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Post by compound26 on Oct 11, 2016 12:51:12 GMT -5
How about having 50+ afrezza users congregate in a public outdoor area having an open-challenge to any non-diabetics who walk by. Have an assortment of foods available (picnic style) and have an afrezza user sit down with a non-diabetic to the exact same meal. What a great way to meet someone and learn about diabetes and you also get a nice meal with it. Take a glucose measurement before the meal, after the meal, and maybe keep them around to take another reading 30min after the meal. If the non-diabetic wins, give them a prize (t-shirt). If they lose, suggest they give a $5 donation to a diabetes foundation to help further the noticeable progress with diabetes treatments now being seen with Afrezza right in front of them. Make it kid friendly with lawn games so parents will have incentive for coming out and staying. Food, games, and prizes can all be done pretty cost-effectively. The hard part will be getting 50+ titrated/confident afrezza users in one spot to accept the challenge If you strategically pick a day when there is not much news going on you could probably get a few news stations to come report it. It will probably be the most exciting thing for that day and get a lot of good press. sounds like a great idea. As you noted, it will difficult to get 50+ titrated/confident afrezza users in one spot to accept the challenge. How about Mannkind finding one or two Afrezza users in each major JDRF or TCOYD walk/event to do a mini A1C challenge? Not necessary having meals. Even having an orange juice or coke will be fine (kind of like a live version of what Matt B did in his extreme coke and glucose challenge videos). |
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Post by compound26 on Oct 10, 2016 19:17:14 GMT -5
What do you think about doing an inexpensive a A1C challenge on a larger (and somewhat nation-wide  ) scale? Say we get 10 (I just picked a random number) diabetic (on Afrezza) and 10 non-diabetic, all on a volunteer basis (each paying for his/her own bill . Perhaps we can set up an appointment (say noon time on central time or pacific time on a certain date) and go to the same restaurant chain (say Chipotle, again, I just picked a random chain) and order the same food. Then at certain time (say one hour after we started eating), we can use the same (brand and model) BG testing tool to test the BG level. We can then post the results (upload a screenshot) on twitter or other social media (maybe even tudiabetes.org and other diabetic forum, if appropriate). Does this help to showcase the power of Afrezza to bring down BG levels and improve its awareness a bit? If so, will any of you be interested in participating in such an event? If anyone else is interested, I am in for one. The more the merrier. |
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Post by compound26 on Oct 10, 2016 15:25:33 GMT -5
Monday's the big day. The Afrezza sales team comes to Temecula, CA.  Have the troops arrived? |
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Post by compound26 on Oct 9, 2016 10:43:36 GMT -5
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Post by compound26 on Oct 7, 2016 10:43:47 GMT -5
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Post by compound26 on Oct 6, 2016 19:06:47 GMT -5
Maybe it is just me--I was never impressed with what this guy wrote about Mannkind or Afrezza in the first place. I do not think he has deep understanding of Mannkind or Afrezza. IMHO, his knowledge in Mannkind and Afrezza is much limited than many of the long-time posters in this board.
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Post by compound26 on Oct 6, 2016 18:52:35 GMT -5
To begin, I want to thank all of you on this board for providing such good info. It was a great help. Not to be too sentimental, but it has been such a pleasure thus far being a part of this board and the common effort we are all a part of. I have no idea at this point whether my investment will ever pay off or go to zero. But I will honestly be able to say that I tried in my own small way to help the diabetic community hear about Afrezza and how it could improve their lives. So how did it go? My visit went very well but probably won't improve script counts in the near future.  I chose three documents to give to my GP. I did not want to hand him too much information. It included the following: 1. The article by Keith Campbell called Treating Diabetes In a Physiologic Manner 2. The 2016 ADA Abstract on the Earlier Onset and Shorter Duration of Technosphere Insulin 3. A clipped copy of the front page of afrezzajustbreath.com As expected of most GPs, he was running late and I knew I did not want to talk too much as he did not have a lot of time to see me. I went through my personal health issue as fast as possible and then asked him if he had researched Afrezza since I had mentioned it too him. As I expected, he had not (he is very busy). But he did say that their diabetic educator had just come back from a conference where Afrezza was mentioned and that he had now heard about Afrezza twice. With my visit, that would now be three times. He mentioned that he had been on an advisory board for Exhubera so he was familiar with the attempt at inhaled insulin. I gave him a quick run down of what documents I was giving him. I spoke about how fast Afrezza was in and gone and how current users of Afrezza were able to control both their highs and lows. I also mentioned that Afrezza seemed to work better if taken after eating began. This surprised him a little. I also mentioned that additional corrective doses could be taken if the meal was too big and because Afrezza was out so fast, the problem of insulin stacking was not an issue. There was only so much I could say in 5 minutes. But I talked fast. He thanked me giving him the information and asked how I came to know about this product. I told him I was an investor who had followed the product for nearly a decade. Although I am not diabetic, I said to him this is what I would want to take if I was ever diagnosed with diabetes. I have no idea how far this will go in terms of getting him on board. But I think he is intrigued that he has now heard about Afrezza three times in the last three months. Twice from me thank you very much. If he does try a patient on Afrezza and becomes convinced of its value, he does have influence in this area with other doctors. I will continue to spread the word and build on my new "information packet" to hand out. I will provide updates if I hear anything more. great effort! |
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Post by compound26 on Oct 6, 2016 17:21:44 GMT -5
Wondering if Mannkind has any plan to use the less hypo data for label change or anything else? I recall the studies showed a 30%/50% (can't recall exactly as I can not get access to the full report any more) plus reduction in hypo rate. www.easdvirtualmeeting.org/resources/reduced-hypoglycaemia-is-observed-with-inhaled-insulin-versus-subcutaneous-insulin-aspart-in-patients-with-type-1-diabetes-mellitus--2Interestingly, in the this video of Al Mann (the discussion regarding the hypo events starts at around 11 minutes of the video), it appears in the main study (I assume it is the study for Type ones, study 171), Al Mann mentioned that in that study, there is one person who accounted for more than half of all the hypo events in the study. Al Mann said in the video that Mannkind would investigate why this person had so many hypo events. Wonder if they have found anything. Anyway, if you take out that person (an outlier), the hypo events would have dropped another 50%. That would mean Afrezza probably reduced the hypo rate for all the other users (i.e., excluding this one outlier) by 75% plus. Imagine Mannkind can claim that in the label!
