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Post by agusta on Apr 7, 2016 15:36:28 GMT -5
First Post, Shareholder, Voyeur of this board and others. Just wanted to share a recent experience. Had my yearly blood work done end of March. Call back from PCP's office (Nurse) message: You have high blood sugar and now are considered Diabetic. Reviewed my blood test results on their "My Chart" online Medical Management Program. Results: Non Fasting Blood Sugar 399. Called back for fasting BS or HbA1c and number was 11.9 Met with my Cleveland Clinic PCP who resides in a large Cleveland Clinic off campus facility in a very large Cleveland suburb. Was given the required speech of what Diabetes is all about and what I need to do. Meeting with Dietician, scheduled for new blood work first of June and placed on 2000 mg of Metformin. Asked my Doctor if he had heard of the new inhaled insulin "Afrezza" he said NO and asked who makes it.... Seeing my appointment was within the time frame of Sanofi handing Afrezza back to MNKD - it was no time to share that information. I just told him there was a new FDA treatment on the market that was inhaled. Fell on DEAF ears. He went on to say that Pfizer had an inhaled insulin that was a big flop and was not an improvement over current insulin therapies. Hence, 2000 mg. of Metformin 1x per day for a grand total with my insurance of $10.00 for 90 Days. Can not be far from the commode room and CAN afford Afrezza. Sucks. (Female- 57yrs. 165lbs. 5'4")
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Post by stevil on Apr 7, 2016 15:46:33 GMT -5
First Post, Shareholder, Voyeur of this board and others. Just wanted to share a recent experience. Had my yearly blood work done end of March. Call back from PCP's office (Nurse) message: You have high blood sugar and now are considered Diabetic. Reviewed my blood test results on their "My Chart" online Medical Management Program. Results: Non Fasting Blood Sugar 399. Called back for fasting BS or HbA1c and number was 11.9 Met with my Cleveland Clinic PCP who resides in a large Cleveland Clinic off campus facility in a very large Cleveland suburb. Was given the required speech of what Diabetes is all about and what I need to do. Meeting with Dietician, scheduled for new blood work first of June and placed on 2000 mg of Metformin. Asked my Doctor if he had heard of the new inhaled insulin "Afrezza" he said NO and asked who makes it.... Seeing my appointment was within the time frame of Sanofi handing Afrezza back to MNKD - it was no time to share that information. I just told him there was a new FDA treatment on the market that was inhaled. Fell on DEAF ears. He went on to say that Pfizer had an inhaled insulin that was a big flop and was not an improvement over current insulin therapies. Hence, 2000 mg. of Metformin 1x per day for a grand total with my insurance of $10.00 for 90 Days. Can not be far from the commode room and CAN afford Afrezza. Sucks. (Female- 57yrs. 165lbs. 5'4") Don't give up! I'm sure you'll get a script for Afrezza if you ask for it and your body will be the proof your doc needs! Best of luck to you on your new journey! Hopefully you get back to the point where you don't need insulin.
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Post by peppy on Apr 7, 2016 16:01:10 GMT -5
First Post, Shareholder, Voyeur of this board and others. Just wanted to share a recent experience. Had my yearly blood work done end of March. Call back from PCP's office (Nurse) message: You have high blood sugar and now are considered Diabetic. Reviewed my blood test results on their "My Chart" online Medical Management Program. Results: Non Fasting Blood Sugar 399. Called back for fasting BS or HbA1c and number was 11.9 Met with my Cleveland Clinic PCP who resides in a large Cleveland Clinic off campus facility in a very large Cleveland suburb. Was given the required speech of what Diabetes is all about and what I need to do. Meeting with Dietician, scheduled for new blood work first of June and placed on 2000 mg of Metformin. Asked my Doctor if he had heard of the new inhaled insulin "Afrezza" he said NO and asked who makes it.... Seeing my appointment was within the time frame of Sanofi handing Afrezza back to MNKD - it was no time to share that information. I just told him there was a new FDA treatment on the market that was inhaled. Fell on DEAF ears. He went on to say that Pfizer had an inhaled insulin that was a big flop and was not an improvement over current insulin therapies. Hence, 2000 mg. of Metformin 1x per day for a grand total with my insurance of $10.00 for 90 Days. Can not be far from the commode room and CAN afford Afrezza. Sucks. (Female- 57yrs. 165lbs. 5'4") I am in shock with that high of a blood sugar 399, metformin was it. Do you like split pea soup? screencast.com/t/pO5aYqUpP8
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Post by LosingMyBullishness on Apr 7, 2016 17:16:18 GMT -5
Problem is that 'inhaled insulin' is connected to exhubera. When there was no sales Rep to educate the endo beforehand than this connection is made the moment the patient mentions it to the endo. And once made it is difficult to change. So mentioning it to the doctor was a disservice to Afrezza. He now has his fixed opinion if he hears about it again.
