each other's company
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Post by prosper on Mar 31, 2018 4:52:59 GMT -5
It hurts to admit it, but he's right that there's a huge problem for physicians on one or more aspects of prescribing. If it's not spirometry, then what is it? Either that or we have a woefully underperforming sales team. Or perhaps both? For a variety of reasons I have had 5-6 Dr's (different) office visits in the last several months. In each case at least one, sometimes two different detail men/women=salespeople have come in, tried to see the Dr and was only allowed to fill out the sign in book and not see the Dr as too busy. I wonder how often even an excellent sales person can succeed if denied face to face time with the Dr's?
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