And this result seems to be consistent with the observations shared by the real world Afrezza users (that Afrezza is less likely to cause a hypo in the first place and even if it causes a hypo, because its fast-in and fast-out nature, the hypo event would be less severe). Wondering if Mannkind has any plan to use the less hypo data for label change or anything else? |
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Post by compound26 on Oct 6, 2016 15:38:35 GMT -5
www.tudiabetes.org/forum/t/afrezza-as-a-correction-bolus/56490/50?u=charles5Terry4 (replying to gonetotown) gonetotown: And, curiously enough, almost invariably around 3-4 am! Always amazes me how diabetics always manage to crash between 3 and 4 am! This comment reeks of condescension and self-righteous judgment! You are obviously not here to participate in a peer support group. You choose to frequent our forum and come off as somebody who might bestow diabetes pearls of wisdom from someone who doesn't know squat about living with diabetes. Why don't you take your offensive and patronizing remarks someplace else?
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Post by compound26 on Oct 4, 2016 15:21:48 GMT -5
The ADA extracts can be found here: |
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Post by compound26 on Oct 4, 2016 15:05:57 GMT -5
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Post by compound26 on Oct 4, 2016 9:26:12 GMT -5
www.tudiabetes.org/forum/t/afrezza-and-travelling/56452/17?u=charles5gonetotown 2d Duck_Fiabetes: The most freedom from Diabetes I have ever experinced in 33 years as a T1. How often does the CCO of Mannkind buy you lunch:Sam19 2d Do you have any legitimate or even well intentioned reason to be posting on this forum?
The CCO of mannkind does outreach with actual users who've shared great success stories. He personally joined this forum to address a concern and issue I was having getting an rx filled and followed up on it several times to ensure it was straightened out, personally. I'd be more than thrilled to take him out to lunch. I'm a bit jealous. www.tudiabetes.org/forum/t/afrezza-as-a-correction-bolus/56490/22?u=charles5Sam19 9h Jen: I'm still very curious to know whether you have any actual experience living with diabetes.
gonetotown and if not, what are you doing here?
LADA_lady 8h Do we have an Im-poster?
A poster who is assuming the identity of someone with diabetes?
Hmmm . . .
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Post by compound26 on Sept 26, 2016 17:29:09 GMT -5
3. NRx numbers are the highest they have been since May I believe (based on my memory of seeing Liane's chart, although I could be off a few weeks either way) NRx numbers are the highest they have been since Feb. 2016. |
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Post by compound26 on Sept 25, 2016 16:10:27 GMT -5
The following is from a recent post on Tudiabetes.org: "I just returned home from the JDRF fund-raising walk in Portland, Oregon. Mannkind displayed Afrezza info complete with empty sample cartridges and clean individually wrapped "whistles" to give it a try. The table was staffed by two full-time Mannkind employees in uniform. These employees were registered nurses and CDE's. I was impressed with their effort to expose a whole event full of T1Ds to this novel product. This looks like a legitimate try to give Afrezza a realistic chance to succeed. I stopped by to tell them that I'm a user and love their product. I hope that they can sustain this effort so that Afrezza can help more people." www.tudiabetes.org/forum/t/afrezza-gains-marketing-exposure/56357?u=charles5 |
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Post by compound26 on Sept 23, 2016 18:59:52 GMT -5
I could be wrong, but I thought it was that sample packs were free, but not titration packs. The titration pack is by prescription. However, based on what heard on the conference call, I understand Mannkind is giving out (one-month supply) vouchers for the titration packs before the new (bigger) sample packs are available. |
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) scale? 
