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Post by straightly on Apr 9, 2016 21:56:57 GMT -5
I hope someone e-mails Matt this thread! If somebody actually does, please also remind him to add an email address, or a comment section to their "contact us" page. All they got are phone numbers.
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Post by sportsrancho on Apr 10, 2016 7:21:26 GMT -5
I hope someone e-mails Matt this thread! If somebody actually does, please also remind him to add an email address, or a comment section to their "contact us" page. All they got are phone numbers. They do have a FB and Twitter account, and are busy interacting with shareholders:-) I'm sure Matts aware of all the problems, but reading it first hand, it's just heartbreaking what people have to go though! ( When there is a better way!) It's must be so hard having it dropped in your life that you are now a diabetic and to know about Afrezza and not be able to get it!
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Post by agusta on Apr 10, 2016 12:21:29 GMT -5
Emailed the Cleveland Clinic this morning 4/10 - Main Campus, asking for list of providers who are currently prescribing Afrezza. Let's see what response I receive back.
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Deleted
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Post by Deleted on Apr 10, 2016 13:57:41 GMT -5
Emailed the Cleveland Clinic this morning 4/10 - Main Campus, asking for list of providers who are currently prescribing Afrezza. Let's see what response I receive back. There might not be any delegates left to vote for Afrezza! Novolog, Humalog and Apidra got them all. Brokered convention?
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Post by Deleted on Apr 10, 2016 14:50:00 GMT -5
Emailed the Cleveland Clinic this morning 4/10 - Main Campus, asking for list of providers who are currently prescribing Afrezza. Let's see what response I receive back. That would be tough to gather the info you requested unless they have some one in IT pull that from their EMR
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Post by agedhippie on Apr 10, 2016 15:37:31 GMT -5
Emailed the Cleveland Clinic this morning 4/10 - Main Campus, asking for list of providers who are currently prescribing Afrezza. Let's see what response I receive back. I'm really curious to see how they respond (if at all). I think they will politely say that they do not provide that information. It doesn't make much difference if you are on nothing at the moment they have to try Metformin first. If that fails they will put you on a basal insulin, if that fails they will add mealtime insulin and at that point you may get Afrezza. There is a process for this and they will follow it.
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Post by sportsrancho on Apr 10, 2016 16:45:54 GMT -5
Emailed the Cleveland Clinic this morning 4/10 - Main Campus, asking for list of providers who are currently prescribing Afrezza. Let's see what response I receive back. I'm really curious to see how they respond (if at all). I think they will politely say that they do not provide that information. It doesn't make much difference if you are on nothing at the moment they have to try Metformin first. If that fails they will put you on a basal insulin, if that fails they will add mealtime insulin and at that point you may get Afrezza. There is a process for this and they will follow it. That is not how it works for everyone! (The people who ask for Afrezza and will not go home with out it.) I know 4 personally who would not take no for a answer! They believe that their doctors work for them. And have gone back and blown their doc's away with their numbers:-))
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Post by nylefty on Apr 10, 2016 16:58:02 GMT -5
Emailed the Cleveland Clinic this morning 4/10 - Main Campus, asking for list of providers who are currently prescribing Afrezza. Let's see what response I receive back. I suspect you'd have more luck contacting the Cleveland Clinic nurse/diabetes educator who's on Afrezza herself and wrote that extremely positive article about it that was posted on the Cleveland Clinic website. health.clevelandclinic.org/2015/10/insulin-inhaler-new-option-diabetes/
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Post by agusta on Apr 10, 2016 17:12:34 GMT -5
Emailed the Cleveland Clinic this morning 4/10 - Main Campus, asking for list of providers who are currently prescribing Afrezza. Let's see what response I receive back. I suspect you'd have more luck contacting the Cleveland Clinic nurse/diabetes educator who's on Afrezza herself and wrote that extremely positive article about it that was posted on the Cleveland Clinic website. health.clevelandclinic.org/2015/10/insulin-inhaler-new-option-diabetes/ Agree and will try to contact. Have meeting with Dietician tomorrow 4/11. Going to check with the Pharmacy at this location (located with PCP office) and see if they can tell me if 1.) They can order or have dispenced Afrezza from this location. 2.) Has the Endo department written any RX for Afrezza? Will see how far I get.
