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Post by JEvans on Mar 11, 2019 23:32:32 GMT -5
Hello everyone, I am a long time share holder of Mannkind and I know this forum is generally about the money, but I have a request for help!
My young daughters horse trainer who I'll call, "Al", who we all adore is a type 1 diabetic and has been since she was a young girl. Now in her 30's she's been on a pump for approximately 13 years. According to Al, her Endo will not even consider Afrezza. Al has had this doctor for a very long time. She is fearful of dying without the pump. I'm not sure if it's because of her Dr. or if her own reality of having lived with this for so long, that she doesn't know anything different. She had never heard of Afrezza prior to us suggesting it to her a few years ago. But, her Doctor is adamant about not using Afrezza and I don't know if he's even heard of it or if he even is prescribing it.
Al is a super, super sweet beautiful woman who my daughter loves so much and Al is just this live, vivacious girl, trainer, friend, who you wouldn't even know is always getting sick because of the failing of the pumps delivering her insulin or her insulin itself. She is very proud and doesn't talk about it much. The problem is, Al is either really sick, or in the Urgent Care every other month. Recently, she passed out and was found unconsciousness in her car where she almost died. Something went wrong with her pump.
We live in Westlake, Ca, 5 minutes from MC. I've seen posts that people are getting off their pumps with Afrezza, I just don't know enough about the process on how to help her and if Afrezza can work for her. I've been a believer in Afrezza since the day I invested in it. Can anyone help?
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Post by itellthefuture777 on Mar 11, 2019 23:46:12 GMT -5
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Post by itellthefuture777 on Mar 11, 2019 23:50:34 GMT -5
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Post by itellthefuture777 on Mar 11, 2019 23:53:28 GMT -5
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Post by centralcoastinvestor on Mar 12, 2019 0:20:23 GMT -5
Do you live in Westlake Village where the MannKind HQ is at? If I was you, I would swing by the HQ office and tell them your story. They might have helpful info for you including a local Endo who prescribes Afrezza or a diabetes educator on staff there who could help. Just a suggestion.
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Post by mango on Mar 12, 2019 0:29:04 GMT -5
Hello everyone, I am a long time share holder of Mannkind and I know this forum is generally about the money, but I have a request for help! My young daughters horse trainer who I'll call, "Al", who we all adore is a type 1 diabetic and has been since she was a young girl. Now in her 30's she's been on a pump for approximately 13 years. According to Al, her Endo will not even consider Afrezza. Al has had this doctor for a very long time. She is fearful of dying without the pump. I'm not sure if it's because of her Dr. or if her own reality of having lived with this for so long, that she doesn't know anything different. She had never heard of Afrezza prior to us suggesting it to her a few years ago. But, her Doctor is adamant about not using Afrezza and I don't know if he's even heard of it or if he even is prescribing it. Al is a super, super sweet beautiful woman who my daughter loves so much and Al is just this live, vivacious girl, trainer, friend, who you wouldn't even know is always getting sick because of the failing of the pumps delivering her insulin or her insulin itself. She is very proud and doesn't talk about it much. The problem is, Al is either really sick, or in the Urgent Care every other month. Recently, she passed out and was found unconsciousness in her car where she almost died. Something went wrong with her pump. We live in Westlake, Ca, 5 minutes from MC. I've seen posts that people are getting off their pumps with Afrezza, I just don't know enough about the process on how to help her and if Afrezza can work for her. I've been a believer in Afrezza since the day I invested in it. Can anyone help? I'm 31 and if your daughter thinks anything like I do (I hope she does not), then she will not listen to you about this unless you and her are very close and she trusts you like a best friend more-so than her parent. You will need a legit, strong, noble, moral, knowledge, trustworthy person in your corner (IMO) to have a meaningful influence on the mealtime insulin your 30 something year old daughter wishes to use (IMO). Maybe Laura Kronen or somebody similar wouldn't mind talking with her about it. Afrezza Users are good people. I would start there. |
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Post by itellthefuture777 on Mar 12, 2019 0:32:48 GMT -5
MannKind Corporation supports patients and caregivers who have questions about Afrezza. We are committed to making sure you get the best possible start and have continued success with your diabetes treatment. For medical advice please contact your healthcare provider. PHONE: 1-844-323-7399, 8:30am-8:00pm ET Monday through Friday |
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Post by itellthefuture777 on Mar 12, 2019 0:35:07 GMT -5
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Post by itellthefuture777 on Mar 12, 2019 0:37:54 GMT -5
DOCTORS NEAR ZIP 91361
YAROSLAV GOFNUNGENDOCRINOLOGY
1250 LA VENTA DR, WESTLAKE VILLAGE, CA 91361 818-487-0040
NA SHENENDOCRINOLOGY
100 MOODY CT, THOUSAND OAKS, CA 91360 805-418-3500
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Post by peppy on Mar 12, 2019 0:38:20 GMT -5