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Post by LosingMyBullishness on Apr 7, 2016 17:23:34 GMT -5
Problem is that 'inhaled insulin' is connected to exhubera. When there was no sales Rep to educate the endo beforehand than this connection is made the moment the patient mentions it to the endo. And once made it is difficult to change. So mentioning it to the doctor was a disservice to Afrezza. He now has his fixed opinion if he hears about it again. Sorry of this comes out rude. This was not intended. Of course it is great to spread the word. I wanted to point out that exhubera is a bad legacy. I would rather focus on 'ultra rapid' and 'mimicking own pancreas' during first contact to overcome the stigma of exhubera.
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Post by laffs4sale on Apr 7, 2016 19:17:35 GMT -5
Tell him Afrezza lowers A1c 20% in the first six months. He'll understand that. Good luck.
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Post by myocat on Apr 8, 2016 8:30:21 GMT -5
My child Endo doc told me that it takes a lot of tests to get it. I asked what tests, he was uhhhh then changed subject... Anyway, because my child is Monogenic diabetes and the treatment plan is now focus on oral agent. I can understand why he did not bother to get an inhaler. But lacking of the effort or not knowing the drug is bothersome.
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Post by slapshot on Apr 8, 2016 8:38:19 GMT -5
A coworker of mine had a similar experience with his PCP in the Baltimore area a couple of months back... was prescribed Metformin and after I told him about Afrezza he asked about it and the response from his PCP was that they already came out with an inhaled insulin about 10 years ago and it failed then and will fail again this time. The PCP was already familiar with Afrezza, problem was that knowing it was an inhaled insulin was all they needed to know.
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Post by peppy on Apr 8, 2016 8:50:23 GMT -5
First Post, Shareholder, Voyeur of this board and others. Just wanted to share a recent experience. Had my yearly blood work done end of March. Call back from PCP's office (Nurse) message: You have high blood sugar and now are considered Diabetic. Reviewed my blood test results on their "My Chart" online Medical Management Program. Results: Non Fasting Blood Sugar 399. Called back for fasting BS or HbA1c and number was 11.9 Met with my Cleveland Clinic PCP who resides in a large Cleveland Clinic off campus facility in a very large Cleveland suburb. Was given the required speech of what Diabetes is all about and what I need to do. Meeting with Dietician, scheduled for new blood work first of June and placed on 2000 mg of Metformin. Asked my Doctor if he had heard of the new inhaled insulin "Afrezza" he said NO and asked who makes it.... Seeing my appointment was within the time frame of Sanofi handing Afrezza back to MNKD - it was no time to share that information. I just told him there was a new FDA treatment on the market that was inhaled. Fell on DEAF ears. He went on to say that Pfizer had an inhaled insulin that was a big flop and was not an improvement over current insulin therapies. Hence, 2000 mg. of Metformin 1x per day for a grand total with my insurance of $10.00 for 90 Days. Can not be far from the commode room and CAN afford Afrezza. Sucks. (Female- 57yrs. 165lbs. 5'4") you are one smart human being. not many know about Afrezza.
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Post by suebeeee1 on Apr 8, 2016 8:58:46 GMT -5
First Post, Shareholder, Voyeur of this board and others. Just wanted to share a recent experience. Had my yearly blood work done end of March. Call back from PCP's office (Nurse) message: You have high blood sugar and now are considered Diabetic. Reviewed my blood test results on their "My Chart" online Medical Management Program. Results: Non Fasting Blood Sugar 399. Called back for fasting BS or HbA1c and number was 11.9 Met with my Cleveland Clinic PCP who resides in a large Cleveland Clinic off campus facility in a very large Cleveland suburb. Was given the required speech of what Diabetes is all about and what I need to do. Meeting with Dietician, scheduled for new blood work first of June and placed on 2000 mg of Metformin. Asked my Doctor if he had heard of the new inhaled insulin "Afrezza" he said NO and asked who makes it.... Seeing my appointment was within the time frame of Sanofi handing Afrezza back to MNKD - it was no time to share that information. I just told him there was a new FDA treatment on the market that was inhaled. Fell on DEAF ears. He went on to say that Pfizer had an inhaled insulin that was a big flop and was not an improvement over current insulin therapies. Hence, 2000 mg. of Metformin 1x per day for a grand total with my insurance of $10.00 for 90 Days. Can not be far from the commode room and CAN afford Afrezza. Sucks. (Female- 57yrs. 165lbs. 5'4") This is shameful, but clearly indicative of the non-effort by Sanofi to educate doctors. This was the CLEVELAND CLINIC, not some Podunk backwaters doctors office. How could Sanofi have missed educating them? Shameful!