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Post by straightly on Apr 10, 2016 19:19:23 GMT -5
Emailed the Cleveland Clinic this morning 4/10 - Main Campus, asking for list of providers who are currently prescribing Afrezza. Let's see what response I receive back. I suspect you'd have more luck contacting the Cleveland Clinic nurse/diabetes educator who's on Afrezza herself and wrote that extremely positive article about it that was posted on the Cleveland Clinic website. health.clevelandclinic.org/2015/10/insulin-inhaler-new-option-diabetes/ I wonder if anybody know of any reporters who might want to pursue this interesting story: Why a new drug like Afrezza, FDA approved, praised by everybody who used it, is not available to patients? Even if we discount Sinofi, this situation is still intriguing, isn't it? Isn't it the doctor's responsibility to give the patient the best treatment? If the patient's A1C is 12, borderline being dangerous, can the doctor excuse himself by "following protocol" if he knows about the better alternative? Can the doctors at Cleveland Clinic excuse themselves claiming ignorance to Afrezza, given the news flash at this facility?
Anyway I see it, it would be a news worthy report, which, unfortunately, will take some work to put together.
"in October 2015, ... made news...right here at the Cleveland Clinic. But half a year later, a patient desperately wanted to lower her A1C level, found her requests fall on deaf ears while her A1C level is damaging her health. What happened or what did not happen? ....From ...station ... reports"
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Post by agedhippie on Apr 10, 2016 21:52:50 GMT -5
I wonder if anybody know of any reporters who might want to pursue this interesting story: Why a new drug like Afrezza, FDA approved, praised by everybody who used it, is not available to patients? Even if we discount Sinofi, this situation is still intriguing, isn't it? Isn't it the doctor's responsibility to give the patient the best treatment? If the patient's A1C is 12, borderline being dangerous, can the doctor excuse himself by "following protocol" if he knows about the better alternative? Can the doctors at Cleveland Clinic excuse themselves claiming ignorance to Afrezza, given the news flash at this facility? Anyway I see it, it would be a news worthy report, which, unfortunately, will take some work to put together. "in October 2015, ... made news...right here at the Cleveland Clinic. But half a year later, a patient desperately wanted to lower her A1C level, found her requests fall on deaf ears while her A1C level is damaging her health. What happened or what did not happen? ....From ...station ... reports" I do not know why people keep asking this but the answer doesn't change. There is an established standard of care for the treatment of diabetes which is viewed as the best treatment and that is what doctors follow. The standard of care is evidence based represents the best practice based on evidence (trials and studies). So in answer to the news report - The doctors follow medical best practice and lowered her A1c. Yes they did it without using Afrezza as they have done for decades. This is not rocket science. Entirely separately - if I was that new diabetic and my A1c had just jumped from a low 6 to 12 I would want to know if they thought this might be Type 1 because depending on the time interval of the tests it is definitely possible. Do a home test for ketones and if that is positive absolutely insist on c-peptide and antibody tests. Now this absolutely is an area doctors screw up in as they are biased to think adults are always Type 2.
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mannitrust
Newbie
One day we will look back and say: what was all that poking about?
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Post by mannitrust on Apr 10, 2016 22:16:54 GMT -5
My mother, a pre-diabetic, currently uses Metaformin. When she was in Florida her PCP told her Exubera was a failure and no longer in the market. Yes, she asked for Afrezza and not Exubera. When she moved to NY, she asked her new doc for Afrezza and was told that was only for folks that use needles. Now she switched docs and asked for Afrezza again and was told that wasn't any good and she should continue using Metaformin. She is looking for an alternative because she currently has a bad liver. The doctors are stubborn as hell and definitely there is a defiance against it.
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Post by straightly on Apr 11, 2016 1:20:00 GMT -5
I wonder if anybody know of any reporters who might want to pursue this interesting story: Why a new drug like Afrezza, FDA approved, praised by everybody who used it, is not available to patients? Even if we discount Sinofi, this situation is still intriguing, isn't it? Isn't it the doctor's responsibility to give the patient the best treatment? If the patient's A1C is 12, borderline being dangerous, can the doctor excuse himself by "following protocol" if he knows about the better alternative? Can the doctors at Cleveland Clinic excuse themselves claiming ignorance to Afrezza, given the news flash at this facility? Anyway I see it, it would be a news worthy report, which, unfortunately, will take some work to put together. "in October 2015, ... made news...right here at the Cleveland Clinic. But half a year later, a patient desperately wanted to lower her A1C level, found her requests fall on deaf ears while her A1C level is damaging her health. What happened or what did not happen? ....From ...station ... reports" I do not know why people keep asking this but the answer doesn't change. There is an established standard of care for the treatment of diabetes which is viewed as the best treatment and that is what doctors follow. The standard of care is evidence based represents the best practice based on evidence (trials and studies). So in answer to the news report - The doctors follow medical best practice and lowered her A1c. Yes they did it without using Afrezza as they have done for decades. This is not rocket science. Entirely separately - if I was that new diabetic and my A1c had just jumped from a low 6 to 12 I would want to know if they thought this might be Type 1 because depending on the time interval of the tests it is definitely possible. Do a home test for ketones and if that is positive absolutely insist on c-peptide and antibody tests. Now this absolutely is an area doctors screw up in as they are biased to think adults are always Type 2. "I do not know why people keep asking this but the answer doesn't change...The doctors follow medical best practice and lowered her A1c. Yes they did it without using Afrezza as they have done for decades."
