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Post by sportsrancho on Jan 10, 2022 9:08:04 GMT -5
That’s not possible do you think the moderators are stupid🤣 I’ll assume Stanley is Stanley and sincere until there is information to the contrary. The moderators are not stupid, but I also don’t think the moderators have any magic that prevents a person from having more than one Proboard account. I’ve not tested this theory, but my guess is it would not be difficult. They have tools that keep that from happening almost 100% of the time.. believe me I know people that have tried and they are banned for life. They still can’t get back on. Credibility is one of the most important things a person can possess. We don’t have to pretend to be somebody else, we can see say how we feel here. Very thankful for their hard work. I’ll spell it out for you… I’ve had many people over the years email me. “Please can you help me get back on Pro-Boards I got banned” my question, why was that. “ I was trying to create another account so that I could have two identities like I do on Stocktwits” Answer NO |
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Post by cretin11 on Jan 10, 2022 14:47:47 GMT -5
Haha, thanks sports and thank you mods for keeping on top of stuff like that!
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Post by ryster505 on Jan 10, 2022 15:46:00 GMT -5
Anyone want to start a spread with odds that we never hear from
this guy again?? Bill put it all out on the table.
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Post by sellhighdrinklow on Jan 10, 2022 18:55:43 GMT -5
Yes I wear a Dexcom and did at the time I used Afrezza as well (G5 then vs a G6 now). Managing diabetes is not as simple as using Afrezza and having a CGM. There are all sorts of factors at play that affect blood glucose, and just because you've been alerted to a high blood sugar doesn't mean you can do much about it depending on what you are doing at the time. Getting a high blood sugar down (say, from 280) would require multiple inhalations of Afrezza and create the problems with coughing it up. I can't imagine anyone with the experience of coughing up the drug and therefore not knowing how much more (if any) to take would be very thrilled with that. I am not purporting that my experience is equivalent to everyone's - just pointing out the fallacy of calling Afrezza the "holy grail" because it is not and will not be. It needs improvements before it can have a label like that. A high blood sugar of 280 DOES NOT require multiple inhalations of Afrezza to lower one's blood sugar. One 8-unit cartridge and a 1/2 mile walk would have me back to a "normal blood sugar" very quickly. Your statement of "multiple inhalations" makes me curious. How much Aftezza (cartridge units) would you need to inhale for a typical meal? For me, 6'2", 180 lbs, active (10,000 steps or equivalent cardio) 12-units is enough. A1C 5.7. ....multiple inhalations to lower blood glucose is pure fiction for the overwhelming majority that use Afrezza. |
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Post by sayhey24 on Jan 14, 2022 12:56:51 GMT -5
Any word from Stanley? We don't want him to miss a great opportunity.
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Post by sportsrancho on Jan 14, 2022 15:08:35 GMT -5
Let’s give it another week, then if anybody else wants to step up Bill will extend the same offer.
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Post by stanleyttu on Jan 25, 2022 13:43:01 GMT -5
Response to Stanleyttu post of Jan 3, 2022: I hope you take what I write in the best sense, which is what I intend. I have a very different view of Afrezza from yours. I truly believe it is the holy grail for diabetes and the future of MannKind Corporation. I believe it will become the standard of care. I believe it will change the fortunes of all investors in MannKind. Your experience is your experience. Through my experience at Vdex I have seen hundreds of patients whose experiences are much different. I suspect you didn’t get the best guidance in your use of Afrezza. I’m offering to help…with one condition: let’s do this publicly on the message board so others can see. I don’t intend to disparage your experience. I’m sure you did the best you could with the advice you got. I’m only saying it wasn’t the best advice. I think you would have a different feeling with better guidance. And, I’d like investors and prospective patients to see what happens with proper instruction. I can tell from what you’ve written that you understand a lot about Afrezza, but there’s more to it that you may not know. Also, as a person with Type 