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Post by epc1355 on Feb 21, 2017 16:45:26 GMT -5
Are there any active endocrinologists on this board? What are your thoughts on Afrezza? Why do you think there is a muted response in the medical field for something that seems like a superior treatment option?
I know there are MANY MANY opinions on why the slow (or nonexistent) change in script numbers. As well as opinions that physicians are corrupt or just not up to date on medical options. But I'm hoping we can avoid weighing down this post with all of those opinions, and just get opinions from any endocrinologists that may be members. Thanks!!
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Post by babaoriley on Feb 21, 2017 16:57:55 GMT -5
Playing one on TV won't do?  |
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Post by epc1355 on Feb 22, 2017 11:06:04 GMT -5
Shoot! No Endos? Does anyone else find that a little concerning? I'm a dermatologist, and if there was a game changing new medication in my field, I would definitely be taking more interest in it as a prescriber, and as an investor. I wonder why the lack of interest in the endocrinology field. The only endocrinologist I know well seemed to be under informed about it, so I'm hoping that's the case in general. At least that can (hopefully) be corrected. Or have we all just convinced ourselves that this is a better medication than it really is?? From everything I've read about it, I'm convinced....I just wish I could hear back from someone that would actually write for it! Oh well.
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Post by peppy on Feb 22, 2017 11:15:08 GMT -5
we have had a few (3 that I think I know of) people that are physicians on this board. One medical school student in residency? A physician or two frequents the board.
In reply to any endocrinologists out there? the study included 6,501 adult endocrinologists with practice locations in the 50 states and the District of Columbia (DC). There were only 1,203 pediatric endocrinologists in 47 states and DC and no pediatric endocrinology practices were identified in Idaho, Montana and Wyoming in 2012. Each endocrinologist was geocoded to his/her practice location’s street address. www.ncbi.nlm.nih.gov/pmc/articles/PMC4672571/
endocrinology treats the endocrine system. The endocrine system consists of several glands, all in different parts of the body, 
regarding gonads, ovaries and testacies. ovaries shown. no testicles shown. Have you had your testes checked?
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Post by cm5 on Feb 22, 2017 11:21:45 GMT -5
Well, there is one other for sure-----I think moniker is Afrezza doc----or close to that.
I am board certified in a speciality, MD, to make that clear.
I believe you are referring to Stevil as a med student-------although there were many indications (quality of posts, info in posts, constant and long frequent posts when over all there is barely time to breath in medical school) that he was really not a bona fide medical student-----that's my opinion.
I do know that there are several dermatologists in the NEC who believe in this product, and as far as I know, are still investors-----this by direct word of mouth, and statement "I don't understand why this specialty seems to get this more than others"-----from a drug rep in completely different company/product line/disease, who calls upon many specialists of all sorts----curious
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Post by nylefty on Feb 22, 2017 12:24:02 GMT -5
I believe you are referring to Stevil as a med student-------although there were many indications (quality of posts, info in posts, constant and long frequent posts when over all there is barely time to breath in medical school) that he was really not a bona fide medical student-----that's my opinion. Stevil admitted at one point that he was "pre-med." |
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Post by saxcmann on Feb 22, 2017 12:50:20 GMT -5
Shoot! No Endos? Does anyone else find that a little concerning? I'm a dermatologist, and if there was a game changing new medication in my field, I would definitely be taking more interest in it as a prescriber, and as an investor. I wonder why the lack of interest in the endocrinology field. The only endocrinologist I know well seemed to be under informed about it, so I'm hoping that's the case in general. At least that can (hopefully) be corrected. Or have we all just convinced ourselves that this is a better medication than it really is?? From everything I've read about it, I'm convinced....I just wish I could hear back from someone that would actually write for it! Oh well. My endo friend would not comment on this board or any other message board for that matter. He does read occasionally this board. I'm sure other endos and mnkd management reads this board at times. I discuss afrezza and other diabetes drugs several times a week with my endo friend. My endo friend is private and wouldn't waste his time replying to posters. My comments in general (when talking about afrezza) are accurate with his views as well. And yes, he writes for it! 😊 |
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Post by babaoriley on Feb 22, 2017 13:14:03 GMT -5
I can see it now, "And, Dr. Jones, why is it that you prescribed Afrezza to the deceased, and remember, you're under oath." "Well, I got hooked on this website for MannKind, mainly investors there, you know, but they really thought it was good, so I figured, 'why not.'"
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Post by dejude42 on Feb 22, 2017 13:14:25 GMT -5
www.afrezza.com/find-a-doctor/ Name a state and it list those in the area; 38 will prescribe Afrezza in Ohio, Ohio has increased two fold since I last looked up Afrezza. 2 PEDIATRIC ENDOCRINOLOGY 19 ENDOCRINOLOGY 7 Internal Medicine 8 Family Practice 2 PHYSICIAN ASSISTANT A good movie on first time Afrezza knowledge from patients. Hope this is not considered hijacking site---Just answered any Endocrinologist out there
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Post by docfrezza on Feb 22, 2017 14:44:59 GMT -5
I am an MD. I read this board daily but have nothing to add at this time.
