|
|
Post by babaoriley on Mar 21, 2021 16:39:51 GMT -5
Ditto!! Such a sad story. |
|
|
|
Post by sportsrancho on Mar 21, 2021 17:29:39 GMT -5
“This is why we exist. WE WILL TURN THE TIDE IN THIS DISEASE. It hurts me every tine I hear a story like this bc it doesn’t need to be. To his point about patients responsibility, I agree to a point. First blaming the patients accomplished nothing except making doctors feel better and second, I wouldn’t be compliant with the traditional protocol either. It’s lousy.
Side point: diabetes is labeled a “progressive disease.” Uh bullshit. It only progresses bc the care is poor. There’s no inherent reason it has to progress.”
~ William McCullough, CEO Vdex Diabetes
|
|
|
|
Post by peppy on Mar 21, 2021 18:55:30 GMT -5
This weekend my father-in-law is in the hospital losing his battle. Type 2 for the last 25 years, he's been riding blood sugars around 10 like way too many people. Shit his pants taking Metformin back in the day but it was cheap. Several different pills next. Then shots, sores, hypos, etc. He went in for just some toes to be amputated due to non healing diabetic foot ulcers. As a Rad Tech., I can tell you I X-ray too many patients for these and absolutely cringe to think it might be preventable. Al Mann thought so. Over the course of the week, this man, not yet 70, has had not one entire leg, but two legs amputated and is in the ICU fighting infection and barely holding on. This, and many other not so nice scenarios play out if you do not get your sugars under control. The patient HAS to take some responsibility for their own health, yes, but I also don't believe this point is made firmly enough to the public consciousness from public health prescribers to doctors to diabetes specialists alike. Whatever needs to take place to get diabetics in a healthy range, needs to happen. I wish you and all the wonderful people who struggle with this, much better success in getting much better care before the bad shows up. Sorry to be such a downer but I thought this story was applicable here. I have become jaded. Many vehicles and homes are bought under this standard of care. Such a silent dis ease. Fingers can be pointed. How many people in society know subq insulin analogs allow blood glucose levels to raise for two hours before taking Blood glucose levels down? Prior to CGM how could people know? |
|
|
|
Post by radgray68 on Mar 26, 2021 11:46:24 GMT -5
Diabetes just claimed yet another life. My father in law passed away yesterday due complications arising from surgery for diabetic foot ulcers. We are so sad here we haven't the energy to even get mad. I've read that diabetes takes 10 years off a person's life. It sure seems true in this case. That won't change until the standard of care changes. Do you hear that FDA? Fail!
Anybody with diabetes in the family, hug them, love them, and please keep pushing for better care.
|
|
|
|
Post by hellodolly on Mar 26, 2021 14:37:40 GMT -5
radgray68 sorry to hear the terrible news. I went for my annual physical today and spoke with the Nurse Practitioner. I asked her if she had ever heard of "Afrezza the ultra-fast, meal time INHALED insulin" and she said "yes". I said that was awesome when she instantly replied, "Have they done anything with all of the mildew issues with their nebulizer?" SMFH! I told her that was Exubera, not Afrezza and I showed her a picture of the cricket. She was shocked (in a positive way) when I corrected her by showing her the picture. Mike is going to keep beating down the doors, until the professionals get this right.
|
|
|
|
Post by radgray68 on Mar 26, 2021 14:48:55 GMT -5
I blame the FDA but I wonder what’s happened to all the money going to the ADA as well. 80% of patients are failing to reach even 7. Seems the ADA is a waste when I look at the results.
Another thought on the FDA: To not include CGM in ALL clinical trials, especially one as important as the upcoming pediatrics, is shameful. IMO
Show them MC
|
|
|
|
Post by liane on Mar 26, 2021 17:14:06 GMT -5
radgray68 - I'm so very sorry for your loss. Such a senseless and treatable disease - if only the medical industry would wake up. My deepest sympathies to you and all your family.
|
|
|
|
Post by od on Mar 27, 2021 13:39:00 GMT -5
radgray68 sorry to hear the terrible news. I went for my annual physical today and spoke with the Nurse Practitioner. I asked her if she had ever heard of "Afrezza the ultra-fast, meal time INHALED insulin" and she said "yes". I said that was awesome when she instantly replied, "Have they done anything with all of the mildew issues with their nebulizer?" SMFH! I told her that was Exubera, not Afrezza and I showed her a picture of the cricket. She was shocked (in a positive way) when I corrected her by showing her the picture. Mike is going to keep beating down the doors, until the professionals get this right. Is it Professionals or MannKind (and the company's agencies) that need to get this right? How come industry can introduce me-too medications and motivate fast and significant prescribing patterns? Yes, Afrezza's introduction was botched, in large part due to lack of pre-launch blocking and tackling tactics, but there has been plenty of time to catch-up and find messages that resonate with prescribers. |
|
|
|
Post by hellodolly on Mar 27, 2021 17:00:54 GMT -5
radgray68 sorry to hear the terrible news. I went for my annual physical today and spoke with the Nurse Practitioner. I asked her if she had ever heard of "Afrezza the ultra-fast, meal time INHALED insulin" and she said "yes". I said that was awesome when she instantly replied, "Have they done anything with all of the mildew issues with their nebulizer?" SMFH! I told her that was Exubera, not Afrezza and I showed her a picture of the cricket. She was shocked (in a positive way) when I corrected her by showing her the picture. Mike is going to keep beating down the doors, until the professionals get this right. Is it Professionals or MannKind (and the company's agencies) that need to get this right? How come industry can introduce me-too medications and motivate fast and significant prescribing patterns? Yes, Afrezza's introduction was botched, in large part due to lack of pre-launch blocking and tackling tactics, but there has been plenty of time to catch-up and find messages that resonate with prescribers. Well, I can only speak anecdotally about medical professionals. She heard "Exubera" rather than Afrezza. It's an uphill battle on a small budget but, sooner or later...somewhere, somehow and someplace this will get the recognition it deserves. |
|
|
|
Post by olebob1 on Mar 27, 2021 17:18:11 GMT -5
Is it Professionals or MannKind (and the company's agencies) that need to get this right? How come industry can introduce me-too medications and motivate fast and significant prescribing patterns? Yes, Afrezza's introduction was botched, in large part due to lack of pre-launch blocking and tackling tactics, but there has been plenty of time to catch-up and find messages that resonate with prescribers. Well, I can only speak anecdotally about medical professionals. She heard "Exubera" rather than Afrezza. It's an uphill battle on a small budget but, sooner or later...somewhere, somehow and someplace this will get the recognition it deserves. I just had my annual in home visit from Humana's medical professional. She asked me if I had diabetes. I said no my A1C is usually around 5.3. She thought that was great. Then I asked her if she had ever heard of Afrezza. She looked at me with a blank face and said what is Afrezza. I gave her a little sales pitch and asked her to look it up. I am always amazed that so many are not aware of Afrezza. I do believe that pediatric approval will help a great deal. Can't wait! |
|
