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Post by promann on Feb 27, 2017 1:14:26 GMT -5
I know this has come up before but I need help with giving the best links to a friend that is type 1 diabetic with A1c of 9+. About 9 months ago we talked about her trying Afrezza and she said she was going to talk to her doctor about it. I just found out yesterday her doctor said no not now, I wanted to tell her to demand it but I didn't because she first needs to be educated. I talked to her about 30 minutes about her condition and the benefits of Afrezza and she is very interested. I just got her email address yesterday so I would like to start with the best way possible. I was thinking testimonials first .
I would also also like to mention she has never heard of a Dexcom unit either, she was amazed when I also told her about that.
A little bit about her is she is about 80 years old but very smart and very wealthy so money is no problem, she also has a daughter who is a diabetic with friends that are also diabetics she tells me. I only know her from her summer residence on the same street as my son so I don't see her to often. I told her I was going to send her some information that she could pass along and learn all of Afrezza benefits .
I dont want to overwhelm her with to much but just enough to get her attention at first so she keeps the interest to further emails with links.
So can I get some of the best opinions from our fellow board members? What is the first thing I should send her 2nd 3rd and so on.
I would like to follow through with her and at least get her Educated enough to make her own mind up to demand it if she wants.
Thank you
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Post by peppy on Feb 27, 2017 4:02:49 GMT -5
I know this has come up before but I need help with giving the best links to a friend that is type 1 diabetic with A1c of 9+. About 9 months ago we talked about her trying Afrezza and she said she was going to talk to her doctor about it. I just found out yesterday her doctor said no not now, I wanted to tell her to demand it but I didn't because she first needs to be educated. I talked to her about 30 minutes about her condition and the benefits of Afrezza and she is very interested. I just got her email address yesterday so I would like to start with the best way possible. I was thinking testimonials first . I would also also like to mention she has never heard of a Dexcom unit either, she was amazed when I also told her about that. A little bit about her is she is about 80 years old but very smart and very wealthy so money is no problem, she also has a daughter who is a diabetic with friends that are also diabetics she tells me. I only know her from her summer residence on the same street as my son so I don't see her to often. I told her I was going to send her some information that she could pass along and learn all of Afrezza benefits . I dont want to overwhelm her with to much but just enough to get her attention at first so she keeps the interest to further emails with links. So can I get some of the best opinions from our fellow board members? What is the first thing I should send her 2nd 3rd and so on. I would like to follow through with her and at least get her Educated enough to make her own mind up to demand it if she wants. Thank you from one physician to another, try this ajmc.s3.amazonaws.com/_media/_pdf/EBDM0916.pdf page 5 of 36. Afrezza is the most rapidly absorbed rapid-acting insulin on the
market. The insulin concentration from Afrezza peaks at Tmax in
approximately 12 to 15 minutes and returns to near baseline in
about 3 hours (FIGURE 1a).2,3 In contrast, the concentration of SC
rapid-acting insulin analog (SC RAA) peaks at Tmax in about 45 to
60 minutes and can remain elevated for more than 5 hours. Because Afrezza does its work early
and then “gets out of the way,” the risk of late hypoglycemia (2
to 5 hours after the start of a meal) was markedly reduced, while
postmeal glucose excursions were diminished. *it is my opinion this is what the physician should want for the patient in front of them.*
Once
a patient understands his or her individual dose response (eg, “a
4-unit cartridge reduces my glucose by 30 mg/dL in 90 minutes”),
The need
to increase the dose was reported in MannKind’s Affinity 1 trial4
where the average Afrezza dose was increased from 30 units/day
to approximately 43 units/day over a 12-week titration period.
Subsequent simulation work11 suggests an additional increase of
30% would have provided better glucose control with no significant
increase in the risk of hypoglycemia. The need for higher
doses of Afrezza versus SC RAA is a natural consequence of the
difference in PK/PD profiles.
If the
healthcare provider and patient do not titrate the dose to an adequate
blood glucose control, they might believe it does not work.
DISCLOSURES
Author Information: The author retired from the Washington State University College
of Pharmacy in 2013 after 45 years and remains a distinguished professor emeritus
of pharmacotherapy. He has lived with type 1 diabetes for 67 years and has used an
insulin pump for 37 years, 9 months. Disclosures: The author serves on the advisory board on insulin for Novo Nordisk.