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Post by tingtongtung on Feb 22, 2017 16:53:36 GMT -5
I'm not a doctor, not even in medical field..
I think one of the reasons for the lack of growth could be.
Humans are creatures of habit, and Afrezza needs fine controlled doses (IMHO). You just can't pop a pill/inject the quantity of insulin that you have been doing for years. You need to know exactly (or close) to what you *SHOULD* take, and take it at the right time.
But, everything about Afrezza seems to be different compared to normal Insulin. You have to take it little later than your current injection/pen (and you have to remember it every time). Bigger dose(?), more expensive. And, the units are set in stone (2/4/8/12), and individuals may need 1/3/5/7? So, they have to take 4 instead of 3, 2 instead of 1, etc.. It looks like a hassle from outside in. But, it does make their life better. It's frequently not available as easily (I see all these tweets here)..
I'm not criticizing the efficacy of the drug. I'm in this way before Sanofi. I'm just being the devil's advocate.
I think, it still needs better way of prescription, and a lot of handholding in the beginning for every patient (at least until the user groups/VDex/etc become more common), and a CGM (don't know how affordable it is).
And, a easier way to remember (titrate?) the doses. I don't know how the diabetes patients set their insulin doses (do they tune it every meal, based on grams of protein/starch/sugar/etc.., or just a ball park figure?)
May be MNKD has to educate patients more (a lot more). Come up with specific steps, which makes taking this medicine easier, and lots of Drs can prescribe it with confidence (confidence not about the drug, but confidence that the patients will use it properly and keep it under control).
I know, I'm all over the place. I'm sure you guys can understand :-) what I'm trying to say..
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Post by dreamboatcruise on Feb 22, 2017 17:34:19 GMT -5
I can see it now, "And, Dr. Jones, why is it that you prescribed Afrezza to the deceased, and remember, you're under oath." "Well, I got hooked on this website for MannKind, mainly investors there, you know, but they really thought it was good, so I figured, 'why not.'" Afrezza is a miracle drug, but I don't think anyone, even here, believes it can bring the deceased back to life. Or... at least most of us don't. |
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Post by sweedee79 on Feb 22, 2017 19:41:11 GMT -5
Shoot! No Endos? Does anyone else find that a little concerning? I'm a dermatologist, and if there was a game changing new medication in my field, I would definitely be taking more interest in it as a prescriber, and as an investor. I wonder why the lack of interest in the endocrinology field. The only endocrinologist I know well seemed to be under informed about it, so I'm hoping that's the case in general. At least that can (hopefully) be corrected. Or have we all just convinced ourselves that this is a better medication than it really is?? From everything I've read about it, I'm convinced....I just wish I could hear back from someone that would actually write for it! Oh well. NO WAY we have convinced ourselves that it is better than it really is......... its hands down better.. Ive seen it in real life. Ive also faced endos in real life.. and just because they are an endo, md ... specialist .. etc .. doesn't mean they will pay any attention ... In my experience it was like talking to wall .. I don't know if that is because they are busy... scared of the inhalation... or what.. but we are seemingly speaking to a deaf endo population .. They are too busy... they are too conservative.. I don't know what,, but it sure is frustrating .. My dads endo seemed scared of it .. scared of increasing the dose.. scared of hypo ... and wanting to adhere to a strict standard of care of that really doesn't serve people with diabetes very well... she was scared of controlling the A1C too tightly ... It was change.. and it appeared to me she didn't want to change... |
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Post by peppy on Feb 22, 2017 20:11:47 GMT -5
Shoot! No Endos? Does anyone else find that a little concerning? I'm a dermatologist, and if there was a game changing new medication in my field, I would definitely be taking more interest in it as a prescriber, and as an investor. I wonder why the lack of interest in the endocrinology field. The only endocrinologist I know well seemed to be under informed about it, so I'm hoping that's the case in general. At least that can (hopefully) be corrected. Or have we all just convinced ourselves that this is a better medication than it really is?? From everything I've read about it, I'm convinced....I just wish I could hear back from someone that would actually write for it! Oh well. NO WAY we have convinced ourselves that it is better than it really is......... its hands down better.. Ive seen it in real life. Ive also faced endos in real life.. and just because they are an endo, md ... specialist .. etc .. doesn't mean they will pay any attention ... In my experience it was like talking to wall .. I don't know if that is because they are busy... scared of the inhalation... or what.. but we are seemingly speaking to a deaf endo population .. They are too busy... they are too conservative.. I don't know what,, but it sure is frustrating .. My dads endo seemed scared of it .. scared of increasing the dose.. scared of hypo ... and wanting to adhere to a strict standard of care of that really doesn't serve people with diabetes very well... she was scared of controlling the A1C too tightly ... It was change.. and it appeared to me she didn't want to change... quote: she was scared of controlling the A1C too tightly reply: because subq insulin is so scary.
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Post by epc1355 on Feb 23, 2017 11:15:35 GMT -5
I don't spend a lot of time on the board, so I'm not sure what your views, or your corresponding friends views are. He's been happy with results? Does he have thoughts as to why it isn't catching on faster?
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