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Post by mannmade on Jan 20, 2018 14:29:12 GMT -5
IT’S NO LONGER JUST A NEEDLE GAME WRITTEN BY: Ginger Gault FacebookTwitterEmail Talk about a roller coaster ride.
Like most T1Ds, I started with multiple daily injections of long-acting and short-acting insulin. Several years later I started on an insulin pump, which definitely changed my life for the better.
After many years of insulin injections, pump site insertions, and CGM site insertions, however, I started having trouble with insulin absorption because of scar tissue. After years of taking care of myself I was suddenly having the worst blood sugars of my life. When your body doesn’t properly absorb your insulin, it’s impossible to keep your blood sugars stable. You go from highs to lows constantly. My CGM set alarms off all night long, and I had to feed lows throughout the day, leading to rebound highs and weight gain. Talk about frustrating!
I’d heard about Afrezza, the inhaled insulin, a couple years earlier and was interested in trying it. But my endocrinologist said it wasn’t a good fit for a T1D and claimed I could never get the same kind of control as with a pump. At that point I listened to my doctor and gave up. Big mistake! While not all doctors are on board with Afrezza yet, I believe it’s just because they haven’t given it a chance. After having so many problems with insulin absorption, I knew it was time to find an endocrinologist who would prescribe an inhaled version for me. I did just that, and the move has changed my life.
Guess what? My blood sugars stay steady all night long. I’d forgotten what it was like to sleep through the night. Overall my BGLs have shown an average of about 30 points of improvement using inhaled insulin versus a pump. My most recent A1C was 5.7 – the lowest it’s ever been in my 27 years as a T1D.
Not having an insulin pump attached me to 24 hours a day has changed my life as well. I never realized just how much wearing a pump bothered me until it was no longer there. It’s been difficult to get my insurance company to cover for inhaled insulin, but I will keep fighting. Being able to manage my blood sugar is worth it.
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Post by mannmade on Jan 20, 2018 14:44:52 GMT -5
How could a doctor read the above article and not want to investigate for his own patients???
Btw, Beyond Type 1 Which is where this was posted is a non profit organization that has Nick Jonas as a co- founder and board member.
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Post by babaoriley on Jan 20, 2018 15:07:16 GMT -5
Great find, mannmade, the experience of Ginger Gault must get into the mainstream of diabetics everywhere!
Her statement should be a part of marketing efforts, certainly for VDEX-type operations. Not sure if MNKD reps can use it, but seems as if a bit of aggressiveness on their part wouldn't be a bad idea.
Why couldn't she or someone like she join Mike in a Doc Oz like setting, with the clear understanding that "your results may vary." And if it's too risky for Mike to be there, then just Oz and Ginger!
Word will eventually get out, as always, the question is, will it be soon enough. It appears that she is having to bear the brunt (if not all) of the cost due to insurance issues. What a huge thorn in our collective side!
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Post by mnholdem on Jan 20, 2018 16:11:04 GMT -5
I think that there are restrictions by the FDA against MannKind soliciting media support for select cases, but there's nothing the FDA can do about other people sending these stories to news outlets. I guess I'm suggesting something along the lines of bringing these stories to the attention of medical media that doctors are known to listen to or read articles. Of course, there's no reason not to try to get this story out to the masses, either, it's just that I don't think that MannKind can have a hand in it.
It's a great story that deserves to be repeated as broadly as possible, IMHO.
Thanks for sharing it!
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Post by sportsrancho on Jan 20, 2018 19:55:20 GMT -5
Great find, mannmade, the experience of Ginger Gault must get into the mainstream of diabetics everywhere! Her statement should be a part of marketing efforts, certainly for VDEX-type operations. Not sure if MNKD reps can use it, but seems as if a bit of aggressiveness on their part wouldn't be a bad idea. Why couldn't she or someone like she join Mike in a Doc Oz like setting, with the clear understanding that "your results may vary." And if it's too risky for Mike to be there, then just Oz and Ginger! Word will eventually get out, as always, the question is, will it be soon enough. It appears that she is having to bear the brunt (if not all) of the cost due to insurance issues. What a huge thorn in our collective side! Come on Baba, we’re about to have the come to Jesus moment! Lol, that we always talked about. Think Mike, think Rob, think the Kardashian‘s :-)) Think about the whole world knowing. In a matter of minutes!
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Post by mango on Jan 20, 2018 21:08:27 GMT -5
Awesome story. Was it just published? I'll be sharing it with some folks for sure. Thanks for posting this.
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Post by digger on Jan 20, 2018 22:55:41 GMT -5
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Post by peppy on Jan 21, 2018 1:09:33 GMT -5
IT’S NO LONGER JUST A NEEDLE GAME WRITTEN BY: Ginger Gault FacebookTwitterEmail Talk about a roller coaster ride. Like most T1Ds, I started with multiple daily injections of long-acting and short-acting insulin. Several years later I started on an insulin pump, which definitely changed my life for the better. After many years of insulin injections, pump site insertions, and CGM site insertions, however, I started having trouble with insulin absorption because of scar tissue. After years of taking care of myself I was suddenly having the worst blood sugars of my life. When your body doesn’t properly absorb your insulin, it’s impossible to keep your blood sugars stable. You go from highs to lows constantly. My CGM set alarms off all night long, and I had to feed lows throughout the day, leading to rebound highs and weight gain. Talk about frustrating! I’d heard about Afrezza, the inhaled insulin, a couple years earlier and was interested in trying it. But my endocrinologist said it wasn’t a good fit for a T1D and claimed I could never get the same kind of control as with a pump. At that point I listened to my doctor and gave up. Big mistake! While not all doctors are on board with Afrezza yet, I believe it’s just because they haven’t given it a chance. After having so many problems with insulin absorption, I knew it was time to find an endocrinologist who would prescribe an inhaled version for me. I did just that, and the move has changed my life. Guess what? My blood sugars stay steady all night long. I’d forgotten what it was like to sleep through the night. Overall my BGLs have shown an average of about 30 points of improvement using inhaled insulin versus a pump. My most recent A1C was 5.7 – the lowest it’s ever been in my 27 years as a T1D.
Not having an insulin pump attached me to 24 hours a day has changed my life as well. I never realized just how much wearing a pump bothered me until it was no longer there. It’s been difficult to get my insurance company to cover for inhaled insulin, but I will keep fighting. Being able to manage my blood sugar is worth it. The hbA1c is the lip service being used. ? Good story. He has to get insurance coverage.
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