1, you are steeped in diabetes management 24x7x365. I respect that perspective. It’s life and death for you. Here’s what I want to say that may be different from what you’ve learned: the current treatment paradigm for diabetes is actually backward. It can be summarized by a phrase used to describe it from a couple decades ago: Fix Fasting First (FFF). This was/is the overarching approach to managing diabetes…and it’s wrong. To be clear, FFF developed because it was the best approach at the time given the tools available. But, with Afrezza all that changes. The real problem in BG control is prandial control. At mealtimes is when BG goes most out of control, not at 3:00am when a person is asleep. So, I have coined a phrase for what we’re doing at Vdex: Mainly Manage Mealtime (MMM). Couldn’t resist the alliteration. Now, to address some specifics about your use, I think we can alleviate much, if not all, the cough you experienced. That’s very technique-dependent. There are ways to minimize it, and then once your body acclimates to the powder, it almost completely disappears. This, as you point out, will affect dosing. So, once we get consistent intake, we can adjust dosing, an area also subject to a fair amount of nuance. Last point, because of the broad safety margin with Afrezza the is a surprising amount of leeway in dosing. My offer is to work with you to get you under better control. I’d like to see if your perspective on Afrezza might change. If you want to do it privately, that’s ok too. I just thought since you have been public with your negative experience, you might want to do so if it is positive. Best Regards to you, Bill McCullough CEO/Founder – Vdex Diabetes Hi there Bill, I appreciate you taking the time to make such an offer, but the reality is I am not currently seeking advice on how to manage my diabetes care through an online forum - to be clear, I only take that advice from my endocrinologist. I am certainly taking note of your perspective, and perhaps in time I will revisit Afrezza if new methods or techniques are shown to improve results for patients like me. I am still rooting for Afrezza, but I am not looking to seek a new prescription and try it again right now while I am seeing improvement already moving from Novolog to Lyumjev. I will be watching from the sidelines for now. Thanks again, as it is appreciated very much and I don't want you to feel I am discounting your offer. |
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Post by stanleyttu on Jan 25, 2022 13:53:15 GMT -5
Yes I wear a Dexcom and did at the time I used Afrezza as well (G5 then vs a G6 now). Managing diabetes is not as simple as using Afrezza and having a CGM. There are all sorts of factors at play that affect blood glucose, and just because you've been alerted to a high blood sugar doesn't mean you can do much about it depending on what you are doing at the time. Getting a high blood sugar down (say, from 280) would require multiple inhalations of Afrezza and create the problems with coughing it up. I can't imagine anyone with the experience of coughing up the drug and therefore not knowing how much more (if any) to take would be very thrilled with that. I am not purporting that my experience is equivalent to everyone's - just pointing out the fallacy of calling Afrezza the "holy grail" because it is not and will not be. It needs improvements before it can have a label like that. A high blood sugar of 280 DOES NOT require multiple inhalations of Afrezza to lower one's blood sugar. One 8-unit cartridge and a 1/2 mile walk would have me back to a "normal blood sugar" very quickly. Your statement of "multiple inhalations" makes me curious. How much Aftezza (cartridge units) would you need to inhale for a typical meal? For me, 6'2", 180 lbs, active (10,000 steps or equivalent cardio) 12-units is enough. A1C 5.7. ....multiple inhalations to lower blood glucose is pure fiction for the overwhelming majority that use Afrezza. I'm not sure what to tell you other than yes, yes it did. And sorry, I am not looking to go for a 1/2 mile walk while out on a date with my wife, out with friends, or otherwise doing anything in life that doesn't allow me time to "go for a walk" or ride my peloton. That is defeating the point of what the insulin is for. If your attitude is that every time I eat I also need to exercise, then you are living in a fantasy world. If you are a Type 1 diabetic with a 5.7 A1C then that is fantastic for you, but I have low confidence that is actually the case. After having Type 1 diabetes for 31 years, I can say that any T1's with A1C's that low are extremely rare, and those that do have it are hypoglycemic constantly. So yes, a blood sugar of 280 can and did require multiple doses (for ME) to get my blood sugar down. |
