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Post by phantomfj on Oct 25, 2015 12:19:57 GMT -5
That is great news! It sure is heartening to hear results like that, hope his numbers continues to improve AND the insurance situation changes soon........if you could, let us know what his reluctant doc has to say about this improvement of numbers
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Post by Deleted on Oct 25, 2015 14:30:34 GMT -5
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Post by trondisc on Oct 25, 2015 15:57:49 GMT -5
"Health matters more than money." Damn right and well said. Here's to MannKind helping change the world with future devices for many different treatments.
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Post by suebeeee1 on Oct 26, 2015 0:53:21 GMT -5
All my nagging was PRIOR to Afrezza. I had done the research on the technology and wanted a change in his protocol. It just wasn't working any more. Besides, he had very nasty gastro issues associated with metformin. He takes care of himself, so it's not like he says things that are bad for him (besides pretzels occasionally). I wasn't too worried about hypoglycemia because of the experiences of others. Since he had only used oral drugs prior, he says nothing has changed. However, my father had diabetes and it consumed his life. I'm actually happy this controls his blood sugar without thinking much about being diabetic. Perhaps he will never need to find out how life consuming the management of diabetes with injectable insulin is. So, why would I nag?I meant for his 'testing'. Not the 'taking' This story is the holy grail ive been waiting for...Type 2, dosing routine established, well controlled, amazing numbers...WITHOUT even bothering to test. I think this last point is very freeing and exciting Your point is exactly what will ultimately make the biggest difference. My husband hasn't experienced any real difference between managing diabetes with pills or Afrezza. Not needing to test has made that difference. No testing before, calculating carbs, testing one and two hours after, testing before bed, testing in am. I'm not advocating this for anyone as everyone should be cautious especially in the early months of adjusting. But think about it... What if the majority of type 2s can get to this point?. Who would ever choose injectables?. Freedom indeed!
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Post by traderdennis on Oct 26, 2015 1:00:33 GMT -5
My husband's first 90 day Afrezza blood test is in. Unlike many of our conscientious "testers", he is not so vigilant about ever testing his blood sugar. Here are the facts. Type 2 diabetic for 7 years Previously "maintained" at 7.9 and climbing, despite excellent diet, skinny, mega dose of Metformin and onglyza Begged Dr for Afrezza from Feb to July Went for pulmonary tests Other clearances Kaiser doesn't cover this, so we have to pay more than $400 monthly (after coupon) Started Afrezza three months ago He had some trouble adjusting in the beginning and used the "Coach" program After about a week, he started inhaling 10-15 minutes after starting meal (or snack) About a week after that, he stopped checking his bg starting it had regularly been under 150 with no hypos No bg tests between then and now. (I know, not the best role model) A1C results from Thursday's blood test showed 6.1 I'd like it under 6, but right now, I'm ecstatic!
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6.1
Oct 26, 2015 1:03:12 GMT -5
Post by suebeeee1 on Oct 26, 2015 1:03:12 GMT -5
Sent it in... Watch for it!
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Post by EveningOfTheDay on Oct 26, 2015 3:44:28 GMT -5
WOW Suebee that is simply the best report anybody could have given us at this moment in this board. I absolutely agree with you and Kball, who, judging by his avatar, seems to be nicely recovering from a long period of all sorts of ailments, that what will definitely make a tremendous difference in diabetes care for Type 2s is the ability to simply use Afrezza in a routine that does not need to include anything else than simply inhaling during your meals. It simply does not get any more convenient than that, and convenience wins all the time every time. Spiro's own experience already pointed towards this, but the confirmation through your report is, at this particular time, mana from heaven to all of us longs, so thank you indeed.
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Post by mbseeking on Oct 26, 2015 4:18:35 GMT -5
I meant for his 'testing'. Not the 'taking' This story is the holy grail ive been waiting for...Type 2, dosing routine established, well controlled, amazing numbers...WITHOUT even bothering to test. I think this last point is very freeing and exciting Your point is exactly what will ultimately make the biggest difference. My husband hasn't experienced any real difference between managing diabetes with pills or Afrezza. Not needing to test has made that difference. No testing before, calculating carbs, testing one and two hours after, testing before bed, testing in am. I'm not advocating this for anyone as everyone should be cautious especially in the early months of adjusting. But think about it... What if the majority of type 2s can get to this point?. Who would ever choose injectables?. Freedom indeed! Suebeeee1 . Believe you have articulated yet another benefit of Afrezza. Not only is Afrezza needle free itself, but potentially works so well (ahh, maybe better than anything else) but drastically minimises either the need to prick yourself regularly or use a CGM. I realise this is probably blasphemy right now in the arc of diabetic treatment history.. but in 5 years.. when Afrezza's in in the hands of millions fixing diabetes I wonder.
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6.1
Oct 26, 2015 8:00:00 GMT -5
via mobile
Post by Deleted on Oct 26, 2015 8:00:00 GMT -5
Sent it in... Watch for it! Did you mean a letter to KP with all the information? Super... Send a copy to Sanofi too so they can keep pushing on KP ..
