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Post by nylefty on Apr 11, 2016 10:12:33 GMT -5
Peppy, Just went back and re -read the article from the Cleveland Clinic Nursing team. OMG, these two work for Lennon Diabetes Ctr @ The Stephanie Tubbs Jones Health Ctr. Anyone who lives in Cleveland and visits the Cleveland Clinic knows this is just a small off shoot of the CC. A light bulb just went off. People here reading that article are thinking a major presentation was made to the CC nurses and that is NOT the case. No presentation that I am aware of has been made to the doctors, PCP's & Endo's. NO ONE REALLY KNOWS ABOUT Afrezza. No wonder Sam's list only has one OHIO doctor listed who is NOT part of the Cleveland Clinic. We need a major player (partner) to educate doctors and some huge DTC advertising YESTERDAY. We as investors and myself now as a new diabetic have been sand bagged. Logic tells me that the Cleveland Clinic nurse who is on Afrezza and has had such good results probably got her Afrezza prescription from a Cleveland Clinic doctor. And I saw nothing in the article that led me to believe that "a major presentation" was made to the CC nurses. But the fact remains that the nurses/diabetes educators at a Cleveland Clinic diabetes center are enthusiastic about Afrezza and know at least one doctor who's prescribing it. As for Sam's list, it's far from complete since logic also tells me that most Afrezza users are unaware of Sam and his list and therefore aren't reporting their doctors to him. |
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Post by agusta on Apr 11, 2016 13:26:59 GMT -5
Just returned from the Cleveland Clinic meeting with Diabetic specialist for Diabetes. Prior to seeing her I went to the pharmacy and asked the pharmacist if they from this (large) location have dispensed "Afrezza" answer NO. Was not aware of it but it was in the computer. Was told if I had a RX they could order it. I aked the Diabetic Dietician I was meeting with if she was aware of the new inhaled insulin. NO was the answer and she said what about it. I told her a few things, rapid acting, improved H1bac etc.... She said rapid acting was no big deal and most people would still need a 1x per day needle. So.....complete darkness on this product at the CC in a suburb of Cleveland, Ohio. Just thought I would share.
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Post by lakon on Apr 13, 2016 11:48:21 GMT -5
First Post, Shareholder, Voyeur of this board and others. Just wanted to share a recent experience. Had my yearly blood work done end of March. Call back from PCP's office (Nurse) message: You have high blood sugar and now are considered Diabetic. Reviewed my blood test results on their "My Chart" online Medical Management Program. Results: Non Fasting Blood Sugar 399. Called back for fasting BS or HbA1c and number was 11.9 Met with my Cleveland Clinic PCP who resides in a large Cleveland Clinic off campus facility in a very large Cleveland suburb. Was given the required speech of what Diabetes is all about and what I need to do. Meeting with Dietician, scheduled for new blood work first of June and placed on 2000 mg of Metformin. Asked my Doctor if he had heard of the new inhaled insulin "Afrezza" he said NO and asked who makes it.... Seeing my appointment was within the time frame of Sanofi handing Afrezza back to MNKD - it was no time to share that information. I just told him there was a new FDA treatment on the market that was inhaled. Fell on DEAF ears. He went on to say that Pfizer had an inhaled insulin that was a big flop and was not an improvement over current insulin therapies. Hence, 2000 mg. of Metformin 1x per day for a grand total with my insurance of $10.00 for 90 Days. Can not be far from the commode room and CAN afford Afrezza. Sucks. (Female- 57yrs. 165lbs. 5'4") Bear with me because I can get a bit heated when it comes to bad medicine. You need to be assertive, even aggressive, to make your point. The doctor works for you if you can afford it. Unfortunately, this is less true if you cannot afford it, but we are discussing your situation. If you are not getting the help that you deserve, get another doctor [2nd opinion], and then, FIRE your DOCTOR. Make sure HE/SHE knows WHY. No offense to the physicians on here, but bad doctors are a dime a dozen. Find a good one and pay him well. Get good treatment that you want. It's your health. It's your life. Take charge! Clinics, like VDEX, are an answer with patient awareness, but it will take time. Interestingly enough, agusta makes a strong case for why VDEX should do well if they, MNKD and PWD build awareness of what's available and possible. "Insanity: doing the same thing over and over again and expecting different results." -- Albert Einstein Even the bad [lazy or overworked] doctors will come around, but you should not wait, based on your subsequent posts. |
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Post by sportsrancho on Apr 13, 2016 12:31:49 GMT -5
lakon, if I could give your post 10 thumbs up I would! Just one more thing: Go back and show the doctor your results!