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Post by sportsrancho on Jan 25, 2022 14:00:44 GMT -5
Response to Stanleyttu post of Jan 3, 2022: I hope you take what I write in the best sense, which is what I intend. I have a very different view of Afrezza from yours. I truly believe it is the holy grail for diabetes and the future of MannKind Corporation. I believe it will become the standard of care. I believe it will change the fortunes of all investors in MannKind. Your experience is your experience. Through my experience at Vdex I have seen hundreds of patients whose experiences are much different. I suspect you didn’t get the best guidance in your use of Afrezza. I’m offering to help…with one condition: let’s do this publicly on the message board so others can see. I don’t intend to disparage your experience. I’m sure you did the best you could with the advice you got. I’m only saying it wasn’t the best advice. I think you would have a different feeling with better guidance. And, I’d like investors and prospective patients to see what happens with proper instruction. I can tell from what you’ve written that you understand a lot about Afrezza, but there’s more to it that you may not know. Also, as a person with Type 1, you are steeped in diabetes management 24x7x365. I respect that perspective. It’s life and death for you. Here’s what I want to say that may be different from what you’ve learned: the current treatment paradigm for diabetes is actually backward. It can be summarized by a phrase used to describe it from a couple decades ago: Fix Fasting First (FFF). This was/is the overarching approach to managing diabetes…and it’s wrong. To be clear, FFF developed because it was the best approach at the time given the tools available. But, with Afrezza all that changes. The real problem in BG control is prandial control. At mealtimes is when BG goes most out of control, not at 3:00am when a person is asleep. So, I have coined a phrase for what we’re doing at Vdex: Mainly Manage Mealtime (MMM). Couldn’t resist the alliteration. Now, to address some specifics about your use, I think we can alleviate much, if not all, the cough you experienced. That’s very technique-dependent. There are ways to minimize it, and then once your body acclimates to the powder, it almost completely disappears. This, as you point out, will affect dosing. So, once we get consistent intake, we can adjust dosing, an area also subject to a fair amount of nuance. Last point, because of the broad safety margin with Afrezza the is a surprising amount of leeway in dosing. My offer is to work with you to get you under better control. I’d like to see if your perspective on Afrezza might change. If you want to do it privately, that’s ok too. I just thought since you have been public with your negative experience, you might want to do so if it is positive. Best Regards to you, Bill McCullough CEO/Founder – Vdex Diabetes Hi there Bill, I appreciate you taking the time to make such an offer, but the reality is I am not currently seeking advice on how to manage my diabetes care through an online forum - to be clear, I only take that advice from my endocrinologist. I am certainly taking note of your perspective, and perhaps in time I will revisit Afrezza if new methods or techniques are shown to improve results for patients like me. I am still rooting for Afrezza, but I am not looking to seek a new prescription and try it again right now while I am seeing improvement already moving from Novolog to Lyumjev. I will be watching from the sidelines for now. Thanks again, as it is appreciated very much and I don't want you to feel I am discounting your offer. Thank you for your response. All the best to you. |
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Post by stanleyttu on Jan 25, 2022 14:01:29 GMT -5
For everyone else, I can assure you that I am a real person and in no way associated with any other accounts. I visit this forum very infrequently (usually every couple of years) as I monitor and hope that MNKD will take off. I'm $10k invested with the current value under $2k, so you can imagine that I am ready for it to turn around. Please don't take any lack of responses to mean I am disingenuous. I am simply not on this forum often due to other commitments in life.
Thanks all for your perspectives. I hope you will consider mine as well.
-Stanley
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Post by sportsrancho on Jan 25, 2022 14:08:17 GMT -5
I definitely want your perspective.