Hello everyone, I am a long time share holder of Mannkind and I know this forum is generally about the money, but I have a request for help! My young daughters horse trainer who I'll call, "Al", who we all adore is a type 1 diabetic and has been since she was a young girl. Now in her 30's she's been on a pump for approximately 13 years. According to Al, her Endo will not even consider Afrezza. Al has had this doctor for a very long time. She is fearful of dying without the pump. I'm not sure if it's because of her Dr. or if her own reality of having lived with this for so long, that she doesn't know anything different. She had never heard of Afrezza prior to us suggesting it to her a few years ago. But, her Doctor is adamant about not using Afrezza and I don't know if he's even heard of it or if he even is prescribing it. Al is a super, super sweet beautiful woman who my daughter loves so much and Al is just this live, vivacious girl, trainer, friend, who you wouldn't even know is always getting sick because of the failing of the pumps delivering her insulin or her insulin itself. She is very proud and doesn't talk about it much. The problem is, Al is either really sick, or in the Urgent Care every other month. Recently, she passed out and was found unconsciousness in her car where she almost died. Something went wrong with her pump. We live in Westlake, Ca, 5 minutes from MC. I've seen posts that people are getting off their pumps with Afrezza, I just don't know enough about the process on how to help her and if Afrezza can work for her. I've been a believer in Afrezza since the day I invested in it. Can anyone help? have her watch this. Give her this information  afrezza.aspnprograms.comhave her watch this |
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Post by robbmo on Mar 12, 2019 0:39:10 GMT -5
Mannkind will be limited in the help/information they can offer as they are heavily regulated by the FDA. I would point her to the Afrezza Facebook group, here is a link: www.facebook.com/groups/1491153011166114/There, she can reach out to a number of people who have gone through the process of ditching the pump. Also, send her a link to this video that was just posted today by a young man who ditched the pump and says Afrezza has changed his life, and goes into some great detail. He also seems very willing to help people get off the pump, and switch: youtu.be/mW86hnfm8M4 |
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Post by mango on Mar 12, 2019 0:49:45 GMT -5
Hello everyone, I am a long time share holder of Mannkind and I know this forum is generally about the money, but I have a request for help! My young daughters horse trainer who I'll call, "Al", who we all adore is a type 1 diabetic and has been since she was a young girl. Now in her 30's she's been on a pump for approximately 13 years. According to Al, her Endo will not even consider Afrezza. Al has had this doctor for a very long time. She is fearful of dying without the pump. I'm not sure if it's because of her Dr. or if her own reality of having lived with this for so long, that she doesn't know anything different. She had never heard of Afrezza prior to us suggesting it to her a few years ago. But, her Doctor is adamant about not using Afrezza and I don't know if he's even heard of it or if he even is prescribing it. Al is a super, super sweet beautiful woman who my daughter loves so much and Al is just this live, vivacious girl, trainer, friend, who you wouldn't even know is always getting sick because of the failing of the pumps delivering her insulin or her insulin itself. She is very proud and doesn't talk about it much. The problem is, Al is either really sick, or in the Urgent Care every other month. Recently, she passed out and was found unconsciousness in her car where she almost died. Something went wrong with her pump. We live in Westlake, Ca, 5 minutes from MC. I've seen posts that people are getting off their pumps with Afrezza, I just don't know enough about the process on how to help her and if Afrezza can work for her. I've been a believer in Afrezza since the day I invested in it. Can anyone help? have her watch this. Give her this information afrezza.aspnprograms.comhave her watch this That first video is what it's all about. Love it! |
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Post by itellthefuture777 on Mar 12, 2019 1:01:37 GMT -5
You guys know Llane is going to find these videos all over the board..rip my head off...this video is going viral..kids got over 78 views in an hour..Itell..I told you not to post outside of the cones..now I have to move them all over here from there..it's a complete mess! hahaa! (I am in soo much trouble..thing is..I see it coming..before it happens)
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Post by Thundersnow on Mar 12, 2019 1:09:19 GMT -5
That first video is what it's all about. Love it! AWESOME VIDEO. Jake needs to be the spokesperson when PEDS is approved. He's young, good looking and has other siblings with Type 1. |
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Post by JEvans on Mar 12, 2019 1:09:47 GMT -5
DOCTORS NEAR ZIP 91361 YAROSLAV GOFNUNGENDOCRINOLOGY 1250 LA VENTA DR, WESTLAKE VILLAGE, CA 91361 818-487-0040 NA SHENENDOCRINOLOGY 100 MOODY CT, THOUSAND OAKS, CA 91360 805-418-3500 This sounds like the UCLA Doctors. Dr, Yaroslav is actually the 1st Dr I visited upon my Thyroid diagnoses about 5 years ago. At that time he had not prescribed Afrezza, but good to know he and UCLA are on board now. Thank you I'm thinking VDex might be a more informative place to go to get someone over the fear of changing and managing insulin's and delivery options. Everyone's responses are so positive. Thanks again |
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