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Post by LosingMyBullishness on Apr 13, 2016 18:13:38 GMT -5
Just returned from the Cleveland Clinic meeting with Diabetic specialist for Diabetes. Prior to seeing her I went to the pharmacy and asked the pharmacist if they from this (large) location have dispensed "Afrezza" answer NO. Was not aware of it but it was in the computer. Was told if I had a RX they could order it. I aked the Diabetic Dietician I was meeting with if she was aware of the new inhaled insulin. NO was the answer and she said what about it. I told her a few things, rapid acting, improved H1bac etc.... She said rapid acting was no big deal and most people would still need a 1x per day needle. So.....complete darkness on this product at the CC in a suburb of Cleveland, Ohio. Just thought I would share. Agusta, You are doing an excellent job. Such pioneering takes a lot of energy and termination. Thank you! |
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Post by od on Apr 13, 2016 18:21:26 GMT -5
First Post, Shareholder, Voyeur of this board and others. Just wanted to share a recent experience. Had my yearly blood work done end of March. Call back from PCP's office (Nurse) message: You have high blood sugar and now are considered Diabetic. Reviewed my blood test results on their "My Chart" online Medical Management Program. Results: Non Fasting Blood Sugar 399. Called back for fasting BS or HbA1c and number was 11.9 Met with my Cleveland Clinic PCP who resides in a large Cleveland Clinic off campus facility in a very large Cleveland suburb. Was given the required speech of what Diabetes is all about and what I need to do. Meeting with Dietician, scheduled for new blood work first of June and placed on 2000 mg of Metformin. Asked my Doctor if he had heard of the new inhaled insulin "Afrezza" he said NO and asked who makes it.... Seeing my appointment was within the time frame of Sanofi handing Afrezza back to MNKD - it was no time to share that information. I just told him there was a new FDA treatment on the market that was inhaled. Fell on DEAF ears. He went on to say that Pfizer had an inhaled insulin that was a big flop and was not an improvement over current insulin therapies. Hence, 2000 mg. of Metformin 1x per day for a grand total with my insurance of $10.00 for 90 Days. Can not be far from the commode room and CAN afford Afrezza. Sucks. (Female- 57yrs. 165lbs. 5'4") Bear with me because I can get a bit heated when it comes to bad medicine. You need to be assertive, even aggressive, to make your point. The doctor works for you if you can afford it. Unfortunately, this is less true if you cannot afford it, but we are discussing your situation. If you are not getting the help that you deserve, get another doctor [2nd opinion], and then, FIRE your DOCTOR. Make sure HE/SHE knows WHY. No offense to the physicians on here, but bad doctors are a dime a dozen. Find a good one and pay him well. Get good treatment that you want. It's your health. It's your life. Take charge! Clinics, like VDEX, are an answer with patient awareness, but it will take time. Interestingly enough, agusta makes a strong case for why VDEX should do well if they, MNKD and PWD build awareness of what's available and possible. "Insanity: doing the same thing over and over again and expecting different results." -- Albert Einstein Even the bad [lazy or overworked] doctors will come around, but you should not wait, based on your subsequent posts. "... but bad doctors are a dime a dozen." Lakon, I don't disagree, but, if a provider is not aware of Afrezza he/she are 'bad'? |
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Post by sportsrancho on Apr 13, 2016 18:32:02 GMT -5
Bear with me because I can get a bit heated when it comes to bad medicine. You need to be assertive, even aggressive, to make your point. The doctor works for you if you can afford it. Unfortunately, this is less true if you cannot afford it, but we are discussing your situation. If you are not getting the help that you deserve, get another doctor [2nd opinion], and then, FIRE your DOCTOR. Make sure HE/SHE knows WHY. No offense to the physicians on here, but bad doctors are a dime a dozen. Find a good one and pay him well. Get good treatment that you want. It's your health. It's your life. Take charge! Clinics, like VDEX, are an answer with patient awareness, but it will take time. Interestingly enough, agusta makes a strong case for why VDEX should do well if they, MNKD and PWD build awareness of what's available and possible. "Insanity: doing the same thing over and over again and expecting different results." -- Albert Einstein Even the bad [lazy or overworked] doctors will come around, but you should not wait, based on your subsequent posts. "... but bad doctors are a dime a dozen." Lakon, I don't disagree, but, if a provider is not aware of Afrezza he/she are 'bad'? The doctor I work with did not know about Afrezza. And knew the other drug flopped. But was excited and wanted to know all about it, and asked about the dosing. He said, this will be huge! We've been waiting for this for 20 years! A year later the SNY reps showed up and threw some flyers on his front counter:-(. |
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Post by od on Apr 13, 2016 18:36:10 GMT -5
"... but bad doctors are a dime a dozen." Lakon, I don't disagree, but, if a provider is not aware of Afrezza he/she are 'bad'? The doctor I work with did not know about Afrezza. And knew the other drug flopped. But was excited and wanted to know all about it, and asked about the dosing. He said, this will be huge! We've been waiting for this for 20 years! A year later the SNY reps showed up and threw some flyers on his front counter:-(. SR, my comment was not about SNY's effort, if was about Lakon's comment about bad providers. |
