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Post by bradleysbest on Apr 23, 2015 15:31:45 GMT -5
Agree that SNY (or someone)should publish a list of "pro" Afrezza doctors. Cut out the BS and go to a doctor that can actually help you!
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Post by alethea on Apr 23, 2015 15:37:54 GMT -5
No, but I hope to be. I have a doctor appointment in one week. I'm not optimistic. I just lost my doctor of several years due to changing insurance this year. I had to change because I'm getting it thru the Government Marketplace (Obamacare). I'm currently using Bydureon (a once per week dose in lieu of twice daily Byetta). I have had pretty good A1C's recently, mostly due to eating as low-carb as I can possibly stand. Recent readings of 6.3, 6.2, even a 5.9. I can already hear the doctor saying "your numbers are too good to need this (Afrezza) yet". I had been preparing the doctor I just lost to prescribe A for me. Her response was an emphatic "No, with your numbers? I could be charged with malpractice". And yet she was progressive enough to let me get on Byetta and then Bydureon, again at my urging.
I think her attitude is bunk because sometimes I break down, I must have carbs. My favorite Chinese lunch special leaves me with BG of 240 or 250. I don't have much (if any) first-phase insulin response left from my pancreas. Four or five hours later my BG is down to reasonably good levels of 110 or so. Even eating an apple has put me over 200 before. I've even hit 300 several times in the last 11 years. So I really, really, REALLY want to try Afrezza. These short-term BG excursions above 200 are not good. Current thought is that these excursions cause much of the organ, blood vessel, nerve, retina problems.
I'm willing to doctor-shop off network to find a forward thinking MD willing to let me try Afrezza, even if I must pay for it.
Sanofi could do a HUGE favor for folks like me by publishing a list by region of MD's prescribing Afrezza.
That was a beautifully written tell all that encapsulates both an individual battle with uncertain health insurance, and what must be intimately personal battles with disease more common than we know. On the other hand...who would have figured Eastern Iowa as a chinese food hotbed? Thanks for the good info, and good luck w new doc Thanks kball. And hey, don't be shocked. But we have a Japanese, a Thai and even a Vietnamese restaurant out here in fly-over country he said from under his straw hat while dressed in cover-alls with a straw hanging from his mouth while watching reruns of Hee Haw.
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Post by liane on Apr 23, 2015 15:40:39 GMT -5
I did several weeks of my training in eastern IA - wicked good Mexican food as well.
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Post by mnholdem on Apr 23, 2015 16:31:26 GMT -5
Being a Minnesotan, I kinda thought Iowans ate southern food (chuckle). You may also want to check with the physicians at a nearby university. I'm not sure about Iowa but the UofM has at least two diabetes research programs. Those physicians are a little more attuned to research and tend to be a little more open-minded.
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Post by kc on Apr 23, 2015 17:03:46 GMT -5
I know of Two Endo's in KC who will prescribe Afrezza. Eastern Iowa. I think Afrezzauser has a database of docs writing for Afrezza. Rob Sacher I think was building a database as well. Another option is to call Sanofi and see if they can put you in touch with the salesperson who covers Eastern Iowa as they could connect you to a doc. Good luck to you.
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Post by kball on Apr 23, 2015 17:32:00 GMT -5
I did several weeks of my training in eastern IA - wicked good Mexican food as well. I've been to Spaghetti Works in Des Moines! Of course this was 20+ years ago. (aware this adds no value)
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Post by robsacher on Apr 23, 2015 18:00:16 GMT -5
I had an idea of building a database of hospital groups that have diabetes outpatient programs where Afrezza is a part of their therapy. I started a thread for folks here where they can add to the list. Not sure if anyone has done that but glad to know others are in support of the idea. Maybe check the Message Board for where that list may exist.
You know, if anyone can build a wordpress or similar type of website, that could be a really good location for such a list of doctors and hospitals.
Anyone have that expertise? It can have a web name like: AfrezzaReferralService.org
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