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Post by Deleted on Feb 27, 2017 5:04:38 GMT -5
As someone that has been through this several times, I suggest providing the afrezza.com link; locate a doctor on the list; and read all the information provided by the link. If someone is determined to use Afrezza, they need to put effort into the endeavor.
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Post by sportsrancho on Feb 27, 2017 7:11:06 GMT -5
If it was me, after all the info, I would get her a dreamboat and let her hold it in her hand. And tell her to go to her GP for a script.
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Post by agedhippie on Feb 27, 2017 9:16:55 GMT -5
I know this has come up before but I need help with giving the best links to a friend that is type 1 diabetic with A1c of 9+. About 9 months ago we talked about her trying Afrezza and she said she was going to talk to her doctor about it. I just found out yesterday her doctor said no not now, I wanted to tell her to demand it but I didn't because she first needs to be educated. I talked to her about 30 minutes about her condition and the benefits of Afrezza and she is very interested. I just got her email address yesterday so I would like to start with the best way possible. I was thinking testimonials first . I would also also like to mention she has never heard of a Dexcom unit either, she was amazed when I also told her about that. A little bit about her is she is about 80 years old but very smart and very wealthy so money is no problem, she also has a daughter who is a diabetic with friends that are also diabetics she tells me. I only know her from her summer residence on the same street as my son so I don't see her to often. I told her I was going to send her some information that she could pass along and learn all of Afrezza benefits . I dont want to overwhelm her with to much but just enough to get her attention at first so she keeps the interest to further emails with links. So can I get some of the best opinions from our fellow board members? What is the first thing I should send her 2nd 3rd and so on. I would like to follow through with her and at least get her Educated enough to make her own mind up to demand it if she wants. Thank you As someone on the receiving end of a lot of well meaning diabetes advice I would say do exactly what kastanes said. Does she have an underlying condition that you don't know about which means she would not be a good candidate for Afrezza which is why the doctor said no? Just saying tread carefully unless you know (and not suspect) why she is being treated the way she is. Ultimately remember that you can lead a horse to water but you can't make it drink. |
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Post by peppy on Feb 27, 2017 10:15:42 GMT -5
I know this has come up before but I need help with giving the best links to a friend that is type 1 diabetic with A1c of 9+. About 9 months ago we talked about her trying Afrezza and she said she was going to talk to her doctor about it. I just found out yesterday her doctor said no not now, I wanted to tell her to demand it but I didn't because she first needs to be educated. I talked to her about 30 minutes about her condition and the benefits of Afrezza and she is very interested. I just got her email address yesterday so I would like to start with the best way possible. I was thinking testimonials first . I would also also like to mention she has never heard of a Dexcom unit either, she was amazed when I also told her about that. A little bit about her is she is about 80 years old but very smart and very wealthy so money is no problem, she also has a daughter who is a diabetic with friends that are also diabetics she tells me. I only know her from her summer residence on the same street as my son so I don't see her to often. I told her I was going to send her some information that she could pass along and learn all of Afrezza benefits . I dont want to overwhelm her with to much but just enough to get her attention at first so she keeps the interest to further emails with links. So can I get some of the best opinions from our fellow board members? What is the first thing I should send her 2nd 3rd and so on. I would like to follow through with her and at least get her Educated enough to make her own mind up to demand it if she wants. Thank you As someone on the receiving end of a lot of well meaning diabetes advice I would say do exactly what kastanes said. Does she have an underlying condition that you don't know about which means she would not be a good candidate for Afrezza which is why the doctor said no? Just saying tread carefully unless you know (and not suspect) why she is being treated the way she is. Ultimately remember that you can lead a horse to water but you can't make it drink. Quote: Does she have an underlying condition that you don't know about which means she would not be a good candidate for Afrezza Reply: same thought crossed my mind. I do not communicate with this person. I do however read you. Any reason why you may not be a good candidate? <--- sorry charlie
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Post by Deleted on Feb 27, 2017 12:02:30 GMT -5
The most likely reason the doctor refused is because the doctor is not familiar or misinformed. Either way, if the person wants it, they have to work for it.
A co-worker's son is a T1 college basketball player that hates needles. When I informed him of Afrezza he immediately started seeking a doctor from the list that accepts his insurance. This person is determined and will be the first person I know on Afrezza.
