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Post by peppy on May 11, 2017 10:46:28 GMT -5
Sluggo: Thank you. Your writing those ME thought leaders is such a good reminder of how all of us interested longs can make a small but real difference every week, simply by writing/talking/tweeting positive comments - wherever the opportunity presents. I just look at the continuous glucose monitors. It seems pretty clear cut. that is why this whole endo thing is unclear.
Then I read that users are so happy, and people that want it like sweedee's dad who loved it can not get it with the medical coverage he has. Then I see happy users example Laura K. She seems like a likable sophisticated person living in a nice home, rides in a nice boat, with a continuous glucose monitor. "It is Magic" Sam was in south America loving afrezza, and Eric, he and his family, they try to tell us and Erics last piece, afrezza vs subq analog. Insulin is expensive.
Things that make me say hmmmm.
It would seem some employers in general offer more/better/different insurance coverage than others.
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Post by sweedee79 on May 11, 2017 12:36:35 GMT -5
Sluggo: Thank you. Your writing those ME thought leaders is such a good reminder of how all of us interested longs can make a small but real difference every week, simply by writing/talking/tweeting positive comments - wherever the opportunity presents. I just look at the continuous glucose monitors. It seems pretty clear cut. that is why this whole endo thing is unclear.
Then I read that users are so happy, and people that want it like sweedee's dad who loved it can not get it with the medical coverage he has. Then I see happy users example Laura K. She seems like a likable sophisticated person living in a nice home, rides in a nice boat, with a continuous glucose monitor. "It is Magic" Sam was in south America loving afrezza, and Eric, he and his family, they try to tell us and Erics last piece, afrezza vs subq analog. Insulin is expensive.
Things that make me say hmmmm.
It would seem some employers in general offer more/better/different insurance coverage than others.
Had it not been for me my dad would have never heard of Afrezza ... nor would he have had the support and knowledge I gave him ... I served as an advocate against docs who don't want to change or take the extra time ..
Then we have Sam who was in the trials... and is a self advocate , not just relying on docs to make decisions about his own health.... that seems to be true for many of the successful Afrezza users
Unfortunately many PWD don't advocate for themselves and only listen to what the doc says .. and have never heard of Afrezza .. and if they have don't know what it is... so many things to consider ..
And also insurance coverage varies for every for person.. Medicare patients don't have the very best of medical care... that is what I have seen.. and that is due to lack of government monies to cover all of these programs ..
Afrezza is absolutely ahead of its time .. and so misunderstood .. change happens very slowly in our current medical system ..
The CC yesterday shows that MNKD is taking the right steps to put things in place .. time and money .. the big question is where will the money come from to keep progress moving forward.... If we can continue to find the cash we can do this...
The juvenile market will be a great target.. younger generation is tech savy .. My dad doesn't even have a cell phone... he couldn't stand a CGM or the hassle that would create for him ... yet Afrezza was a healthier option for him .. He is now on a larger dose of injectable.. the more insulin they give him the more weight he gains... its killing him .. he isn't the same person he was anymore.. trips and falls a lot .. no energy.... hard to watch .. specially when I know there is an answer that docs seem to not want to hear about .. so in the mean time people die.. and yes this will kill my dad ..
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Post by compound26 on May 11, 2017 14:15:46 GMT -5
I just look at the continuous glucose monitors. It seems pretty clear cut. that is why this whole endo thing is unclear.
Then I read that users are so happy, and people that want it like sweedee's dad who loved it can not get it with the medical coverage he has. Then I see happy users example Laura K. She seems like a likable sophisticated person living in a nice home, rides in a nice boat, with a continuous glucose monitor. "It is Magic" Sam was in south America loving afrezza, and Eric, he and his family, they try to tell us and Erics last piece, afrezza vs subq analog. Insulin is expensive.
Things that make me say hmmmm.
It would seem some employers in general offer more/better/different insurance coverage than others.
Had it not been for me my dad would have never heard of Afrezza ... nor would he have had the support and knowledge I gave him ... I served as an advocate against docs who don't want to change or take the extra time ..
