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Post by silentbob on Apr 3, 2014 16:55:02 GMT -5
So on a whim I made afrezza.proboards.com/Intended as a forum strictly for diabetic patients and their loved ones, either using Afrezza or looking to use it. The 6 months between now and release could be spent making a few resources like this, so that interested persons looking for information or feedback have a place to go. Such forums could have some sticky posts with a FAQ/link list/general info/... This is NOT intended for those who just invest but we could help get such forums up and running. I don't intend to run this forum myself, but I'm willing to help out with the informational postings before Afrezza gets released. I want to turn over the forum to a diabetic, preferrable one that has used Afrezza. To point out the obvious... maybe AfrezzaUser? |
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Post by BD on Apr 3, 2014 17:59:54 GMT -5
I'm wondering if perhaps such a forum would work as a sub-forum on this board someplace. That would be your and liane's call...
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Post by liane on Apr 3, 2014 19:15:44 GMT -5
I am more than willing to devote some space here, but I actually think silentbob has the right idea to give it a devoted board. While there may be some overlap of interest, I think by and large, we're going to have different populations of posters.
If anyone on this board has an opinion, please speak up.
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Post by biotec on Apr 3, 2014 19:38:40 GMT -5
I dont think its a great Plan, Your not doing to find many Afrezza users on a forum like this. Lets just wait until approval. FDA already knows what there going to do, Im pretty sure of that.April 15th is not far off.And a partnership after approval will be done shortly after April 15th. Hey we already owe them (type1-type2 and family) A big thank you for being at the Adcom.How many docs,fda,investers you think read these forums?
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Post by chmith27 on Apr 3, 2014 20:09:07 GMT -5
i like the idea. and definitely a separate board. but recommend reaching out to folks like dm bloggers diatribe and see what they already have for support networks/forums. i agree with biotec that it can wait til after approval as right now unlikely enough to warrant much chatter.
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Post by thekindaguyiyam on Apr 3, 2014 20:20:07 GMT -5
My feelings are that they are two different populations with some overlap which could broaden the view from each other's board. If there aren't enough on the other board incorporate them here until there are. It will take a while to grow a population.. imho
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Post by mnkdd on Apr 3, 2014 20:52:02 GMT -5
I dont think its a great Plan, Your not doing to find many Afrezza users on a forum like this. Lets just wait until approval. FDA already knows what there going to do, Im pretty sure of that.April 15th is not far off.And a partnership after approval will be done shortly after April 15th. Hey we already owe them (type1-type2 and family) A big thank you for being at the Adcom.How many docs,fda,investers you think read these forums?
I think it's a good plan, but a little premature. Perhaps we should concentrate our efforts in making sure Afrezza gets approved first. Just because the ADCOM was a success, let's not take it for granted. I rather spend time promoting Afrezza's patient experience story and putting pressure on teh FDA to do the right thing. Don't assume the FDA has made up their mind on approval. Nothing is set in stone. |
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Post by dreggy on Apr 3, 2014 21:06:21 GMT -5
Assuming we get approved, you definately need someone running it that is an Afrezza expert. I think patients would trust a fellow diabetic that has used it, as opposed to a well informed investor. Affrezzauser would be good, if he has the time. I have checked out several of the diabetes forums to see what their discussions were. A lot of uniformed negative comments on most of the discussions. Definately need someone who has used it to address their concerns.
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Post by babaoriley on Apr 3, 2014 23:38:34 GMT -5
i like the idea. and definitely a separate board. but recommend reaching out to folks like dm bloggers diatribe and see what they already have for support networks/forums. i agree with biotec that it can wait til after approval as right now unlikely enough to warrant much chatter. Chad, why are you practicing medicine? Throw off that stethoscope and get in for John Kerry now! Like the idea of such a board, it sure can't hurt, the more people that find out as soon as possible, the better. |
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Post by 4allthemarbles on Apr 4, 2014 0:22:18 GMT -5
My thoughts, for what they are worth- wait till after approval, then turn it over to someone like Afrezzauser or a person with a similar situtation.
It's easy to get caught up on the investing side of this, especially right now. In reality, this drug could help so many people, changing, even saving their lives. People will need support, encouragement, or maybe just some education. I' ll get off the soapbox now.
The forum is a great idea silentbob.
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