Did you, however, noticed that THIS patient, following "medical best practice", DID NOT lowered her A1C? My question is exactly that: if the doctor follows the "Best Practice", did not see the expected results, is he liable to consider alternative? In other words, is the doctor free of liability just because he followed "best practice"? Or push this further, if the doctor knows of a better alternative, is he liable to consider it if it were not "Best Practice"? If a patients treated with best practices but stuck with a1c of 12, is the doctor free of liability, not trying Afrezza?
The reason I am asking, and sincerely wanted to have an answer, is that THIS is the key here to MAKE/Educate a doctor to prescribe Afrezza? Without knowing this, it will be very difficult to convince a doctor to prescribe Afrezza.
The way to get a doctor to prescribe Afrezza, the only way I can discern as an observer, is for excited patients to ask for Afrezza, refuse to take a no for an answer, and then go back to the doctor with the excellent results. Please enlighten me of other paths and I will be very happy to know that as a suffering bag holder.
If there is not any others, then MNKD's building a "sales force" might be barking at the wrong tree.
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Post by agusta on Apr 11, 2016 6:42:09 GMT -5
Peppy, Just went back and re -read the article from the Cleveland Clinic Nursing team. OMG, these two work for Lennon Diabetes Ctr @ The Stephanie Tubbs Jones Health Ctr. Anyone who lives in Cleveland and visits the Cleveland Clinic knows this is just a small off shoot of the CC. A light bulb just went off. People here reading that article are thinking a major presentation was made to the CC nurses and that is NOT the case. No presentation that I am aware of has been made to the doctors, PCP's & Endo's. NO ONE REALLY KNOWS ABOUT Afrezza. No wonder Sam's list only has one OHIO doctor listed who is NOT part of the Cleveland Clinic. We need a major player (partner) to educate doctors and some huge DTC advertising YESTERDAY. We as investors and myself now as a new diabetic have been sand bagged.
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Post by agedhippie on Apr 11, 2016 8:31:19 GMT -5
"I do not know why people keep asking this but the answer doesn't change...The doctors follow medical best practice and lowered her A1c. Yes they did it without using Afrezza as they have done for decades." Did you, however, noticed that THIS patient, following "medical best practice", DID NOT lowered her A1C? My question is exactly that: if the doctor follows the "Best Practice", did not see the expected results, is he liable to consider alternative? In other words, is the doctor free of liability just because he followed "best practice"? Or push this further, if the doctor knows of a better alternative, is he liable to consider it if it were not "Best Practice"? If a patients treated with best practices but stuck with a1c of 12, is the doctor free of liability, not trying Afrezza?
The reason I am asking, and sincerely wanted to have an answer, is that THIS is the key here to MAKE/Educate a doctor to prescribe Afrezza? Without knowing this, it will be very difficult to convince a doctor to prescribe Afrezza.
The way to get a doctor to prescribe Afrezza, the only way I can discern as an observer, is for excited patients to ask for Afrezza, refuse to take a no for an answer, and then go back to the doctor with the excellent results. Please enlighten me of other paths and I will be very happy to know that as a suffering bag holder.
If there is not any others, then MNKD's building a "sales force" might be barking at the wrong tree. The answer is that the doctor is following the correct procedure. The patient did not respond to a low dose, increase the dose and see if they respond to that. If there is no response to that then they will consider alternatives (including the possibility that the patient may not be Type 2 at all). Doctors follow standards of care because they are the gold standard for treatment in that they have provable evidence supporting them. Doctors can and do deviate for example Type 1 diabetics are now starting to be given metformin whereas previously it was limited to Type 2 however my endo had been giving it to us for some time. There was a malpractice risk to him in doing that (it introduces some risks to the patient). The way to sell Afrezza is exactly the same way as drugs are always sold in the US - secure PBM support, then get the endos on board and the doctors will follow the endos. Trying to do it via the patients will be long and slow because doctors cannot be forced to prescribe as has been seen.
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