Then we have Sam who was in the trials... and is a self advocate , not just relying on docs to make decisions about his own health.... that seems to be true for many of the successful Afrezza users
Unfortunately many PWD don't advocate for themselves and only listen to what the doc says .. and have never heard of Afrezza .. and if they have don't know what it is... so many things to consider ..
And also insurance coverage varies for every for person.. Medicare patients don't have the very best of medical care... that is what I have seen.. and that is due to lack of government monies to cover all of these programs ..
Afrezza is absolutely ahead of its time .. and so misunderstood .. change happens very slowly in our current medical system ..
The CC yesterday shows that MNKD is taking the right steps to put things in place .. time and money .. the big question is where will the money come from to keep progress moving forward.... If we can continue to find the cash we can do this...
The juvenile market will be a great target.. younger generation is tech savy .. My dad doesn't even have a cell phone... he couldn't stand a CGM or the hassle that would create for him ... yet Afrezza was a healthier option for him .. He is now on a larger dose of injectable.. the more insulin they give him the more weight he gains... its killing him .. he isn't the same person he was anymore.. trips and falls a lot .. no energy.... hard to watch .. specially when I know there is an answer that docs seem to not want to hear about .. so in the mean time people die.. and yes this will kill my dad ..
sweedee79 Based on this CC, Mannkind now has contract with MedImpact, which Mike describes as working with many medicare plans. Wondering if it is now possible for your dad to somehow get Afrezza covered?
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Post by zuegirdor on May 11, 2017 14:52:22 GMT -5
I just look at the continuous glucose monitors. It seems pretty clear cut. that is why this whole endo thing is unclear.
Then I read that users are so happy, and people that want it like sweedee's dad who loved it can not get it with the medical coverage he has. Then I see happy users example Laura K. She seems like a likable sophisticated person living in a nice home, rides in a nice boat, with a continuous glucose monitor. "It is Magic" Sam was in south America loving afrezza, and Eric, he and his family, they try to tell us and Erics last piece, afrezza vs subq analog. Insulin is expensive.
Things that make me say hmmmm.
It would seem some employers in general offer more/better/different insurance coverage than others.
Had it not been for me my dad would have never heard of Afrezza ... nor would he have had the support and knowledge I gave him ... I served as an advocate against docs who don't want to change or take the extra time ..
Then we have Sam who was in the trials... and is a self advocate , not just relying on docs to make decisions about his own health.... that seems to be true for many of the successful Afrezza users
Unfortunately many PWD don't advocate for themselves and only listen to what the doc says .. and have never heard of Afrezza .. and if they have don't know what it is... so many things to consider ..
And also insurance coverage varies for every for person.. Medicare patients don't have the very best of medical care... that is what I have seen.. and that is due to lack of government monies to cover all of these programs ..
Afrezza is absolutely ahead of its time .. and so misunderstood .. change happens very slowly in our current medical system ..
The CC yesterday shows that MNKD is taking the right steps to put things in place .. time and money .. the big question is where will the money come from to keep progress moving forward.... If we can continue to find the cash we can do this...
The juvenile market will be a great target.. younger generation is tech savy .. My dad doesn't even have a cell phone... he couldn't stand a CGM or the hassle that would create for him ... yet Afrezza was a healthier option for him .. He is now on a larger dose of injectable.. the more insulin they give him the more weight he gains... its killing him .. he isn't the same person he was anymore.. trips and falls a lot .. no energy.... hard to watch .. specially when I know there is an answer that docs seem to not want to hear about .. so in the mean time people die.. and yes this will kill my dad ..
So sorry to hear this....infuriating! That an MD or HMO can be this negligent, incompetent or irresponsible is astonishing. These attitudes harm the profession too. Tell your dad not to give up hope. I sense a change coming from our HMO- Kaiser Permanente. How soon I cannot say. Baby steps for now...
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Post by sweedee79 on May 11, 2017 15:08:21 GMT -5
compound26 I will check into medimpact .. thank you
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Post by boytroy88 on May 12, 2017 0:20:35 GMT -5
compound26 I will check into medimpact .. thank you Good luck and keep us posted! We're rooting for your dad!!!
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