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6.1
Oct 26, 2015 8:17:15 GMT -5
Post by turk74 on Oct 26, 2015 8:17:15 GMT -5
Interesting concept but how does a Type 2 get there? I watch these results with both interest and wonder. What fabulous improvement in the very measure the FDA relied upon to qualify Afrezza. What is concerning however, is the immense effort and high cost Suebee described to get to the point where Afrezza is taken by a patient who 'hasn't experienced any real difference managing diabetes with pills or Afrezza', with the major exception that 'not needing to test has made that difference'. It seems to me that it is the actual data (real time or cumulative real time) from testing such as Spiro has done that is the key to empowering the patient (or the care giver like Suebee who is in good proximity to the patient). Type 1's seem to have a much more direct path to connecting with the data because most have to be directly engaged in managing the disease and must face the needle to do so.
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6.1
Oct 26, 2015 8:35:30 GMT -5
Post by mbseeking on Oct 26, 2015 8:35:30 GMT -5
Interesting concept but how does a Type 2 get there? I watch these results with both interest and wonder. What fabulous improvement in the very measure the FDA relied upon to qualify Afrezza. What is concerning however, is the immense effort and high cost Suebee described to get to the point where Afrezza is taken by a patient who 'hasn't experienced any real difference managing diabetes with pills or Afrezza', with the major exception that 'not needing to test has made that difference'. It seems to me that it is the actual data (real time or cumulative real time) from testing such as Spiro has done that is the key to empowering the patient (or the care giver like Suebee who is in good proximity to the patient). Type 1's seem to have a much more direct path to connecting with the data because most have to be directly engaged in managing the disease and must face the needle to do so. Take a slightly different perspective. Actually Suebeeees' post has two profound suggestions.. 1. as I already mentioned AFrezza may well reduce by a much greater number of punctures than just replacing a RAA i.e. no pricks (or a lot less) required for measurement.. but 2. you've just highlighted something .. We seen a lot on this board re T1s. Relatively little on T2. Many T2s still have some insulin function left. The 2nd profound thing here is that T2s will be relatively far easier to treat then T1s : and all the T1s we've read have said its great. That's the message here.... yep it confirm's Spiro.. but its great to get another datapoint.
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6.1
Oct 26, 2015 9:26:22 GMT -5
via mobile
Post by suebeeee1 on Oct 26, 2015 9:26:22 GMT -5
Sent it in... Watch for it! That was to the Afrezza website blog.
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6.1
Oct 26, 2015 9:35:30 GMT -5
Post by Deleted on Oct 26, 2015 9:35:30 GMT -5
Sent it in... Watch for it! That was to the Afrezza website blog. Thank you Suebeeee1. Got excited a little bit assuming it was a letter to KP. Cant imagine the look on their faces and realization.
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Post by turk74 on Oct 26, 2015 9:51:15 GMT -5
Makes excellent sense MB - and I genuinely hope millions of T2's are using Afrezza without measurement five yours hence - but there can be only one reason we are not seeing more T2's chiming in - they just aren't using Afrezza (yet) - in spite of SNY's purported business model to slow launch Afrezza to T2's that are needle phobic or insulin naive.
So I am trying to examine why it isn't happening for T2's - and speculate a little as to whether it ever will. In fact, I don't think T2's as a rule are a proactive patient with their disease. Under the current patient doctor protocol, I think most T2's once diagnosed just do as they are told - if that. Playing golf recently with two high school friends - mid 60's, type 2's and both on the needle - I asked if they ever heard of Afrezza or inhaled insulin (no), and what brand of insulin they were using (didn't know), and how they track their diabetes (fbg at doctor check-up time). Conversations like these temper my ardor as a long, and patients like these are just not going to make a leap of faith to using Afrezza. They will have to be instructed to do it. For me, this raises a serious question as to whether marketing to insulin naive T2's is the right way to establish Afrezza as the go to prandial of choice. Maybe SNY is doing some kind of 'rope-a-dope' until the ducks of insurance and doc education and label improvement are aligned - and then they will go where the insulin is being used because it has to be - T1's - and where the data re control of blood sugar will be monitored and archived and ultimately used to promote the use of he drug as best in class. Then it can migrate to T2's who may indeed not need to be as careful because they are not so relentlessly tied to managing the data and the disease.
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6.1
Oct 26, 2015 9:57:38 GMT -5
Post by compound26 on Oct 26, 2015 9:57:38 GMT -5
My husband's first 90 day Afrezza blood test is in. Unlike many of our conscientious "testers", he is not so vigilant about ever testing his blood sugar. Here are the facts. Type 2 diabetic for 7 years Previously "maintained" at 7.9 and climbing, despite excellent diet, skinny, mega dose of Metformin and onglyza Begged Dr for Afrezza from Feb to July Went for pulmonary tests Other clearances Kaiser doesn't cover this, so we have to pay more than $400 monthly (after coupon) Started Afrezza three months ago He had some trouble adjusting in the beginning and used the "Coach" program After about a week, he started inhaling 10-15 minutes after starting meal (or snack) About a week after that, he stopped checking his bg starting it had regularly been under 150 with no hypos No bg tests between then and now. (I know, not the best role model) A1C results from Thursday's blood test showed 6.1 I'd like it under 6, but right now, I'm ecstatic! suebeeee1, can you also share your husband's wonderful results on Twitter? If you already have, can you share a link to your tweet?
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