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Post by sportsrancho on Apr 13, 2016 19:00:23 GMT -5
The doctor I work with did not know about Afrezza. And knew the other drug flopped. But was excited and wanted to know all about it, and asked about the dosing. He said, this will be huge! We've been waiting for this for 20 years! A year later the SNY reps showed up and threw some flyers on his front counter:-(. SR, my comment was not about SNY's effort, if was about Lakon's comment about bad providers. I know. My point was that this doctor was willing to look into it. Asked all about it. Did not dismiss it! Does this make the ones that do dismiss it bad? You decide. |
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Post by od on Apr 13, 2016 19:07:13 GMT -5
SR, my comment was not about SNY's effort, if was about Lwakon's comment about bad providers. I know. My point was that this doctor was willing to look into it. Asked all about it. Did not dismiss it! Does this make the ones that do dismiss it bad? You decide. Apologies, I missed where you were going. I obsess on your question. Is a provider who does not embrace Afrezza a bad provider? Wow. No matter what shareholders want to believe, healthcare is not one-size-fits-all. That said, I would like to believe Afrezza will (should) become first-line. |
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Post by anderson on Apr 13, 2016 19:25:54 GMT -5
I know. My point was that this doctor was willing to look into it. Asked all about it. Did not dismiss it! Does this make the ones that do dismiss it bad? You decide. Apologies, I missed where you were going. I obsess on your question. Is a provider who does not embrace Afrezza a bad provider? Wow. No matter what shareholders want to believe, healthcare is not one-size-fits-all. That said, I would like to believe Afrezza will (should) become first-line. I would say a doctor who doesnt even acknowledge Afrezza is an option because Exubera failed is uneducated and very opinionated, and sound unwilling to work with a patient to address their concerns. So is a disinterested doctor just being lazy, yes. Maybe they dont have the time, too many patients. Does this make them a bad doctor, well at least for that one patient they are. If I am paying for a service and not getting what I expected you can be sure I would change service providers. So the answer to your question "Is a provider who does not embrace Afrezza a bad provider?" is YES. For those who want Afrezza as an option they are a bad provider. |
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Post by curiousdoc on Apr 13, 2016 19:32:13 GMT -5
Lakon, as a physician I couldn't agree more. One of the greatest things I learned in med school and residency was how many "not so great" doctors there are out there. DO not settle for your first pick or whoever you were referred to if it isn't a good fit. While I would not expect every doctor to welcome Afrezza with open arms until there is publishable good data behind it, merely dismissing a patient's inquiry without giving it any credence is unprofessional.
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Post by od on Apr 13, 2016 19:54:03 GMT -5
Apologies, I missed where you were going. I obsess on your question. Is a provider who does not embrace Afrezza a bad provider? Wow. No matter what shareholders want to believe, healthcare is not one-size-fits-all. That said, I would like to believe Afrezza will (should) become first-line. I would say a doctor who doesnt even acknowledge Afrezza is an option because Exubera failed is uneducated and very opinionated, and sound unwilling to work with a patient to address their concerns. So is a disinterested doctor just being lazy, yes. Maybe they dont have the time, too many patients. Does this make them a bad doctor, well at least for that one patient they are. If I am paying for a service and not getting what I expected you can be sure I would change service providers. So the answer to your question "Is a provider who does not embrace Afrezza a bad provider?" is YES. For those who want Afrezza as an option they are a bad provider. Anderson, I agree that a provider who uses Exubera as reference when considering appropriate care for a patient is uneducated (perhaps not his/her doing) and/or not providing meaningful health care (I believe exquisite health care should be the norm). I have always believed that a patient whose questions/interests are dismissed by a provider should look elsewhere. |
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Post by nylefty on Apr 13, 2016 20:04:28 GMT -5
Speaking of Exubera, I was re-reading a 2009 interview with Al Mann in which the first question was about that failed drug: DM) Mr. Mann, let's jump right in. How do you expect Afrezza to succeed in the aftermath of Exubera?
AM) Exubera was very inconvenient, it had absolutely no benefits clinically, and it was not as good as the other treatments on the market. Comparing Afrezza to Exubera is like saying that Rezulin — a bad drug that failed — is the same as Actos — a good drug with good outcomes.
What we have is a different form of insulin (from Exubera). It's powder so we deliver it into the lungs. But that's an advantage because it's delivered in the arterial blood system instead of the capillary system. We're actually delivering insulin monomers (molecules). Nobody ever did that before.
It behaves much like normal pancreatic insulin does. Normal people don't get hypos, and people taking Afrezza don't either, even if they dose and don't eat.
www.healthline.com/diabetesmine/the-truth-about-afresa-inhalable-insulin-a-chat-with-al-mann
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Post by bradleysbest on Apr 13, 2016 21:25:21 GMT -5
Great post but it continues to baffle me regarding the early sales results so far.
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