And this should serve as a reminder to people that most of the time people are who they say they are they are. Some people on this board can’t tell the difference, they can’t even tell the difference between a long and a short:-) 🤷🏼♀️
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Post by peppy on Jan 25, 2022 14:30:20 GMT -5
For everyone else, I can assure you that I am a real person and in no way associated with any other accounts. I visit this forum very infrequently (usually every couple of years) as I monitor and hope that MNKD will take off. I'm $10k invested with the current value under $2k, so you can imagine that I am ready for it to turn around. Please don't take any lack of responses to mean I am disingenuous. I am simply not on this forum often due to other commitments in life. Thanks all for your perspectives. I hope you will consider mine as well. -Stanley Thank you Stanley for your input, and raising my conscious level on the difficulty tolerating the inhale. Many years ago, after Sanofi had dumped Afrezza, I went to Amy T's board, there was a discussion about afrezza. There, I read people who had a CGM, and a pump, and a system, and the costs were covered by the costs of their health insurance and those people had no interest in switching. I said to myself, oh. They had worked for years to get the support they now had. Then I think I calculated, the low of the breakfast dose, comes around lunch time.... and the glitches that would come at night with the RAA's, would be the problems. You have found your way to deal with your blood glucose... swings and all. Please stay and comment... all the time. |
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Post by cretin11 on Jan 25, 2022 14:32:17 GMT -5
For everyone else, I can assure you that I am a real person and in no way associated with any other accounts. I visit this forum very infrequently (usually every couple of years) as I monitor and hope that MNKD will take off. I'm $10k invested with the current value under $2k, so you can imagine that I am ready for it to turn around. Please don't take any lack of responses to mean I am disingenuous. I am simply not on this forum often due to other commitments in life. Thanks all for your perspectives. I hope you will consider mine as well. -Stanley Thanks for posting and sharing your perspective Stanley. Best of luck to you and your diabetes treatment. You have your plan and it’s working for you. I’d still gently encourage you to give Bill a call, he’s not your doctor but he might be able to offer some info of value, at least it might be worth a few minutes if your time. Regardless, you are always welcome here, and let’s hope that $2K turns around for the better and more resembles what you originally put into it. |
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Post by sayhey24 on Jan 25, 2022 16:29:07 GMT -5
For everyone else, I can assure you that I am a real person and in no way associated with any other accounts. I visit this forum very infrequently (usually every couple of years) as I monitor and hope that MNKD will take off. I'm $10k invested with the current value under $2k, so you can imagine that I am ready for it to turn around. Please don't take any lack of responses to mean I am disingenuous. I am simply not on this forum often due to other commitments in life. Thanks all for your perspectives. I hope you will consider mine as well. -Stanley Stanley - I am very disappointed you are not interested in Bill's offer. Bill has had tremendous success with hundreds of patients but the opportunity to publicly address issues which you publicly cited could provide the basis for bigger more formal studies. If nothing else it would provide interesting material for numerous diabetes publications. What better way for a Mannkind "turn around" than to personally help? You say you are seeing improvement with Lyumjev which is nothing more than humalog with a little treprostinil added. How great of a story would it be if Bill could further improve on the latest and greatest RAA which you are using. You could be "that guy". I hope you change your mind. You will never be able to get the results with Lyumjev than you can with an optimized "afrezza solution". If nothing else take some of the Vdex white papers to your endo and see what they say and let us know the next time you pop by. |
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Post by sellhighdrinklow on Jan 25, 2022 23:15:04 GMT -5
A high blood sugar of 280 DOES NOT require multiple inhalations of Afrezza to lower one's blood sugar. One 8-unit cartridge and a 1/2 mile walk would have me back to a "normal blood sugar" very quickly. Your statement of "multiple inhalations" makes me curious. How much Aftezza (cartridge units) would you need to inhale for a typical meal? For me, 6'2", 180 lbs, active (10,000 steps or equivalent cardio) 12-units is enough. A1C 5.7. ....multiple inhalations to lower blood glucose is pure fiction for the overwhelming majority that use Afrezza. I'm not sure what to tell you other than yes, yes it did. And sorry, I am not looking to go for a 1/2 mile walk while out on a date with my wife, out with friends, or otherwise doing anything in life that doesn't allow me time to "go for a walk" or ride my peloton. That is defeating the point of what the insulin is for. If your attitude is that every time I eat I also need to exercise, then you are living in a fantasy world. If you are a Type 1 diabetic with a 5.7 A1C then that is fantastic for you, but I have low confidence that is actually the case. After having Type 1 diabetes for 31 years, I can say that any T1's with A1C's that low are extremely rare, and those that do have it are hypoglycemic constantly. So yes, a blood sugar of 280 can and did require multiple doses (for ME) to get my blood sugar down. I've been a Type 1 since January, 1978. You don't have to believe me but what I say is fact and I have very few hypoglycemic situations compared to my multiple injections of Humalong and once daily Lantus injections where my A1C was 6.3 under ideal conditions, i.e, insulin, food, exercise. Dexcom. --Bottom line, I'm diligent now on Afrezza but much less diligent than I was on multiple injections and dialed into every aspect of a Type 1 diabetic's lifestyle in order to keep my A1C at 6.3. I'm guessing you lead a sedentary lifestyle. Just a guess. I'm at 280 once ever 2 months...or three months and rarely hypoglycemic. Afrezza is the best in Type 1 diabetes care but you have to lead a life of moving around. It won't work well as a person taking 2000 steps a day. That is my professional opinion as a 43-years long Type 1. ✌️ |
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