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Post by agedhippie on Feb 27, 2017 13:01:20 GMT -5
As someone on the receiving end of a lot of well meaning diabetes advice I would say do exactly what kastanes said. Does she have an underlying condition that you don't know about which means she would not be a good candidate for Afrezza which is why the doctor said no? Just saying tread carefully unless you know (and not suspect) why she is being treated the way she is. Ultimately remember that you can lead a horse to water but you can't make it drink. Quote: Does she have an underlying condition that you don't know about which means she would not be a good candidate for Afrezza Reply: same thought crossed my mind. I do not communicate with this person. I do however read you. Any reason why you may not be a good candidate? <--- sorry charlie
Fair question. I would pass the lung test and generally I think I am in good repair so I would be a good candidate apart from one area - I'm idle and am probably that horse. Unlike the Type 1 Kastanes mentioned I lack a real incentive to change. If my A1c was horrible, or I hate needles, or I was having problems there would be a reason. Absent that motivation though it's a disruption to my routine and I am very risk adverse in that area. I would have to relearn how to handle insulin and learn all the tricks of a new regime. Logically I know I should make the move, but practically I am reluctant. |
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Post by peppy on Feb 27, 2017 13:11:52 GMT -5
I do not think you are the only one.
especially when you have all the subq geared up.
pump, cmg, subq insulin and all.
Perhaps it depends on how you would feel.
Sam said he felt better.
sweedee's dad ...
I hear you.
you know the gig.
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Post by saxcmann on Feb 27, 2017 13:14:05 GMT -5
I'm idle and am probably that horse. Unlike the Type 1 Kastanes mentioned I lack a real incentive to change. If my A1c was horrible, or I hate needles, or I was having problems there would be a reason.
Absent that motivation though it's a disruption to my routine and I am very risk adverse in that area. I would have to relearn how to handle insulin and learn all the tricks of a new regime. Logically I know I should make the move, but practically I am reluctant.[/quote]
Bingo! I think a lot of PWD are like this...
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Post by wgreystone on Feb 27, 2017 13:29:21 GMT -5
I would recommend her to watch the testimonials on Vdex website. It's very convincing: www.vdexdiabetes.com/Maybe also read through An Afrezza user's blog about her experience with Afrezza. It may help her along the way when she hit similar situations: afrezzafrenzy.blogspot.com/ |
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Post by sayhey24 on Feb 27, 2017 18:52:09 GMT -5
I would have her watch Dr Steve Edelman's latest Edelman Report. The good Dr. has been a T1 since age 15 and uses afrezza himself. He is also working with Google's Onduo to define their protocol. youtu.be/Xtg1ESeqAQw As he says, even if she starts off by taking it for corrections. However, if she is in the 9's her BG is always over 200. |
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Post by promann on Feb 28, 2017 0:06:40 GMT -5
Thanks everyone for your thoughts! I definately sent her Dr Edelmans report I think that is the best out there. And also Afrezza .com and MannKind cares. Some testimonials are good. I really don't think there are any other underlying conditions or else her doctor would have said so he probably just does not know to much about it.. Also leading her to the drug is exactly all I'm doing weather she asks for it or takes it is entirely up to her. There are a great number of Diabetics out there that are still not aware that Afrezza exist and its benefits and some of them are wasting valuable time not having it where they could lose life or limbs.
Now it's up to her I sent her information that I think is a good learning start that she can think and talk about. Can't wait for the label change I think that will be the biggest event this year besides tv commercials and insurance coverage because then the doctors can be told the truth about Afrezza that will open their eyes.
Thanks again..
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Post by esstan2001 on Feb 28, 2017 9:51:00 GMT -5
I'm idle and am probably that horse. Unlike the Type 1 Kastanes mentioned I lack a real incentive to change. If my A1c was horrible, or I hate needles, or I was having problems there would be a reason. Absent that motivation though it's a disruption to my routine and I am very risk adverse in that area. I would have to relearn how to handle insulin and learn all the tricks of a new regime. Logically I know I should make the move, but practically I am reluctant. Bingo! I think a lot of PWD are like this...[/quote] Hence why the pediatric trial Pep refers to a few posts ago is so important to get started- it is taking time due to revisions to the protocol with the FDA, that I hope are going to show strong evidence of superiority making this a slam dunk decision for new patients / and to really help bring docs around. |
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Post by promann on Jul 24, 2017 18:30:14 GMT -5
I have an update that I would like to hear feedback on.. This women has recently had her Gal bladder removed about 3 months ago and ever since that now she says she don't need any insulin and it's as if her Diabeties is gone . She has been a typ 1 for about 25 years and insulin dependent what is up with this,I'm not that medically knowledgeable to understand if there is any connection. Has anyone ever heard of this?
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