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Post by peppy on Apr 8, 2016 9:03:40 GMT -5
First Post, Shareholder, Voyeur of this board and others. Just wanted to share a recent experience. Had my yearly blood work done end of March. Call back from PCP's office (Nurse) message: You have high blood sugar and now are considered Diabetic. Reviewed my blood test results on their "My Chart" online Medical Management Program. Results: Non Fasting Blood Sugar 399. Called back for fasting BS or HbA1c and number was 11.9 Met with my Cleveland Clinic PCP who resides in a large Cleveland Clinic off campus facility in a very large Cleveland suburb. Was given the required speech of what Diabetes is all about and what I need to do. Meeting with Dietician, scheduled for new blood work first of June and placed on 2000 mg of Metformin. Asked my Doctor if he had heard of the new inhaled insulin "Afrezza" he said NO and asked who makes it.... Seeing my appointment was within the time frame of Sanofi handing Afrezza back to MNKD - it was no time to share that information. I just told him there was a new FDA treatment on the market that was inhaled. Fell on DEAF ears. He went on to say that Pfizer had an inhaled insulin that was a big flop and was not an improvement over current insulin therapies. Hence, 2000 mg. of Metformin 1x per day for a grand total with my insurance of $10.00 for 90 Days. Can not be far from the commode room and CAN afford Afrezza. Sucks. (Female- 57yrs. 165lbs. 5'4") This is shameful, but clearly indicative of the non-effort by Sanofi to educate doctors. This was the CLEVELAND CLINIC, not some Podunk backwaters doctors office. How could Sanofi have missed educating them? Shameful! remember the educational article put out by Cleveland clinic nursing. The wrong inhaler pictured. They know about afrezza. we had a whole thread on it. health.clevelandclinic.org/2015/10/insulin-inhaler-new-option-diabetes/
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Post by bradleysbest on Apr 8, 2016 9:06:54 GMT -5
Pricing needs to be addressed first then educating these pre-historic doctors who refuse to seek new & improved treatments! #frustrating
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Post by sweedee79 on Apr 8, 2016 10:24:02 GMT -5
First Post, Shareholder, Voyeur of this board and others. Just wanted to share a recent experience. Had my yearly blood work done end of March. Call back from PCP's office (Nurse) message: You have high blood sugar and now are considered Diabetic. Reviewed my blood test results on their "My Chart" online Medical Management Program. Results: Non Fasting Blood Sugar 399. Called back for fasting BS or HbA1c and number was 11.9 Met with my Cleveland Clinic PCP who resides in a large Cleveland Clinic off campus facility in a very large Cleveland suburb. Was given the required speech of what Diabetes is all about and what I need to do. Meeting with Dietician, scheduled for new blood work first of June and placed on 2000 mg of Metformin. Asked my Doctor if he had heard of the new inhaled insulin "Afrezza" he said NO and asked who makes it.... Seeing my appointment was within the time frame of Sanofi handing Afrezza back to MNKD - it was no time to share that information. I just told him there was a new FDA treatment on the market that was inhaled. Fell on DEAF ears. He went on to say that Pfizer had an inhaled insulin that was a big flop and was not an improvement over current insulin therapies. Hence, 2000 mg. of Metformin 1x per day for a grand total with my insurance of $10.00 for 90 Days. Can not be far from the commode room and CAN afford Afrezza. Sucks. (Female- 57yrs. 165lbs. 5'4") Don't give up .. be assertive with your doc... educate him/her .. be strong .. be confident.. if this doc wont give you Afrezza than look for a new doc who will , don't settle for metformin.. Find a doc who has more respect for the patient.. Ive gotten the "deaf ear" treatment too... or tell them to "kiss my $%#@*!!!!!" like my dad does.... LOL You will get it .. there are some nice people who listen and care .. If we can get it in the Fargo ND area .. you can too .. and once you do you will never be sorry that you tried it ..
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Post by agusta on Apr 8, 2016 14:26:32 GMT -5
Stevil, My PCP also said that after a certain age the pancreas looses 3% of it's function every year. I would think Afrezza would be even more important with how it helps the pancreas. Thanks for your and everyone's kind words.
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Post by curiousdoc on Apr 8, 2016 14:46:43 GMT -5
I don't know what is more disturbing... that your doctor gave you monotherapy of Metformin for an A1C of almost 12 or that he works at the Cleveland Clinic. That insulin is not far away from levels that could be dangerous. Granted it was not fasting, but for instance: www.diabetes.org/living-with-diabetes/complications/hyperosmolar-hyperglycemic.html?referrer=https://www.google.com/They use 600 as a cutoff but I have had personal experience with patients in the 400s. Your average blood glucose level for the past 3 months has been around 300. Until you can get back to your doc or see a new one for better treatment, please severely limit your carbohydrate intake of all kinds.
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